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greenuc

HealingWell Forum
>
Member Profile
Display Name
greenuc
Profile Created
9/19/2011 8:28 AM
Last Seen
3/16/2021 9:38 AM
Total Posts
266

Last 50 Posts

Adding Meds - Immunomodulators

No, multiple docs have stated definitely UC....

8/13/2020 8:22 PM

Ulcerative Colitis
Adding Meds - Immunomodulators

Diet helps from a symptom perspective, but doesn't seem to reduce CRP or eliminate inflamation seen during a scope, nor does it completely eliminate symptoms. I am doing SCD right now. My doc is...

8/13/2020 6:43 AM

Ulcerative Colitis
Adding Meds - Immunomodulators

Quick recap of where I am. My symptoms are close to normal, not perfect but close. My CRP sits around 5.5 and then my doc prescribes Uceris for 30 days and takes my CRP back to 1.5...two months after...

8/11/2020 8:01 AM

Ulcerative Colitis
Moving on from Entyvio

I would go stelara if insurance allows....

4/17/2020 5:31 AM

Ulcerative Colitis
Possible cure for the coronavirus

Yes, they are talking about hydroxychloroquine right now on Fox Business Network. Early indications VERY positive. They used this extensively in South Korea....

3/19/2020 7:11 AM

Ulcerative Colitis
Entyvio infusion in 2 weeks and COVID-19

I have Entyvio infusion today, not worried at all....

3/19/2020 5:14 AM

Ulcerative Colitis
COVID 19

John is right. And I would be far more concerned about being on systemic steroids in the face of Covid-19 then I would be about biologics. Also, I follow some Twitter feeds of well regarded IBD...

3/9/2020 9:09 PM

Ulcerative Colitis
question about entyvio side effects

Not sure why John keeps posting that Entyvio has a black box warning as I've corrected him in previous threads. It does NOT have a boxed warning....

3/9/2020 10:31 AM

Ulcerative Colitis
The coronavirus can spread thru fecal matter

https://www.sciencealert.com/latest-coronavirus-study-suggests-it-can-also-be-spread-through-poop...

3/4/2020 9:40 PM

Ulcerative Colitis
The coronavirus can spread thru fecal matter

Correct, which is why scientists were surprised to find the virus in fecal matter in high quantities, very unique for a respiratory virus....

3/4/2020 9:29 PM

Ulcerative Colitis
The coronavirus can spread thru fecal matter

Yes IamCurious...thanks for posting. We know how easy C. Diff spreads fecally...we must be very vigilant with hand washing in the coming months as many of us are immune suppressed...so trying to...

3/4/2020 9:04 PM

Ulcerative Colitis
question about entyvio side effects

No side effect difference at all versus placebo. Of course these studies are usually a year in length so don't explore super long term side effects. That said, long term follow up studies thus far...

3/4/2020 8:59 PM

Ulcerative Colitis
The coronavirus can spread thru fecal matter

Yes, the fecal transmission path has been well established at this point. Obviously it spreads through respiratory droplets as well but hopefully that means transmission rates slow in more developed...

3/4/2020 7:34 PM

Ulcerative Colitis
question about entyvio side effects

The clinical studies showed no difference in side effects vs placebo. My personal experience with this drug is similar in that I have experienced absolutely no side effects after more than 6 months...

3/3/2020 3:45 PM

Ulcerative Colitis
Long-term Uceris/budesonide?

The research I did a while back showed it safe for long term use....

3/3/2020 10:44 AM

Ulcerative Colitis
UC and Tinnitus

I developed severe Tinnitus in one ear a year ago overnight. It was about a month after moving to 4x Lialda per day. Could be coincidence though, I just live with it. Went to ENT but he was...

2/28/2020 7:46 AM

Ulcerative Colitis
Remicade bridge to J-pouch

As stated in my post right before yours, remicade can work very quickly and is used as rescue therapy in steroid refractory patients. I would also look into Tacrolimus as it is HIGHLY effective for...

2/26/2020 3:03 PM

Ulcerative Colitis
Remicade bridge to J-pouch

Remicade can work very quickly in some cases and it is used as rescue therapy. Ask about tacrolimus as a bridge to remicade. I know some docs use that with Entyvio to deal with the slow response...

2/26/2020 3:00 PM

Ulcerative Colitis
Coronavirus (Covid-19) and Immunosuppressive medication (Imuran)

:)...

2/25/2020 9:09 PM

Ulcerative Colitis
Coronavirus (Covid-19) and Immunosuppressive medication (Imuran)

Someone skipped exponential functions in math class...

2/25/2020 8:00 PM

Ulcerative Colitis
Allergic Reaction - Remicade

Wow, hope you find something new that works for you....

2/19/2020 8:32 AM

Ulcerative Colitis
Update Entyvio

Got insurance approval for 4 week Entyvio dosing last week. Next infusion scheduled for tomorrow which will be 5.5 weeks from last one. I notice that I really start to go downhill in week 7 and it...

2/18/2020 2:02 PM

Ulcerative Colitis
Advice about next medication to switch

My doc had me do six weeks of daily mesalamine enemas (alongside oral Lialda) to see if we could get to endoscopic remission without escalating to biologics. When it failed, I tried six weeks of...

2/17/2020 12:20 PM

Ulcerative Colitis
Lialda shortage

I had some leftover Lialda so I first moved to 2 Lialda per day and 2 generic per day. So far, no negative impact from that move and I'm 10+ days in....

