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NiceCupOfTea

HealingWell Forum
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Member Profile
Display Name
NiceCupOfTea
Profile Created
1/23/2010 9:28 PM
Last Seen
1/4/2021 11:08 AM
Total Posts
11009

Last 50 Posts

Hi folks

Hi folks. I actually spent Christmas at home. Tbh, even though it was only a week ago, it's all a blur to me now. Had some disagreement with my mum, and I can't even remember what it was about. But I...

1/2/2021 9:02 AM

Depression
Suggestions for Insomnia??

I take 25mg quetiapine. It does work, although some nights it takes longer to kick in than others. Downside is it can leave you groggy the next day, although I think all sleeping pills which actually...

12/22/2020 8:10 PM

Depression
Hi folks

Karen - After not knowing anyone who had Covid for the entire year, I learnt today that two people I know are in hospital with it. Both in their 50s. One is my cousin. He was sent to hospital for a...

12/22/2020 8:06 PM

Depression
Hi folks

Hi Karen. Well, we're turning into Plague Island - all of Europe has shut its borders to us now. Trouble is, it's caused the port of Dover to close down, thus leading to a potential disruption of...

12/21/2020 6:30 PM

Depression
OT Covid vaccine

There's absolutely no proof Vitamin D can prevent, or treat, Covid-19. Practically every one in the north in winter is low in Vitamin D and some groups are likely to be more deficient in it than...

12/21/2020 10:01 AM

Ulcerative Colitis
Cause of pain

Optic neuritis is beyond my paygrade. Seems to me that's something you would need to talk to an MS specialist about - I don't think a GI is likely to know a lot. You could try asking about an AZA +...

12/21/2020 9:39 AM

Crohn's Disease
Hi folks

I hope it isn't! If I was US president right now, knowing what I know (or, just as importantly, don't know), I'd ban all flights from the UK until further notice. I'm rather scared now. The bed and...

12/20/2020 2:35 PM

Depression
OT Covid vaccine

Thanks Old Hat! :p...

12/20/2020 2:14 PM

Ulcerative Colitis
OT Covid vaccine

Well I for one will be taking the vaccine the first opportunity I get. It doesn't alter your DNA - that's YouTube-level nonsense: https://www.gavi.org/vaccineswork/will-mrna-vaccine-alter-my-dna As...

12/20/2020 1:53 PM

Ulcerative Colitis
update on promising new drug ABX464

If UC was as contagious as Covid, you'd be seeing a new UC drug in a year as well. Drug/vaccine trials are usually caught up in years of red tape and applications for funding. That didn't happen...

12/19/2020 10:03 PM

Ulcerative Colitis
Cause of pain

Not at my hospital - you can stay on a biologic for years. You need to look for a new hospital if your one will only give you biologics short term. Don't know what area you are in - if it's the...

12/19/2020 9:55 PM

Crohn's Disease
Hi folks

@Trina - Thanks! I have emailed you. @Karen - Hi :p How are you? Just found out today we're in lockdown. Again. Oh joy :rolleyes: On the bright side, I get out of seeing my brother and his family on...

12/19/2020 9:37 PM

Depression
OT Covid vaccine

@Poopydoop - It's just got a whole lot more complicated! On top of the 3 existing tiers, tier 4 has just been added, as well as new guidelines on what the different tiers can do over Christmas. Tier...

12/19/2020 7:41 PM

Ulcerative Colitis
Pain and depression

I'm really worried about my teeth at the moment, so I feel your pain. I second going back to the dentist - don't wait for it to get better, just go. Good luck!...

12/17/2020 6:36 PM

Depression
Hi folks

Oh, and I don't know any Americans in real life. Obviously :-/...

12/17/2020 6:31 PM

Depression
Hi folks

How are you all? As well as can be, I hope, given the terrible year it's been. I am depressed, you'll be highly surprised to learn... >.> I also have a request, which I'm not sure is allowed on HW...

12/17/2020 6:27 PM

Depression
OT Covid vaccine

Okay, not Wuhan-style lockdown, as that is obviously too controversial. Australian-style then. I saw this post in The Guardian today. Meanwhile in the UK, we've had lockdowns and restrictions for...

