š¤fingers crossed for you! Good luck!...
Just making a guess here but my initial reaction would be itās related to the vaccine. But you should def check in with your GP or your GI especially if it doesnāt go away soon....
I canāt recall anyone posting on HW that biologics made them worse. They may not have worked for them but they did not make them worse. Plus I donāt think thereās much that could make Dee worse off...
Great post and info Leaf! I agree wholeheartedly with your philosophy I think thereās something behind our food cravings (talking about cravings for ārealā foods here ā I TRY to ignore my body when...
Is this something a compounding pharmacy could make/get for you? (I have no idea, just asking). Are you in US? What about a mail order Canadian pharmacy?...
Havenāt heard of only a 30 day course of suppositories for UC. š³ Call your dr and ask for appt ASAP. And also start shopping around for a 2nd opinion or better GI, one that is well versed in...
Hoping entyvio works for you! It was my ticket to remission!...
I think globetrotter gave a concise answer to dees problem and both you and she would do well to really sit down and think about it. Iāll reiterate that no one would or should think they could cure...
Stress definitely plays a huge role. I hope the insurance okays your meds soon. Irritates the heck outta me that insurance companies think they have the right to decide which medications we can take...
I like to make a smoothie with yogurt (there are a few yogurts made with almond milk or oat milk) or kefir, blueberries or banana or any other fruit you tolerate , then add your choice of resistant...
Ask her if she had type 1 diabetes if she would refuse insulin? As CC said above, ānaturalā medications are not regulated in any way whatsoever. Nor have they been studied or tested so who knows what...
I was only on methotrexate for a short while but I believe the recommendation is to take folic acid with it....
I used to suffer from very painful canker sores inside my mouth. Usually if I bit my lip or inside of my cheek a canker sore would develop that would get bigger and bigger until it gave me headaches...
I remember Dees posts. I am really sorry that she hasnāt been able to find a natural remedy to induce remissionā but also not surprised. I strongly encourage you to encourage her to give medication a...
āāāā- I believe it was a joke VJ. Seriously modern medicine is not a miracle worker. Yes we all wish they would find a cure and an answer to all things medical but our bodies are incredibly complex....
Iām one of those who doesnāt tolerate flagyl well. It makes me extremely nauseous and sickly to where I canāt eat. I refuse to take it orally any more. Unfortunately I am prone to diverticulitis...
Havenāt had surgery yet but may also be facing it in the future ā not due to my UC at the moment but because of repeated diverticulitis episodes. We have a friend who had a colectomey 20+ years ago...
Hear hear on the corporate pharmacy mindset; and insurance staff deciding which medications theyāll allow our doctors to give us. Very frustrating! One positive in CA is the vaccine inoculation sites...
My migraines have been with me years before UC although they did seem to get worse. Iāve taken imitrex (sumatriptan) for years with no problems except it does sometimes give me diarrhea when it first...
My son just got his first injection under the medical high risk category and they did not ask him any questions about his condition or ask him to sign a statement....
As far as entyvio infusions interfering with a busy lifestyle ā I havenāt had any issues with scheduling infusions at all in the last 4 years. Entyvio is not a weight-based medication and the actual...
FYI - Medicare does not require you try a ācheaperā biologic first like some of the private insurance companies do. Entyvio was my first biologic. Any medications administered at home, either pill or...
There are lots of diets out there that do help some people. I tried them all and didnāt get much relief. However I do think itās wise to stay away from certain foods while flaring. Spicy foods, raw...
The medication is covered under medical side because it is administered by infusion in a doctor/hospital setting so the cost does not apply to part D prescription. This is the saving grace for us ā...
I keep thinking the answer must lie somewhere along the same lines as h pylori. Look at how many years they said stomach ulcers were caused by stress until they finally discovered the h pylori. We...
Killjoy. No worries on Medicare covering entyvio. I have the plan f supplement too and so have $0 copay which is sweet. Medicare covers the doctor/hospital administered infusion under the part b...
