Oral mesalamine only, it’s weird....
Had colonoscopy done yesterday. They found 25cm of inflammation in my colon. Which is causing all the blood and clots. Doctor insisted on flagy and mesalamine enema. If it progresses start high dose...
Had my GI appointment yesterday. Doctor wants to do Full labs, also another colonoscopy to make sure my UC has not progressed any further. Also, wrote a prescription for Flagyl just in case there’s...
I’m allergic to mesalamine. Pred didn’t help. Maybe try endocort? My doctor and I have discussed that but haven’t tried it yet....
So I stayed off my meds for 6-8 months thinking UC would go away, which it did for a while. Of course it came back, now I’ve done 2 Entyvio infusions but I’m constantly seeing blood in my stool,...
Quick update Entocort and me do not get along. Started it Wednesday morning as so did my flare. Ended up in bed by 7:30pm extremely tired. Worked up in the middle of the night with flu like systems...
Does Entocort keep you up at night or give you that extra energy? I know on pred I feel like a drank 3 cups of coffee. Any weird side effects?...
Good morning, my gastro just prescribed me Entocort for a mild flare, what’s the difference between that and pred? I usually do 40mgs of pred which usually takes care of it and with minimal side...
Definitely stomach cramps, no meds. Just an urge to go probably 1-2 an hour with cramping for a couple of seconds but not actually going. If that makes sense....
Good morning, so I have been without Entyvio since January this year, and now I’m having stomach cramps and that feeling you get when you have to use the bathroom multiple times a day but I’m not...
I was diagnosed in June 2017, started IV infusions after a nice hospital visit to get in under control. My last infusion was in January with Entyvio and I have not had any medication since. I’ve had...
As a dad, I to suffered from fatigue and decided to check my testosterone with my doctor. I too was an avid runner, workout guy full of energy and got UC and it was gone. Come to find out my...
Definitely having issues with fatigue and joint pain while on biologics. Hope to start running again soon. January 6th was my last infusion, so I should be getting better. I hear it takes 3 months or...
I used to run 10 miles a day, got UC 2 years ago and now can barely run a mile. Sorry for the bad news but got off all medications since January and hopefully I can get back into it. I feel biologics...
So out of the Hospital in July 2017, I never flared after we did IV pred and started Remicade. Did rem for a year and then Entyvio. Since 2017 I’ve never had an UC symptoms. Everyone will say because...
Entyvio and Remicade I had weight gain memory problems, hard to focus, and fatigue. Side effects that I tried to get over but unfortunately could not. Appreciate the good luck. I’ve been completely...
Unfortunately I’m allergic to mesalamine, but I do respond to prednisone very well....
Haven’t had Entyvio since January 6, trying to get on Xeljanz but my insurance is not wanting to cover it. My question is has anyone tried not taking meds? I’m not flaring or have any UC symptoms....
Is stelara IV infusion or self injections?...
Evidently my insurance won’t approve Xeljanz so I have to try Humira and stelara first before they approve Xeljanz. Any suggestions or comments with either would be greatly appreciated. Tried...
Switching due to weight gain. Almost gained 30lbs in a year since Entyvio. I was an avid runner and worked out 3-4 times a a week. Still trying to run and work out but continue to gain weight. So we...
I didn’t think so, but just been feeling terrible last 2 weeks. I haven’t started Xeljanz yet, waiting on Insurance approval....
I’ve been on Entyvio for almost a year or so and we are now going to try Xeljanz. It’s been 2 months since my last infusion now I’m having flu like symptoms and body aches, no fever. I’ve had blood...
Good news so far. I’ve heard that it can cause weight loss? Any1 experience that? I would love to loose about 20lbs that I’ve gained on Entyvio....
Switching from Entyvio to Xeljanz. Had some weird side effects from Entyvio-weight gain, forgetfulness, loss of concentration and joint pain. Anyone have any side effects from xeljanz or any...
Same thing happen to me on Entyvio. I’ve gained 20lbs while on Entyvio. I run, workout, eat very little and still gain weight. I’m about to switch because of that reason. 35, male. All doctors say...
I know a lot of UCers don’t gain a lot of weight but I have noticed since I switched to Entyvio I am gaining weight like crazy. 1lb a week. I guess I’m storing up reserves for my next flare but geese...
Hello, I’ve been recently having a lot of hip pain and lower back pain. Never had this happen before. Diagnosed UC in June 2017. Was on remicade now on Entyvio. On remission since first infusion. Can...
Could be either of those. Just started after switching from rem to Entyvio....
No other issues. Chest pain and discomfort. Back pressure...
I’m on my 3rd Entyvio infusion and I’m having severe heartburn after everything I eat. Just wondering if anyone else has this issue?...
Ok. Yea I signed up online. Thanks...
Just wondering if they have a program to help pay for medication like Remicade does? I saw the Entyvio connect online but didn’t see a lot of information if they helped pay for your deductible? I...
Thanks guys. I appreciate the input. Since day 1 of my Remicade infusion in June 17 I haven’t had any flares or problems with UC. But had weird memory issues and being able to focus after starting....
So my GI is switching me from Remicade to Entyvio now. We had planned on Xeljanz but now we are making the move to Entyvio. Any side effects or experiences y’all could share would be helpful?? I had...
Memory loss. Serum sickness. Joint issues and fatigue....
Almost same, my deductible was $2500 and the Remicade program paid for everything. They send you a credit card in the mail with all your information and I give it to the nurse and pays my deductible....
Had a visit with my GI today and we’ve decided to stop Remicade because of side effects. Anyone have any experience with Xeljanz?...
Thanks. I go see my GI specialist Monday and will ask him about this. It’s sound like this exactly what is happening....
Just wondering what experiences you have after your Remicade infusions. I sometime get flu like systems for a day or 2 and get depressed but then it goes away. This time my whole body hurts and feels...
Haven’t been on prednisone for a year....
I’ve been on Remicade since last June and my short term memory and focus has been terrible. I’ve been tested for low b12 and have been to a neurologist for MRI and CT of my brain and everything’s...
I haven’t had any blood work done in a while. I will ask about the b-12....
Only fatigued if I exert excerise, heart rate increases. I used to be a run 20 miles a week now can only run 1 mile maybe and I feel like I’m dying. No body aches. Sleeping Ok....
It’s been 10 months....
No sir. Just fatigue and acid reflux, heart burn daily....
Hello fellow UCers, I’m 34, been diagnosed since last June and have been on Remicade for 10 months now. Although symptom free my memory and cognitive function has been terrible. Forgetting simple...
Fatigue here as well. 33old male. Diagnosed June last year, was running 10-20 miles a week if not more and eating somewhat healthy. Got UC in June, tried everything but Remicade was my last chance...
Drastic suggestion that works. Hmmmm. Eat drink whatever I want and got my life back. Not drastic at all. Don’t have to take any medications every day. If u went threw what I went through, losing...
Skip the mesalamine and got to Remicade infusion or entyvio if you can. I’m new to UC also and I’ve been symptom free since August 17 since I’ve been on Remicade. I tried the Lialda and the other...