I know this is a UC forum, but I was just wondering if anyone knew much about Eosinophils blood test? I have been having a high pulse for a while now so my doctor ordered blood tests plus I wore a...
Welcome to the biologics club! I have been on Humira and currently on Entyvio. I tried Humira first and got no reaction from it nor any side affects. The bad thing about biologics is that it can take...
I would tell you to try a biologic. They have helped a lot of people, including me. There are many options that can hopefully work while fulfilling medicare. I really dont know about what process...
I hope everyone is doing well. Hopefully these vaccines give us some light at the end of the tunnel . My understanding from the beginning was that people with UC would be more at risk, especially for...
Hi, Sorry to hear you are flaring. I would agree with everyone else to check out patience assistance programs. I dont know the circumstances if you are on medicare. I would hope they would still have...
@quincy - Yes, I take Mesalamine 4 Gm/60mL (I think 60 mL). I resisted the enema for so long because I figured I would never be willing to do it. After one or two bad weeks, I figured it out and now...
Also - I know Entyvio is still a newer drug that some people are just starting. If you have any questions - I'd be happy to answer anything about it. I tried Humira before and got no reaction so I...
The title of the post is something my family and I joke about regularly. Unfortunate what 2020 has brought us in a lot of ways. Hoping everyone is staying safe. I was posting a lot here back in...
I hope everyone is doing their best during this situation. I've been lucky that my infusions have continued as scheduled, my area hasnt been too badly hit by the virus. hoping it stays that way. I...
I came here looking for this information. While it hasn't reached huge levels in the USA, I think it is only a matter of time. Too much contact between people, especially within cities and even...
Hello everyone, It's been a while since I've been here. My medication has greatly improved my quality of life. I take Entyvio every 8 weeks and an enema weekly. So far, so good. I'm not in full blown...
Entyvio was a gamechanger for me. I started it with 8-10 BMs a day and lots of blood. 2 years later, I still am taking it every 6 weeks and I am down to 1-2 BMs a day with barely any blood. No side...
I have been on Entyvio for 2 years now. No problems with it, it started working relatively quickly, and it hasnt gotten me to full remisison, but life is light years ahead of what life was...
I started a new job a few months ago. I had to switch to a national health insurance provider for the first time that I was not thrilled about. I had preferred to stay with my current insurance...
So I've had a basic whey protein powder for a few years. Never had any problem when I'd mix it with milk and drink before and after the gym on several weeknights a week. However, a few weeks ago I...
The protein and milk are not new. I've been doing it since college so like 6 years or so. I actually tried soy milk today and felt worse than I did with regular milk. I'm not sure if I shouldn't have...
So for the last 2-3 months, I had been doing pretty well. BMs were down to about 1-2 a day, usually around the same time of the day, and with low urgency, sometimes a moderate about of urgency but...
When I was first diagnosed a few years ago, I thought "why doesnt everyone get surgery and get rid of this damn disease?" I've since gotten smarter and realized the scope of this surgery. It is a big...
Not sure if anyone mentioned this, didnt see it when i briefly looked through the replies. The actual infusion takes 30 minutes, however, your time waiting is typically longer, especially the first...
So I've been lucky enough to have medical coverage through my employer and the insurance plan was fantastic. Very little out of pocket costs on my end and the insurance provider hasn't given my...
I dont think it is a cure vs non-cure. It is about getting rid of symptoms of this disease. If you had unsustainable symptoms that reduced your quality of life and getting surgery fixed that, that's...
Hi Susie, Thank you for the response. That's a bummer about there being no real test done for IBS. It'd be nice to know what is going on. My inflammation from my IBD is finally going down after...
Hello, I've been on the UC board for several months given my diagnosis of UC back in 2016. I've been flaring since and finally got things reasonably under control with Entyvio. That treatment got me...
Hi, I probably had the experience with both Aza and 6mp. So I started Azathoprine about 2 years ago. Over the few weeks I was on it, a lot of head aches, nausea, and just general sickness. It never...
Been there done that, I feel your pain. Client meetings and group presentations were the worst for me when my flare was at its peak. If I read right, you have 2 weeks before the presentations? That...
