I'm sure you realize that his theory is not based on any evidence ... it's just is prognostication ... research it. The former president would be in trouble since he got the vaccines if that guy is...
Not to be a spelling nazi, but the word is "stricture" not "stricter" :) I don't know much about them other than that they are caused by inflammation. What is the extent of your UC? Is it pancolitis,...
Yep ... you better eat! :) Until things are more healed maybe you could either use a blender or a food processor to make your own version of baby food if you get tired of the usual soft foods....
I've heard people talk about getting prescribed anti spasmatics to help with the cramping. Maybe someone can say what that med is (I've never had it)...
damo, I never said it CRP was used to measure the progression of OA. But having OA can keep CRP from being in the normal range so that's why I don't get too alarmed when my CRP is high. It's not...
I always blamed the high CRP and Sed on the osteoarthritis in my knees when I am in remission (confirmed by colonoscopy) though I had no info to back that up -- I just thought that made the most...
You definitely have antibodies, just not as many as some others. My score was a 3 :(...
Good luck, PoppaT! Hope it works for you!...
CRP tests show inflammation anywhere in the body so even when I am in remission it always shows that I am high because I have arthritic knees. When I am flaring it's a lot higher. But if I had a...
So sorry to hear this! Have you reached out to your NY surgeon to let him know what is going on? Maybe he would have a suggestion for you if your local docs aren't helping. Obviously, this can't...
I had trouble opening the secure email. I use Outlook 365 as my email client and it wouldn't open. But when I accessed my email account through the web browser instead it opened without a problem. I...
I had 2 doses of Pfizer -- no effect on UC...
Michele, I hope that wasn't directed at me. I was just wanting to point out the rising numbers of cases. The rises are alarming. Previously it took Florida 2 weeks to double the number of new cases....
Just an FYI even though some think these numbers aren't real -- Florida nearly doubled the number of new cases last week to 45,449 or 6492/day. We are going through yet another wave of infections. In...
A new GI I am checking out in September looks young, but his profile at the practice says IBD so hoping that he is more knowledgeable than my current GI (when I saw him in April he was not aware that...
All of these drugs have co-pay assistance programs (except 6 mp which is a generic pill so not real expensive). Once you decide, insurance will need to pre-approve and then you contact the drug...
6mp is the easiest to take since it's a pill. It takes 2-3 months to work after you get to a therapeutic dose (confirmed by blood test). You will need to have frequent blood tests when you start to...
Waiting 3 months for a follow-up after being hospitalized is unacceptable. Are you in the U.S.? If so, I would definitely be looking for another doc. I know other countries it can be more difficult...
I know that Pfizer has applied for full FDA approval of their vaccine. I assume the others will as well if they haven't already. I am glad they were approved under emergency use authorization...
I have always wondered about Florida's reported Covid deaths. It's so much lower than most other states. The only way we will know for sure is when the final 2020 deaths from all causes is compiled....
I wouldn't have either of them if I had no symptoms -- especially if I had to pay myself as they are rather expensive tests. I only had CT scans done when I was in a bad flare so they could see how...
Sara- what do you want to see in 2 months? You should see improvement within 2 months if Xeljanz is going to work, but complete remission could take a little longer....
Faithmac, please be careful. You said you live in Florida and the number of new cases has been increasing steadily the past few weeks. Florida is reporting their numbers once a week now (guess they...
Faithmac -- no one is going to force you to take the vaccine. The people on Earth2 seem to believe in crazy conspiracy theories please don't fall for that crap, stop listening to cable news, talk...
I had both doses of Pfizer. Had severe chills and fatigue for 24 hours, but otherwise no side effects. Sadly, because I am on Remicade I only was able to develop a low level of antibodies. I am one...
A low dose of pred wouldn't do a thing for me in a bad flare. Do you feel as though you are passing enough stool (in any form) based on how much you are eating? Our colons swell with inflammation and...
I didn't see gastro issues as a side effect. Possible you are starting a flare?...
I didn't have much luck with Humira, but Remicade seems to be working well (knock wood) now that I have gone to every 4 weeks. Might want to keep that in your back pocket in case you need it. Stelara...
How are you doing with accident recovery? So sorry that happened to you! Since Entyvio is a completely different biologic and is colon specific and not systemic like all the others, you shouldn't...
The constipation could be from inflammation narrowing the colon. Myralax should be kicking in soon and will keep stools soft so they move more easily but it won't treat the inflammation. Can you try...
You could try a fiber supplement to bulk up the stools. And adding steroid enemas would be good too. Those should start to help pretty quickly but can take some time. 6 wk infusions can help keep...
Dosage of 6mp is by weight and there is a blood test to see if you are at therapeutic levels. I would ask the doc about that first. Your dosage may need to be adjusted. If you are at the right dosage...
I hope that takes care of this problem, Andreita. Best wishes!...
I had no idea there was a blood test for IBD. I always heard there wasn't a blood test for that. That's why I love this forum -- always learning something new...
Do you get your infusions every 8 weeks? They can do them more frequently. Maybe you should ask to go to 6 weeks to see if that helps. How long have you been on Entyvio?...
I had my 2nd dose on March. I guess if CMV is reactivated in a year I can blame it on the vaccine ;)...
Did he give you any suggestions on what to eat? Or how you can eat with a blockage? Can you see your surgeon? Sorry for so many questions. Just throwing things out there. I hope you can find some...
I don't know why Pfizer said they wanted to speak to me. They had zero info and told me to look for trials/studies online. They gave me a phone number for their clinical trials department who told me...
I think my results took about 10 days, Sara I contacted Pfizer because I saw that they were going to do a study for people who didn't get a good response to the vaccines to see how they do with...
You can get CMV at any time and it can affect you anywhere in your body. I read one time that a majority of adults in the U.S. carry the virus in an inactive state. I was really sick with a mono like...
Are the blockages being caused by the ileostomy? If so, hopefully this problem will go away once you have the new J-pouch. Really sucks that you can't catch a break with this damned disease. Hope you...
I don't blame you. I think I would have refused too. How are you supposed to measure that? I always figured the nurses had training and experience to know how much was in the hat....
I live in Pennsylvania and they just removed all restrictions and mask requirements (except on public transportation). I get that everyone is tired of this, but worry that we are going to have a rise...
What output do they want you to chart? The only thing I ever had to do was note how many trips to the toilet I made when I was in the hospital one time. When they wanted to check my urine output I...
That's great, MmeMulot! I would think a high number is better. I am still double masking and keeping my distance when I rarely go anywhere. Cases in my area have dramatically decreased so I am...
Woo hoo! How long has he been off steroids? The key will be that he can stay well with the other meds as maintenance. Don't stop taking the oral and rectal meds. Eventually he may be able to ween...
This is distressing to read. You would have to have your doctor try to appeal the medication change with your insurance, but he will need to have a compelling reason why he doesn't want you to use a...
Did the pain go away? If not, you might want to go to the ER. I highly doubt the Xeljanz could have caused a problem that fast unless it was an allergic reaction. Maybe just anxiety? fwiw --- I...
I have BCBS through my employer. I know they have lots of plans, but if that was the best plan on the marketplace I still think they will cover it the same way they cover chemo drugs. Since it's not...
So you recently stopped taking tramadol & lomotil, but it was the vaccine that cause the flare?...