2/5/2020 6:11 PM

Ulcerative Colitis
Update Entyvio

Moved my doctor appointment up and saw her yesterday. She wants to move me to every 4 week entyvio injections from 8. Waiting to see if insurance will approve. I have very minor symptoms (though I am...

2/5/2020 6:09 PM

Ulcerative Colitis
Qing Dai Anyone?

Qing Dai worked very effectively for me for about a week before I became allergic to it and got really I'll every time I took it....

2/5/2020 2:04 PM

Ulcerative Colitis
Lialda shortage

Yes, had to switch to generic....

2/5/2020 4:18 AM

Ulcerative Colitis
Update Entyvio

Ok, I will add rectals. I would say my symptoms are only slightly worse than they were a few months ago. I am having a bit more abdominal cramping (mild) and now have 2 bowel movements per day rather...

1/29/2020 11:01 AM

Ulcerative Colitis
Update Entyvio

I am still on 4 Lialda per day. They ran Entyvio blood levels last time and it showed 16 and doc said that was decent. I have another doctor appointment in 4 weeks. You think it is safe to wait or...

1/29/2020 10:18 AM

Ulcerative Colitis
Update Entyvio

I have been on Entyvio for 8 months now. The last FCP I took in December showed below 25 but every two months the doc checks my CRP and it keeps climbing. Now it is above 5. I would say I have mild...

1/29/2020 8:34 AM

Ulcerative Colitis
Sore throat and infusion.

I had very bad cold/flu with fever for 6 days. Fever has been gone for 2 weeks now but sore throat has lingered for total of 3.5 weeks now. Went to doc and tested for strep and mono, all negative....

1/6/2020 8:13 AM

Ulcerative Colitis
FDA Approves Xeljanz XR 11mg and 22mg tabs

Thanks for posting this....

12/18/2019 8:02 AM

Ulcerative Colitis
Isatis Cooling - Qing Dai - Chinese herbs to induce remission

I took pure Qing Dai for a few weeks. Worked phenomenally well almost instantaneously. But after a week or so of taking it, I started getting flu like symptoms every time I took it. Needless to say,...

12/17/2019 8:35 AM

Ulcerative Colitis
Does Shire make a generic lialda?

To give you a sense based on my insurance claim rates. Lialda brand name was $1100 for 30 day supply Shire generic was $800 for 30 day supply I believe Zydus and the other non shire generic lialda's...

12/16/2019 12:53 PM

Ulcerative Colitis
Does Shire make a generic lialda?

There is a Shire generic, and it is produced under the Shire name. But it is VERY hard for me to get. I couldn't get it through my mail order pharmacy, and my local pharmacy has to special order it...

12/16/2019 12:43 PM

Ulcerative Colitis
Helminth Therapy

Surgical outcomes are much much better when you are relatively stable versus in some fulminant flare. Keep that in mind if you are using surgery as a last resort when you are in desperate shape....

12/13/2019 7:04 AM

Ulcerative Colitis
CRP and calprotectin

I disagree that CRP only rises with massive tissue death. My CRP is usually sub 2.0, but even in a very mild flare it will move to 10+. CRP reliability varies from person to person, generally...

12/11/2019 10:08 AM

Ulcerative Colitis
Should I start Entyvio now?

No need to delay, I was traveling quite frequently when I started my entyvio with no problem. If you are going to have some sort of allergic reaction, you'll likely experience that reaction quickly...

12/5/2019 7:59 PM

Ulcerative Colitis
Entyvio - how long to see improvement?

My fecal cal protectin went from 200 to 30 by week 8 after starting Entyvio...

12/3/2019 7:34 AM

Ulcerative Colitis
Remicade levels low and antibodies present

Wishing that Humira brings you a blissful remission....

11/16/2019 7:52 PM

Ulcerative Colitis
Remicade levels low and antibodies present

Good luck sara, I like your plan....

11/12/2019 10:16 AM

Ulcerative Colitis
Biologics for mild/moderate uc

Yes, I would elevate. I too struggled with years of mild symptoms and my new IBD GI doc wanted me to start Entyvio and I don't regret it....

11/4/2019 8:07 PM

Ulcerative Colitis
Symptoms are back -- Is this normal before infusion?

Still lots of biologic options for you as I assume remicade is your first. Don't give up on remi yet though, may need dose or timing adjustments....

11/4/2019 12:01 PM

Ulcerative Colitis
Symptoms are back -- Is this normal before infusion?

Let us know if the infusion helps!...

10/31/2019 1:09 PM

Ulcerative Colitis
Stelara now FDA approved for UC

My doctor, an IBD specialist, believes after Entyvio, this is the next most compelling option for UC so great to see it get approved....

10/30/2019 9:16 AM

Ulcerative Colitis
Stools

My CRP and FCP have normalized having been on Entyvio for a few months now. Over the past 6 weeks or so, my stools have become somewhat greasy and lighter in color then they have been for the rest of...

10/29/2019 1:05 PM

Ulcerative Colitis
Vitamin D and Colitis

Just make sure you supplement with vitamin k if you are on high dose d....

10/27/2019 6:34 PM

Ulcerative Colitis
Night time relief

tacrolimus suppository (you allergic to those too?)...

10/24/2019 5:46 PM

Ulcerative Colitis
What are your hobbies?

Flying remote control airplanes, fish tanks....

10/14/2019 7:16 AM

Ulcerative Colitis
Weight gain and Entyvio?

3 months on Entyvio here, weigh the same as before starting....

9/19/2019 7:15 AM

Ulcerative Colitis
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