12/17/2020 5:51 PM

Ulcerative Colitis
OT Covid vaccine

Stuff like this makes me scared there will never be a return to "normal." What is the point of a vaccine if we still all have to wear masks and socially distance for perpetuity? No Covid denier, but...

12/15/2020 8:20 AM

Ulcerative Colitis
EFFEXOR long term side effects

Holy crap. I'm glad you were okay, Trina. I feel like I am chronically mildly dehydrated. And in fact I've just remembered that the IBD nurse told me a few months ago that my creatinine was high and...

10/31/2020 7:24 PM

Depression
Nice Cup of Tea

Thank you! That's very kind of you. The date is 1st July 1962. Very small chance it could be 1963 but I am about 90% sure it's 1962. @Trina - No, nobody >_<. My dad was an only child and nobody from...

10/31/2020 7:06 PM

Depression
Hello folks

Hi Karen and Trina :p Well, the lockdown was announced earlier than I expected - this evening! Although it won't actually be starting until next Thursday. Because.... reasons. Anyway, I had lunch...

10/31/2020 6:17 PM

Depression
Hello folks

Hello everybody. Ack, I'm sorry for my late reply again. I think I've only been gone for a few days but when I check the dates it's more like 2 weeks... I dunno where the time goes to! I don't...

10/30/2020 6:31 PM

Depression
Hi folks

Hi Dorri. Sorry for my late reply :-/ I'm sorry Entyvio isn't working better. I've at least managed to stay out of the hospital, but I'm stuck with diarrhoea and urgency for life and it doesn't seem...

10/30/2020 5:52 PM

Crohn's Disease
Speaking of oringinal/past members.

malakai - Thank you. How are you doing now?...

10/30/2020 5:29 PM

Crohn's Disease
Hello folks

Where does the time go?? >.> Been, for me, quite a busy week. I travelled to south London last Friday to see my friend for the first time in about a year. Had a really lovely day. We took a walk in...

10/16/2020 8:00 PM

Depression
Anyone on Stelara who's had Botox for migraine?

Sorry I have no idea. This board is pretty dead nowadays, so I don't think you will get an answer. My advice is to talk to your GI and perhaps ask on a migraine forum as well. If you google botox and...

10/16/2020 6:55 PM

Crohn's Disease
Suspected COVID 19

I had to have a Covid-19 test for my recent colonoscopy (but not my MRI scan, which I found weird). That was negative, thank god, as the last thing I wanted to do was isolate for 14 days. I don't...

10/16/2020 6:50 PM

Crohn's Disease
Why would inflammatory markers be always high?

Yes, ESR and CRP are general markers of inflammation. The calprotectin test will tell you whether there is intestinal inflammation or not, but a high result only two weeks ago doesn't sound like a...

10/16/2020 6:36 PM

Crohn's Disease
Hello folks

Hi everyone :p Negative for Covid-19 so I went ahead with the colonoscopy (sigmoidoscopy really, as I've lost 90% of my colon). There was inflammation but it doesn't seem to be as bad as last time,...

10/6/2020 7:04 PM

Depression
Hi folks

Hi Minnie and Tom. The Covid-19 swab came back negative, so I was able to have the colonoscopy (sigmoidoscopy really, as 90% of my colon has gone). They found 'mild' inflammation in the rectal stump...

10/6/2020 6:01 PM

Crohn's Disease
Hello folks

I have just posted an update on the Crohn's board, so if you would like to hear all about my thrilling medical problems, check it out :skull: In seriousness, I am sorry for being away for so long. It...

10/4/2020 7:55 PM

Depression
Speaking of oringinal/past members.

Hey Nanners. Don't know if you remember me, but it's good to see you. I am sorry to hear about your health problems though. (I'm struggling too, with various issues.) I wish this could become a...

10/4/2020 7:15 PM

Crohn's Disease
Hi folks

Remember me? Of course you do... ¬_¬ Crohn's-wise, I'm still rumbling along the same old way, as I have been for the last few years - neither really ill, but neither really well either. Stelara...

