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UCinGV

HealingWell Forum
>
Member Profile
Display Name
UCinGV
Profile Created
3/20/2007 12:49 PM
Last Seen
Today 6:05 AM
Total Posts
503

Last 50 Posts

Questions for people who got covid vaccine.

My first does of the Pfizer vaccine gave me no side effects whatsoever. I got my second dose of Pfizer vaccine Friday morning. 14 hours later I woke up in a shivering fever feeling very sick. The...

4/5/2021 6:03 AM

Ulcerative Colitis
Questions for people who got covid vaccine.

I've been on azathioprine for 10+ years, I got my Pfizer vaccine last Friday, and I have experienced no side effects whatsoever. Well, maybe I was tired yesterday because of it. Or maybe it was...

3/16/2021 7:13 AM

Ulcerative Colitis
Vaccines

Has anyone gotten a covid vaccine while on long-term Imuran? How were things following the shots? I have a Pfizer shot scheduled for Friday. . ....

3/10/2021 7:51 AM

Ulcerative Colitis
CBD Oil Actually Working?!

Even if you have third-party lab reports listing the batch number of a company's product, you have to trust the company that they don't just print that batch number on all their batches. I am not...

3/10/2021 7:50 AM

Ulcerative Colitis
Lialda prices

What country do you live in that you were getting Lialda for $60 for 360 pills? This must have been with insurance right? $800 for 360 is much more in line with the best price you can get for generic...

12/21/2020 3:40 PM

Ulcerative Colitis
Vomiting from Imuran

Another thing - you should be able to split the dose in two and take them 12 hours apart which should help with the nausea, if you aren't doing that already. But check with your doctor on that....

11/25/2020 8:49 AM

Ulcerative Colitis
Vomiting from Imuran

It's been 10+ years but I also had nausea and vomiting when I started taking azathioprine. It went away completely after a couple months, maybe a year. I think it helped me to take it after dinner...

11/24/2020 9:05 AM

Ulcerative Colitis
OT Covid vaccine

I'll take it if Dr Fauci says it's safe....

11/19/2020 7:59 AM

Ulcerative Colitis
Phthalates In Asacol

I thought Asacol was pulled off the market (ostensibly due to the phthalates) and the manufacturer made a new drug, Delzicol, virtually identical without the phthalates, which in a happy coincidence...

10/23/2020 10:59 AM

Ulcerative Colitis
Have you gotten the Shingles Vaccine?

I got shingles at the age of 30, very likely for the reason that I was on azathioprine for my UC. I can't exactly remember but I may have gotten the shingles vaccine afterwards with no bad effects....

10/23/2020 6:13 AM

Ulcerative Colitis
I need help from imuran takers

I've been on 100mg/day (I'm 180 pounds) for the last 10+ years and for the last 5 or so years I get one bad infection per year that I can't seem to shake off without a doctor's care (antibiotics or...

7/27/2020 6:57 AM

Ulcerative Colitis
What was your first symptom

I'm surprised I'm the first one to say this but the first sign I had was intense gas. i was able to fart for, no joke, ~30 seconds long. Then diarrhea. Then blood and bad abdominal pain....

6/25/2020 7:18 AM

Ulcerative Colitis
Affordable Care Act

I haven't been personally in this situation but if your job hours are cut and they no longer offer you insurance, this is considered a life event allowing you to get a policy off the healthcare...

6/17/2020 6:09 AM

Ulcerative Colitis
Azathioprine dosage

I think I started on 50mg, then 75, then finally 100mg/day for the last ~10 years, which has kept me out of a flare for 5+ years. I weigh around 180 pounds. People on here tell me that's still a...

6/9/2020 6:10 AM

Ulcerative Colitis
Treating a Severe Flare up with Diet

I have personally tried every single dietary and suggested supplement to treat my flares and none of them had any noticeable effect compared to real, drugstore-issued medicine....

6/8/2020 7:02 AM

Ulcerative Colitis
Lialda (mesalamine tablets) back order

My sketchy online overseas pharmacy has stated it may take 8+ weeks to fill orders. And they've implemented a $10 surcharge for covid-related problems. On the bright side they just lowered the price...

5/22/2020 7:30 AM

Ulcerative Colitis
Long term use of azathioprine

I've been on 100mg of aza per day for the last ~12 years. It's been fantastic for holding my colitis flares back. I haven't had a flare at all in 5+ years. However I get about one bad infection per...