Started with a flare a while back. Lots of diarrhea and blood for about a year until I started Entyvio. Entyvio got my inflammation down to inflammation in the last 30cm of my system, so all of my...
Mine started making a difference after my second maintenance dosage, and by making a difference I mean i slowly noticed a difference. it wont be like a light flickering on where one day he feels...
Hi iPoop, I didnt know that Methortrexate was in the same class as 6mp & Azathioprine and that makes sense now that I think about it. I've gotten sick while on both of those, similar symptoms to the...
I've had a 2+ year flare. It was brutal from the Fall of 2016 to Summer of 2017 when I started Entyvio. Entyvio has been great. It really got things 70% better with little side effects. Two scopes...
I am finally getting on a rectal medication. I had another colonoscopy recently and the inflammation remains in the last 12 inches (all rectal, first 5-6 inches of the colon) of the digestive system....
I agree, a bathroom card is pretty useless for people like us for several reasons like you mentioned. Plus, if we show it and they refuse, are we supposed to create a scene and make everything worse...
I appreciate the responses everyone. I tend to agree with you guys that there is likely some lingering inflammation. I guess I was just confused by my remaining symptoms. When my GI told me after my...
I had a colonoscopy a few months ago and my GI noted mild inflammation in my rectum and a few inches in my colon. He gave me a second medication to go with my Entyvio and told me to take it until my...
Hello, I have been on the UC board since I was diagnosed in 2016. I had an appointment today with my GI for a UC flare I've been having for a few years. My last colonoscopy in June said my...
There was an article I saw a week or so ago about how scientists believe cleaning solutions on kitchen counter tops and other surfaces are impacting the gut and that is playing a role with kids...
always enjoy reading articles about ways to possibly treat these diseases with "outside the box" methods. On my local news a few weeks ago, they have an interview with a doctor in England who...
youre right, completely undermining patents would have a terrible results in the markets, property rights is an essential part of an economic system. undermining the patent system isnt what i met, i...
a big step would be to revamp the FDA approval process & patent system as it relates to drugs and drug prices. We currently allow a few big pharma companies to control the market by issuing patents...
Different insurances approve different things at different times... I'm convinced a lot of the approval process has to do with the mood the insurance person is in when they approve/deny your request....
It's interesting, but I always thought strawberries were bad for people experiencing symptoms? I had to stop eating strawberries because of how they made me feel worse. Or is this study saying when...
I've been on Entyvio for over a year. It has been the biggest difference maker medication wise so far for me. I started seeing positive signs during the loading dosages in the first 4-8 weeks. For...
This is a good option for a lot of people. Is it a treatment option for everyone? No, like all other treatments. But if it can offer people another alternative before a surgery or medication with...
I have a similar spot of inflammation as you, mine is focused on the end of the colon and the rectum. My doctor says rectal medication is the best to treat rectal inflammation (not surprising). He...
Thanks guys, I finally found my paperwork after posting on here and talked to someone from EntyvioConnect. They said exactly what you said CC. They pay for costs associated with the actual drug and...
This is always interesting despite it often leaving more questions than answers. Any progress made in understanding IBD is good with me. My hypothesis has been that our immune system is somehow...
This question is for anyone on Entyvio that is on the Entyvio Connect program. I've only been on Entyvio for about a year and have been enrolled in the program since, but have never filed a claim or...
I don't know what state he'll be in or what the law says, but I'd imagine the school would have to make reasonable accommodations given his disease. I think the others' idea about trying to get a...
Personally, I'd say waiting for a colonoscopy until October is unacceptable on your doctor's end. His patient is clearly having bad symptoms that need addressed. I'd put the pressure on him to either...
Thanks to both of you. I decided I am going to give this rectal meds a try. I've been hurting too long to not give them a shot. If they are that missing puzzle piece, it will be completely worth it....
Hi notsosicklygirl, You're right, it is Methotrexate. My signature is missing for some reason, but I was on Azathroprine and 6mp. Both made me very ill with vomiting so my doctor took me off of those...