I was the same Rosie. Fought the biologic, cried over it many days. But then once I hit remission I wondered why I fought it because remission is oh-so-sweet and side effects are nil. Of course I...
Been on entyvio for ... 4 years? (My signature has the dates). In remission!!! Entyvio was my first biologic - I got lucky! No side effects or issues. Youāll love the shorter infusion time!...
Iām one of those lucky ones that donāt get a lot of side effects from prednisone. Iāve been on a dosage as high as 60 a day. Of course itās been 4 years since Iāve been on it so memory is a bit dull....
Iām in ca. Iām vaccinated because Iām over 65. I would check with your dr and see if he would give you a letter. From what I understand there is a list of āapprovedā diseases and conditions ā I think...
Same here. Technically I have no symptoms and have been in remission for 3 years. However my path report from October colonoscopy shows āmild colitisā. Discussed with my dr and he said it sometimes...
Iām one whoās found great remission on entyvio. 4 years now. No side effects. No joint pains. Eat pretty much what I want. I wish the same for you!!!!...
I apologize I certainly didnāt want to hijack a thread or contribute to it and that is whatās happening here. Can the moderators remove all the OT posts to a new thread and maybe title it forum...
Just feel the need to point out that it cuts both ways. The OP was initially rude to 3TC when 3TC posted about his surgery because of scarring ā which was an answer to the OPs question about...
Are you in Ohio? My former GI moved there and he is soooo awesome! Iām not sure what town heās in but if youāre interested his name is Charles Oberer and looks like heās with Kettering medical group....
Just a note on flagyl. Itās the antibiotic of choice for colon issues but I do horrible on it and refuse to take it now. It gives me diarrhea and nausea so bad I canāt eat ā not to mention the...
Insulin IMO isnāt as good as psyllium. It gives me gas really bad. But see how you do....
I take Metamucil every night. I use the powder and a heaping teaspoon It doesnāt taste bad and if you drink it as soon as itās mixed it doesnāt thicken up that soon. If you wait even a minute is...
I think it took me about 4 months to have complete symptom relief although a colonoscopy at that time showed microscopic inflammation. A later colonoscopy showed complete remission....
Been on entyvio for 4 years next month. In remission!...
Iāve been in remission on entyvio for 3 years next month. Or is it 4? I think it says in my signature....
Had my 2nd shot of moderna Friday at 11 am. Woke up at 3 am with severe chills. I wonāt lie āyesterday was really rough. Tylenol would take down the fever but once it wore off it would come back....
As far as entyvio and remission ā I eat anything I want. I do note that sometimes too much sugar will affect me but itās not every time. I havenāt eaten beans for years because of diverticulitisā...
Also consider youāre early on with your infusions after only 3. With entyvio I struggled a bit in the 8 week timeline between the loading doses and the first 8 week interval. Rectals during those...
Been on entyvio 4 years next month. No side effects. No symptoms. Yes I was very VERY hesitant to go on it. Worried and depressed. Put it off as long as I could. After I got to remission I wondered...
Not on humira but entyvio. Had moderna 1st shot and 24 hrs later ran a mild fever (less that 101) and chills. Took two tylenol and that knocked it out. Getting shot #2 on Friday....
My opinion is you should definitely look for another GI. I donāt understand why your current one would be happy with the effect your mild flare is having. Sounds like it is interfering with your...
IMO the goal is no inflammation via a colonoscopy. You can have an absence of symptoms and yet still have inflammation. And inflammation long term can lead to cancer sooner than drugs. (Again my...
I know steroids long term effects are scary but so is an uncontrolled flare. And the short term effects can be pretty substantial. Definitely a double edged sword tho. I was one of those who mostly...
I got the moderna because thatās what was available. I had a very sore arm and then 24 hrs after the shot got chills and slight fever that Tylenol took care of. Going for #2 moderna on Friday. I read...