Yes I will ask for the bloodwork again. I've been afraid to eat green leafy vegs and raisins etc. do to this flare. So im not getting iron from diet atm. Getting a Dr. Appointment is another story! 😄...
Hello friends...my GI has cancelled my appointments twice now...I am becoming anemic again. I'm I am following a UC diet pretty well, but find I'm getting tired more each day. I was taking a multi...
Again! My GI phone consult was cancelled and moved to a later date. I,m so done with this. However being on this low Fod Map type of diet helps some...i still am having "mushy" sometimes light...
Q & Sara, Thanks, I am feeling better now in the rectal department, and will talk to my GI in a week. I'm better as far as urgency and pain, but only because ( I think ) I cut out coffee, red meat,...
I want the foam too, but I'm told I can't get it anymore...at least in Canada. Is this true? Anyone know this? Lilmissmischief...sorry you are struggling...hope things improve soon...
I had used Pentasa 2.4 mg Enemas for a week or two in Oct. One nightly for 4 days, then every other day. But, the applicater is difficult to use. I've only used enemas up to two weeks in the past few...
Hi Rufus, my dosage as I read it, is 4800mg a day. I take 6 small pills twice a day. Maybe I'm reading it wrong? But if that's the case, am I maxed out?...
Hello, it's been a while for me posting, and I'm going through proctal discomfort that has not abided for a couple weeks. Actually, in October of 22 I got food poisoning and have not had a "normal"...
Sukay....its been about 2-3 weeks and my mom has gotten so constipated and bloated that she stopped the packets. She said it hurts too much. We have tried to convince her to go to 1. But she is...
Ooops....ive been on oral for 20 years, occasional enemas and suppositories. I am a sun worshipper...of course using plenty of sunscreen. It just makes me feel better, and a great break from 6 months...
Update: The next day, she had a normal bm....not hard to pass, and we are all so happy for her. Hopefully she can gain some weight and absorb the nutrients she needs. She says shes sticking with the...
Welcome Midge,...sorry you have to deal with those enemas. I am also a retired Canadian, and we do like to travel. A few years ago i went into a bad flare and was prescribed the enemas. I packed 2...
Well, it took a long time to convince my mom to try this. She's lived with constant D for over 10 years, and her Dr. gave her no hope except using Imodium type products. She's been using 2 packs a...
I don't see how a suppository can extend that far past the rectum. You may want to try the enemas again....
I've had bloatinģ...but on both sides...no d but a ton of gas. Pre Diagnoses, I had a mass the size of a softball, on the right lower side. It was firm. Turns out it was compacted feces as I was so...
Derby...I know exactly what you are going through. I get so bad it keeps me awake....which leads to more anxiety. Lucky for me, My Dr. Prescribes sleep aids that I use when I really need to sleep....
Hi, I've had many years of constipation prior to every flare. Your symptoms are similar to mine. My GI has recommended Metamucil daily. It really does work for me....I've been taking the capsules for...
I think it's normal to have bad gas cramps after a colonoscopy. When I periodically use the enemas...they tend to leak during the day with mucus and tiny turds, until I get back to normal consumption...
I have dry eyes too...starting February 2021. I have noticed they get worse during a flare, but it could be allergies too. I've tried a prescription allergy drop but got very little to no relief. I...
Hi Sweety, I never heard of UC "burn out", or cured for that matter. I went through 5 year intervals with no flares, but remained on maintenance 5ASA which probably kept it at bay. Over time, through...
I don't recommend adding lemonade or any flavor drink you want to ever drink it again...lol because I find it hard to even smell lemon, without wanting to gag. But that's just me. After years of...
I think I need to go with my mom to her next appointment and bring all these things up. At the moment, her small town can only get new family Dr's in for two years until they do their time and move...
Beave...thanks for responding. My mom has both lymphocytic and collagenous. Her Dr. Told her there's nothing she can do about it. Only to take immodium. She's down to skin and bones, and its so...
Hi everyone, Happy Canada Day...to us Canadians!.. I was asked to find out about this for my mom who has had Micrscopic colitis for 10 years with constant diarrhea. She's 83 and takes Imodium and...
I am so thankful for the long-time support here on HW. I have benefited greatly and continue to return for help, and even give a bit of advice to newly Dx UCers. I am not on any social media...
