Yes, they are talking about hydroxychloroquine right now on Fox Business Network. Early indications VERY positive. They used this extensively in South Korea....
I have Entyvio infusion today, not worried at all....
John is right. And I would be far more concerned about being on systemic steroids in the face of Covid-19 then I would be about biologics. Also, I follow some Twitter feeds of well regarded IBD...
Not sure why John keeps posting that Entyvio has a black box warning as I've corrected him in previous threads. It does NOT have a boxed warning....
https://www.sciencealert.com/latest-coronavirus-study-suggests-it-can-also-be-spread-through-poop...
Correct, which is why scientists were surprised to find the virus in fecal matter in high quantities, very unique for a respiratory virus....
Yes IamCurious...thanks for posting. We know how easy C. Diff spreads fecally...we must be very vigilant with hand washing in the coming months as many of us are immune suppressed...so trying to...
No side effect difference at all versus placebo. Of course these studies are usually a year in length so don't explore super long term side effects. That said, long term follow up studies thus far...
Yes, the fecal transmission path has been well established at this point. Obviously it spreads through respiratory droplets as well but hopefully that means transmission rates slow in more developed...
The clinical studies showed no difference in side effects vs placebo. My personal experience with this drug is similar in that I have experienced absolutely no side effects after more than 6 months...
The research I did a while back showed it safe for long term use....
I developed severe Tinnitus in one ear a year ago overnight. It was about a month after moving to 4x Lialda per day. Could be coincidence though, I just live with it. Went to ENT but he was...
As stated in my post right before yours, remicade can work very quickly and is used as rescue therapy in steroid refractory patients. I would also look into Tacrolimus as it is HIGHLY effective for...
Remicade can work very quickly in some cases and it is used as rescue therapy. Ask about tacrolimus as a bridge to remicade. I know some docs use that with Entyvio to deal with the slow response...
:)...
Someone skipped exponential functions in math class...
Wow, hope you find something new that works for you....
Got insurance approval for 4 week Entyvio dosing last week. Next infusion scheduled for tomorrow which will be 5.5 weeks from last one. I notice that I really start to go downhill in week 7 and it...
My doc had me do six weeks of daily mesalamine enemas (alongside oral Lialda) to see if we could get to endoscopic remission without escalating to biologics. When it failed, I tried six weeks of...
I had some leftover Lialda so I first moved to 2 Lialda per day and 2 generic per day. So far, no negative impact from that move and I'm 10+ days in....
Moved my doctor appointment up and saw her yesterday. She wants to move me to every 4 week entyvio injections from 8. Waiting to see if insurance will approve. I have very minor symptoms (though I am...
Qing Dai worked very effectively for me for about a week before I became allergic to it and got really I'll every time I took it....
Yes, had to switch to generic....
Ok, I will add rectals. I would say my symptoms are only slightly worse than they were a few months ago. I am having a bit more abdominal cramping (mild) and now have 2 bowel movements per day rather...
I am still on 4 Lialda per day. They ran Entyvio blood levels last time and it showed 16 and doc said that was decent. I have another doctor appointment in 4 weeks. You think it is safe to wait or...
I have been on Entyvio for 8 months now. The last FCP I took in December showed below 25 but every two months the doc checks my CRP and it keeps climbing. Now it is above 5. I would say I have mild...
I had very bad cold/flu with fever for 6 days. Fever has been gone for 2 weeks now but sore throat has lingered for total of 3.5 weeks now. Went to doc and tested for strep and mono, all negative....
Thanks for posting this....
I took pure Qing Dai for a few weeks. Worked phenomenally well almost instantaneously. But after a week or so of taking it, I started getting flu like symptoms every time I took it. Needless to say,...
To give you a sense based on my insurance claim rates. Lialda brand name was $1100 for 30 day supply Shire generic was $800 for 30 day supply I believe Zydus and the other non shire generic lialda's...
There is a Shire generic, and it is produced under the Shire name. But it is VERY hard for me to get. I couldn't get it through my mail order pharmacy, and my local pharmacy has to special order it...
Surgical outcomes are much much better when you are relatively stable versus in some fulminant flare. Keep that in mind if you are using surgery as a last resort when you are in desperate shape....
I disagree that CRP only rises with massive tissue death. My CRP is usually sub 2.0, but even in a very mild flare it will move to 10+. CRP reliability varies from person to person, generally...
No need to delay, I was traveling quite frequently when I started my entyvio with no problem. If you are going to have some sort of allergic reaction, you'll likely experience that reaction quickly...
My fecal cal protectin went from 200 to 30 by week 8 after starting Entyvio...
Wishing that Humira brings you a blissful remission....
Good luck sara, I like your plan....
Yes, I would elevate. I too struggled with years of mild symptoms and my new IBD GI doc wanted me to start Entyvio and I don't regret it....
Still lots of biologic options for you as I assume remicade is your first. Don't give up on remi yet though, may need dose or timing adjustments....
Let us know if the infusion helps!...
My doctor, an IBD specialist, believes after Entyvio, this is the next most compelling option for UC so great to see it get approved....
My CRP and FCP have normalized having been on Entyvio for a few months now. Over the past 6 weeks or so, my stools have become somewhat greasy and lighter in color then they have been for the rest of...
Just make sure you supplement with vitamin k if you are on high dose d....
tacrolimus suppository (you allergic to those too?)...
Flying remote control airplanes, fish tanks....
3 months on Entyvio here, weigh the same as before starting....
Entyvio does not have a black box warning...
I am on Entyvio for 3 months now. Seems to be a very low side effect drug from what I have read. I would definitely start there and go to xeljanz later if needed....
Is this relevant: https://www.ncbi.nlm.nih.gov/pubmed/25250885 Chlorella prevented mitochondria disruption and maintained cellular ATP levels after H2O2 toxicity. It also normalized intracellular...
Thoughts on Pravda's latest article? http://www.discoverymedicine.com/Jay-Pravda/2019/05/can-ulcerative-colitis-be-cured/...