5/18/2020 10:24 AM

Ulcerative Colitis
Toilet Paper!

A friend of a friend of mine works in a toilet paper and diaper factory. He said that everyone on the diaper side has been pulled over to make more toilet paper and they're all working overtime....

3/13/2020 1:30 PM

Ulcerative Colitis
Coronavirus (Covid-19) and Immunosuppressive medication (Imuran)

If you're on Imuran you should consider yourself an especially high risk of infections of all kinds. I heard on the radio that the common flu kills 1 in 1000 people while the recent coronavirus kills...

3/2/2020 7:25 AM

Ulcerative Colitis
For those who have tried generic Lialda

I've called around to local pharmacies and you can find out which manufacturer of "generic Lialda" they sell....

2/14/2020 12:23 PM

Ulcerative Colitis
Imuran and common cold

I've gotten all sorts of weird infections in my 10+ years on azathioprine. I get at least one weird infection per year. Colds that take forever to go away, yes, but also stuff like shingles, staph...

2/13/2020 10:44 AM

Ulcerative Colitis
Lialda shortage

I know different "generic Lialda" from different manufacturers has different coatings. Some of them are clearly dissolubule in saliva (Zydus's version) and others are not(Sun Pharma, Actavis). I...

2/11/2020 12:27 PM

Ulcerative Colitis
Lialda shortage

Get the generic. I've tried many generics and in my limited experience each one of them is actually more effective than the brand....

2/5/2020 7:42 AM

Ulcerative Colitis
The Lialda News Thread

There's been a drastic decrease in the price of generic Lialda on goodrx recently. It used to be ~$450 for 180 pills ($2.50 per pill) for the longest time. Now the local supermarket has it for $261...

1/27/2020 7:24 AM

Ulcerative Colitis
Colonoscopy shows inflammation but I feel symptom-free. Should I go on Humira?

" However, Humira has a copay assistance program, so you'd only be paying $5 per injection (typically done every two weeks)." My sister told me this as well. Just out of curiosity how does this work...

1/13/2020 7:10 AM

Ulcerative Colitis
Colonoscopy shows inflammation but I feel symptom-free. Should I go on Humira?

So I looked it up and Doctor B got $81 in 2018 in spending promoting Humira. LOL. Hopefully he's not being swayed by $81/year :-P....

1/12/2020 12:42 PM

Ulcerative Colitis
Colonoscopy shows inflammation but I feel symptom-free. Should I go on Humira?

My regular GI, we'll call him A, has been treating me for my UC for the last ~15 years. I've been in what feels like remission for the last 5+ years. And by that I mean I have no visible blood in my...

1/12/2020 8:30 AM

Ulcerative Colitis
Is there any better probiotic than VSL3?

VSL#3 was at a time the only probiotic that had a clinical study backing the idea that it helped improve ulcerative colitis symptoms. Then the guy who owned the patent quit the company and sued...

12/30/2019 8:47 AM

Ulcerative Colitis
The Lialda News Thread

** NEWS FLASH ** Sun Pharmaceuticals' generic version of LIalda has changed back from Marketing Status "DISCONTINUED" and is once again listed as a full fledged therapeutic equivalent of Lialda. So...

12/19/2019 8:22 PM

Ulcerative Colitis
The Lialda News Thread

I've been monitoring the price of generic Lialda on GoodRx, and I noticed in the past that they had Costco listed and had a coupon available at Costco, though this was not the cheapest. Today I...

12/18/2019 7:30 AM

Ulcerative Colitis
Any experience using medicinal marijuana for UC?

I know someone with UC who has tried this, and she told me it had a positive effect, but to get the positive effect she had to be way too uncomfortably intoxicated all of the time to get the positive...

12/17/2019 1:09 PM

Ulcerative Colitis
Generic Apriso available USA

It used to be (and for some people still is) that your insurance company charges you (for example) a $160 copay for three months of brand medication, and $40 copay for three months of generic...

12/13/2019 8:54 AM

Ulcerative Colitis
Generic Apriso available USA

According to this FDA link, there is one therapeutic equivalent made for Apriso, it is made by Mylan Pharmaceuticals and was FDA-approved November 20th, 2019: For whatever reason these links don't...

12/12/2019 1:46 PM

Ulcerative Colitis
Your drug coverage will change- BCBS

I was on Asacol HD up until my insurance company sent me a similar letter saying they wouldn't cover it (which is understandable as Asacol's manufacturer is engaged in some MAJORLY shady business...