OK....my results came back better...only 30 cm up mildly flaring. The stomach was a bit inflamed too. However, my poops are easier as the inflammation has gone down in the past 7 days using...
I'm with you Serenity. ( I reside out in the valley, BC ) I dropped off a lovely sample I had refrigerated from 6:00 this morning. I was never told to get it in that soon. This was my 3rd time for...
Q....i did use the enemas with success a number of years ago. I had a bunch left but they are now expired. The color is dark beige. And we are going on vacation in a few days, and they take up a...
Today I got the results of my April endoscope and colonoscopy. My stomach was mildly inflamed, and I was flaring only 30 cm from the bottom. That's down from 42 last scope. So I'm advised to stay on...
Have you tried using Vaseline on the applicator? I don't suffer near as much as you, but i have been using Cortisone Ointment in the rectum. This does not sting and sticks, so does not eject out....
Jess.... When I'm in remission, which was mostly for several years, until the past couple years, I cut out raw fruit and vegs, cut down coffee, cut out sweets and ice cream etc. I go on a week long...
Jess, Yes, the leaking stops when I'm in remission. ( I only used suppositories a few times years ago, and don't recall the leaking black. But remember I couldn't hold them in) What I meant by...
Jess.... Sorry about all this you are going through. When I was first diagnosed, I went on Asacol and started using Proctofoam. The foam worked wonders, and stayed in. I used it for 3 weeks. Over the...
Yes I started the retention enemas again. However, they expire this month, and the last one I used was slightly darker...does this mean it was bad now? Because I can usually hold them in all night,...
I also had a patch by the cecum and patches throughout the colon down to the rectum, when I was diagnosed with UC. Every other scope showed only disease in the sigmoid colon and rectum. The oral meds...
I'm here q, are you bored? Lol This long weekend ended up crappy for me. I've been heading into a flare and what do you know? It's here! There's plenty of stress, allergies and poor eating...
Quincy....if only I knew this 10 years ago! I have used the rectal enemas for up to 4 weeks 2 years ago, then a couple weeks every other night, a couple months ago. I did not increase the 5 ASA. I...
Hi, I have been taking 6 tablets orally (=2400 MG ) twice a day. That's 400 mg 5 ASA. I may have dipped down 18 years ago, after the 1st year for a while. And as I began getting more and more flares,...
Sorry to hear you are struggling. Before my diagnoses, while waiting 6 weeks for my colonoscopy, I was so constipated...there was a softball sized lump I,m guessing stuck in my secum area. So, I only...
19 years and counting...nothing but 5 ASA with some suppositories and enemas thrown in the mix. I have never gone down in dose...just upped. In 2003 I was in a blind trial for Asacol...a new drug at...
Quincy....nò, my GI Dr. Did not leave anything after the scope. I have the follow up May 30th. So I'm continuing the 5ASA at same dosage. I'm adding retention enemas every other night because my bms...
Well it's done! Had the scopes and slept too long to talk to my GI doc.so I was sent home to call in 4-6 weeks. The Pico-salax prep I felt, may not have been good enough. Really wish we could get a...
Totally agree....stress is a huge factor for me. In fact I'm extremely stressed today as it's the day before my colonoscopy. I've had a pain on my right side close to the hip bone and radiating to my...
OMG....my dry eyes are not helping....I read the instructions wrong, and couldn't see the spelling on the bottle...I don't need to stop my meds! I panicked for nothing, missing 2 doses already!...
I've emailed my GI several times in the past month and his office manager has promptly replied with answers, saying the Dr. Recommends this or that. This last email reply was just: Stop the ASAs....
My pŕep instructions said to stop iron suppliments the week before etc. I wasn't really paying attention to the ( ASA ) also on that list of drugs to stop. Every other scope I've had, I've never...
You are not alone...my mother buys bulk packs of underwear, especially after having to leave a soiled pair on the side of a highway many miles from home. It wasn't funny at the time, but years later...
I spoke with a pharmacist who told me to see a opthamologist as the current drops I'm using don't work any more. Wish I had my own private consultant to make up a treatment plan including...
Island time has got a good idea...I will start with Ducolax too...it worked a few years back. My appointment is at 3:00 pm...thats a long time without food or coffee! And I don't want to start the...
I go for my next colonoscopy next week. I'm in Canada and not sure I can get the pill preps. My Gastroenterologist wanted me to use BI-PEGLYTE but I've never kept that down. Luckily he agreed to let...