I was already about 90% of the way to remission when I started, so I was into full remission soon after the first infusion. I assume if you are in a bad flair it could take longer. I've been on it...
Do you think this is a result of a production bottleneck or do you think it is a result of these countries not having enough money to pay for it? I think companies making the vaccine should have...
There are only a few verified reports of hearing loss related to Covid in the entire world, so I don't think that is enough justification to vaccinate all young children. Fauci want's to vaccinate...
Another benefit from an already great drug. Thanks for posting the link....
Getting a booster is likely safe for most people with UC. I've had 2 doses of Pfizer and also monoclonal antibodies after being exposed to someone with active Covid (although I tested negative), so I...
I would recommend dropping by 2.5 mgs now you that you are at 10. Tapering too fast is a shock to the system. I believe most people naturally produce around 7.5 mg (equivalent to pred) of cortisol,...
Looks like Cigna is covering the bio-similar called Avsola only. My question would be, have there ever been studies that show bio-similar biologics work just as well?...
Started Entyvio last fall, and although I was in a decent remission (with lots of mesalamine), I now feel like I don't have U.C. I started Entyvio while I was doing fairly well because I did not want...
He is one voice in regards to the pandemic, but I certainly would never put him on a pedestal. Honestly i lost respect for him when he said tinder-hookups were doable during a pandemic. And if...
Actually it bothers me when people make posts that are highly political, especially when the mods encourage it. People should keep their politics to themselves as it sure doesn't help anyone heal...
I'll be taking it the first chance I get. My wife is a front line medical provider, so her employer might give it to the whole family. Obviously high-risk people should be taking it first. That...
I'm sure you feel a lot better heading into a new marriage with much better health. I started Entyvio a about 3 months ago, and it has put me into a really solid remission. Sometimes I think many of...
C-diff is a serious problem and it needs to be cleared up one way or the other. Not sure where you live, but fecal transplant is an option for people that can't tolerate or don't respond to...
I just started Entyvio, and have done 3 loading doses in 6 weeks. I was already in a pretty good remission, but everything has improved, except now I have a lot of constipation. Most days it feels...
Is your GI doc an idiot? Sorry but that's just crazy. While it may be true that suppositories stay in the rectum, the enemas can go all the way up to the top of the descending colon....
How extensive is your U.C. (left side, pancolitis...)? You should consider doing a nightly mesalamine enema. Unlike steroids, it's not necessary to taper off of them so you can use it for maintenance....
Perhaps I misread the studies, but it sure looked to me like mesalamine enemas are much more effective than steroid. Hopefully they work for you....
There are tons of biologics. I started entyvio recently (even though I was almost completely in remission) as I seem to be becoming resistant to steroids. I had a flare late last year that took 6...
You have to stay on 40 until you are in remission. Tapering while you are still in a flare will stop any progress. My doc (Mayo clinic) says he is OK up to 6 weeks at 40. In some cases I.V. steroids...
That's true, there are stories on here from people with proctitis in the rectum only who have had severe, debilitating symptoms. Best of luck, hopefully you can get this resolved quickly....
At the time they basically drowned me in I.V. steroids to get it under control, and save my colon, Once the flare was under control, the ileum went completely back to normal with no inflammation seen...
I believe twice in 17 years when I was having a flare bad enough to put me in the hospital (pancolitis), I had what they referred to as backwash ileitis since there was some noticeable inflammation...
Is Humira your only option? I started Entyvio just over a week ago and have another loading dose on Thursday. Seems to me to be a safer option and just as effective. It does require an infusion...
Mesalamine is the trigger for my tinnitus. The more mesalamine I take, the worse it gets....
That must have been a shock to have a colonoscopy and then be immediately told that you need surgery! I just had a colonoscopy, and almost everything is healed up with only a little bit of mild...
IBD and U.C. are poorly understood even by a lot of GI docs, unless they happen to specialize in it. When I was diagnosed in 2003, I was still using a doctor at VGH who was great, but I've also heard...
Psyllium works for me to help with constipation. Metamucil is an easy way to get it....
I agree your Doctor is an idiot. Mesalamine suppositories and enemas are a maintenance med, in addition to getting people into remission. Unless you are sensitive to it, there are almost no side...
I think that kind of scenario is more common with proctitis. Is that what you have? If so, how far up does it go?...
I would hope they would only charge what the average insurance company pays. Normally a $225 consult gets knocked down to around $100 as per the contract. In any case, best of luck getting your flare...
You would think they would give you a decent cash rate for a consult if you lost your job because of covid. Do you just need scripts or do you need a colonoscopy or some other procedure?...
Sorry to hear about you losing your health insurance. It might be worth checking out these GI docs: https://digestiveaz.com/ My wife had a routine colonoscopy there and thought it was good....
Can't your primary care doc write for a generic? Mine would....
Another reason to hate covid-19!!...
That makes sense. That twilight drug they use (versed) renders me a basket case for many hours, even after I come to, so they will definitely need to hand-hold me out to my ride! My wife usually...
So if your "escort" can't come in, that means you have to stagger, all doped up, to the parking lot yourself? My wife always comes in with me and is there when I come out of the anesthetic. The...
We've been slammed hard. I think it is a good idea to keep people who reside in the U.S. out! Although I will miss my yearly trip back. Makes me feel kinda homesick. Anyway hope your scope goes...
The United States has been hit hard, so even if Canada opens the border, the US likely will not. We here have an opposite situation to most places, People stay indoors in the summer because of the...
Seeing your posts always makes me think of Vancouver, where I, and my wife and kids were all born. I would love to be there now! Arizona is having temps in the 115 to 120 range (not sure what that...
I have been completely off prednisone for about 2 and 1/2 months. I finally feel normal. It really does take some time to adjust if you've taken it for a while. I feel like I am getting my strength...
I always thought it was because of the fibre. They also recommend peeling the apple which reduces the fibre. Pears have a lot of fibre too so that is a good question. Apple peel is obviously not...
The IBD AID diet which is specifically for IBD sufferers allows for both apples and pears, although they recommend apples in moderation....
This is good news. I hope to be starting Entyvio next month....
My first symptom was bloody mucous on formed stool. Also the most putrid and disgusting gas....
I'm in the same boat with SFRowasa. Meda is completely unreliable with this medicine. I'm using the sulfa ones now because I have no choice, but they are causing me problems. I will hopefully be...
Increased appetite and weight gain are to be expected from prednisone. I ballooned about 15 lbs after the last round, and I've lost about half of that since being off it (for a month or so)....
Always nice to hear good news! Rectal meds are a lot more powerful than people often think. Many make the mistake of trying to taper off completely once they are in remission, but I think that is...
You might have to do a very slow taper over a very long period of time. Do you have access to an endocrinologist for a consult? If you've been taking steroids for over a year, then it may take a full...
How long have you been on medrol? If you have been taking it a long time, then your body has lost the ability to make cortisol.It can take a long time for your body to start making it again, I've...
Sorry you joined the club that no one wants to join. It's good you did though, because this can be a great resource. Knowledge is power when it comes to U.C....