11/25/2019 7:34 PM

Ulcerative Colitis
OT: Bill Maher voices skepticism on medical profession

You should care about whether the people around you are vaccinated. Particularly because if you're on UC medication, you've likely got a compromised immune system and you could literally die of a...

11/12/2019 7:16 AM

Ulcerative Colitis
OT: Bill Maher voices skepticism on medical profession

An antivaxer is trying to pretend they aren't an antivaxer. Dishonestly implying that vaccines haven't been thoroughly researched and don't continue to be researched is a dangerous lie that will get...

11/11/2019 12:59 PM

Ulcerative Colitis
Vitamin D and Colitis

If one probiotic doesn't help you I would try a few more before discounting them. Recent research has found that everyone falls into a number of distinct categories for gut bacteria. I think it's...

10/31/2019 9:37 AM

Ulcerative Colitis
Article: Climate can explain intestinal trouble

I have long heard that UC is more prevalent at higher latitudes, but I wrote this off as a Vitamin D thing. People get more sun, and therefore more Vitamin D, at lower latitudes. I have heard that...

10/23/2019 8:48 AM

Ulcerative Colitis
Canadian pharmacy's? which ones

I've been buying generic Lialda from "TotalCareMart" which was recommended by my GI, who tells me he uses them frequently himself. He has their cards and flyers in his waiting room. The prices are...

10/23/2019 6:27 AM

Ulcerative Colitis
Canadian pharmacy's? which ones

Question for the mods: Are there any rules against naming websites and pharmacies by name? I've been reluctant to do so but think it could be helpful to a lot of people. Your guys' experience with...

10/22/2019 7:52 AM

Ulcerative Colitis
Canadian pharmacy's? which ones

Interesting link. If you look up Lialda on that website it says the generic ships directly from India. I assume this means it doesn't go through a Canadian pharmacy subject to Canadian government...

10/21/2019 6:14 AM

Ulcerative Colitis
Canadian pharmacy's? which ones

You can read my thread about this here. https://www.healingwell.com/community/default.aspx?f=38&m=4108816 In summary it's a very sketchy business to get into but the savings are enormous. It appears...

10/18/2019 12:39 PM

Ulcerative Colitis
How to bulk things up?

I'll add "no urgency" to this list, but I agree: If you've got UC and you've got one BM a day without pain, blood, inflammation, or urgency, count your blessings and don't rock the boat too much!...

10/8/2019 6:59 AM

Ulcerative Colitis
Ulcerative Colitis for 15 years

I just went to my GI last week and was also told that since it's been 15 years since my diagnosis he's increasing the frequency of my colonoscopies. Hello fellow 2004 diagnosee! My mother has had UC...

10/7/2019 6:14 AM

Ulcerative Colitis
Trusted online Pharmacies

Just so you know, GoodRx.com has free coupons (usable at most US pharmacies) for azathioprine pills that make the cost around $.32 per pill. From what I've checked this is actually cheaper than the...

10/2/2019 11:32 AM

Ulcerative Colitis
Trusted online Pharmacies

Where do you find specifically Canadian pharmacies that ship to the US? Are you sure these aren't Canadian companies with a Canadian address that refer your prescription to be filled by pharmacies...

10/2/2019 6:13 AM

Ulcerative Colitis
Vitamin D and Colitis

I take a daily Vitamin D supplement, and I've been doing well lately, though it never struck me as making a strong difference. There have been studies showing that ulcerative colitis is more...

9/30/2019 2:34 PM

Ulcerative Colitis
Trusted online Pharmacies

A few weeks ago I posted a thread about my experiences and thoughts buying from "Canadian pharmacy" websites https://www.healingwell.com/community/default.aspx?f=38&m=4108816 (which in almost all...

9/30/2019 7:41 AM

Ulcerative Colitis
The Lialda News Thread

The FDA website used to say that Lialda (ANDA 022000, made by Shire) had four approved generic equivalents: from Actavis (ANDA 203817), Mylan (203574), Zydus (091640), and Sun (211858). Well, the one...

9/24/2019 12:00 PM

Ulcerative Colitis
I haven't had a flare in five years and I think I know why.

Five years ago I changed jobs. New job has a much more positive, less stressful work environment. New job gives me a huge feeling of accomplishment and satisfaction for doing valuable stuff. New job...

9/20/2019 12:52 PM

Ulcerative Colitis
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