10/4/2020 7:11 PM

Crohn's Disease
NiceCupOfTea

Hi folks. I had a mini breakdown for a few days :-/ I, completely and utterly, and with not a modicum of restraint to be seen anywhere, lost the plot on Twitter. I'd been on edge for a long time...

6/10/2020 6:38 AM

Depression
Cognitive impairments

For Crohn's but I suspect it could be extrapolated to UC as well. It's official: Crohn's disease makes you stupid ...

6/10/2020 6:18 AM

Ulcerative Colitis
Iron Infusions vs Daily Iron Tablets

One thing I forgot to mention was an oral iron spray. It doesn't have a nice aftertaste, but it has no GI side-effects because it bypasses your GI tract and goes straight into the bloodstream. I've...

6/10/2020 6:08 AM

Crohn's Disease
Iron Infusions vs Daily Iron Tablets

Stick with the iron infusions. Oral iron is poorly absorbed by IBD patients and not nearly as effective as iron infusions. Not even sure why the GI would suggest it for your son with his history, to...

6/8/2020 6:00 PM

Crohn's Disease
Calprotectin Result

I'd set more store by the CRP result than the calprotectin one. After a certain number (1000 or so), the number is off the scale and stops having any meaning. Most of my calprotectin results have...

6/5/2020 1:45 PM

Ulcerative Colitis
NiceCupOfTea

Hi Karen and Trina. Well, I managed to have another meltdown yesterday <_<. In the car. Driving to hospital for a blood test. I really didn't want to go, but if I'm to get my next dose of Stelara...

6/5/2020 1:37 PM

Depression
NiceCupOfTea

Hi Trina. I had an absolutely massive meltdown at my parents' house today! The straw which broke the camel's back, as they say, was a nightmare drive in which every road out of my town seemed to be...

6/3/2020 6:02 PM

Depression
NiceCupOfTea

Hi folks. Sorry I disappeared again. For some reason, the longer I'm gone the harder it becomes to return: I'm not sure why :-/ Well, one reason why is probably because my mental health - never very...

6/2/2020 8:47 PM

Depression
NiceCupOfTea

Afternoon, folks. Yesterday was a bad one and today hasn't got off to a cracking start so far either :-/ The times are incredibly frightening but I seem to be more scared of my own country than the...

5/18/2020 7:34 AM

Depression
NiceCupOfTea

Hi Karen. I'm just popping in before going to my parents. I woke up late, so I'm running late. Story of my life >_>. Bye for now. Speak to you later :p...

5/16/2020 6:53 AM

Depression
officially diagnosed...no surprises there, but I'm struggling with this.

I have never received an official diagnosis of depression, so I never had that shock: depression, anxiety, etc. just all got added to my medical records over the years. For example, I go to a...

5/15/2020 5:55 PM

Depression
A Resident At A Nursing Home Helped Me, Little Did She Know

You did a good thing. That old lady probably had nobody else to talk to about her problems and you were willing to listen to her. If it made you more empathetic, that's even better. You would think...

5/15/2020 5:25 PM

Depression
NiceCupOfTea

Yoo-hoo! Still alive :skull: I'm so sorry I haven't been here for a while. I'd like to say that it is because I have been so busy, but that would be an abject lie. I did sign up to be an NHS...

5/15/2020 5:05 PM

Depression
Vitamin D and Covid - article

Vitamin D deficiency is not why the UK is one of the worst affected countries in the world, trust me....

5/15/2020 3:55 PM

Ulcerative Colitis
No meds?

I'm taking medication now, but when I had an ileostomy I wasn't on any medication. In fact it was the only time I had any respite from this wretched disease. It came back upon reversal of the stoma...

5/15/2020 3:26 PM

Crohn's Disease
biologics and iron infusions for me

I second asking about Ferinject. After having an anaphylactic reaction to an older iron formulation, I tried Ferinject a few years later with zero issues and have had it several times since then. You...

5/15/2020 3:13 PM

Crohn's Disease
Iron Infusion

I hope it helps!...

4/4/2020 5:10 PM

Ulcerative Colitis
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