Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

limey

HealingWell Forum
>
Member Profile
Display Name
limey
Profile Created
9/1/2016 1:35 PM
Last Seen
Yesterday 5:36 AM
Total Posts
189

Last 50 Posts

Knee surgery or ablation while on biologics

Well Im on Xeljanz and have had both my knees replaced. Im in Canada and my lady surgeon on both occasions took me off my medication for two weeks prior to my operations. Everything worked out fine...

1/23/2023 8:18 AM

Ulcerative Colitis
Xeljanz

I have been on Xeljanz since March of 2019 and for me its been the best thing since sliced bread. I started working for me after 2 days and has been fine ever since. I do keep to a strict diet as...

10/15/2022 1:04 PM

Ulcerative Colitis
Tattoo anyone?

I have one tattoo on my upper arm and was not bothered by my UC in any way. Not that I am really in tattoos but I carry my late wifes name on my upper arm....

7/4/2022 4:34 AM

Ulcerative Colitis
Xeljanz vs Stelara after Entyvio

I have been on Xeljanz since March of 2019 and for me its been the best thing since sliced bread. I can't imagine now what the old days were like when you could not go out unless you had an idea...

4/8/2022 10:04 AM

Ulcerative Colitis
Xeljanz, Stelara or Surgery

Well being Canadian getting coverage for myself was relatively easy. I started Xeljanz on March 27 2019 and it worked for me after a couple of days and it has been a great medication for me. Prior to...

1/13/2022 8:40 AM

Ulcerative Colitis
Flu shot…. Flare?

Got my flu shot last week a couple of days after my covid booster with no problems....

11/17/2021 12:14 PM

Ulcerative Colitis
Booster shot + flare up?

I have had 3 shots including the booster all of Pfizer and had no problems at all....

11/17/2021 12:10 PM

Ulcerative Colitis
Xeljanz put me into remission!!!!!

Glad to hear you are doing so well Sara, its a great feeling when you feel normal. I have felt this way since I first started on Xeljanz on March 27 in 2019. Hope it continues this way for you....

11/3/2021 11:37 AM

Ulcerative Colitis
Iron infusions… anyone had one?

Had one a couple of days ago, felt a little off for 24 hrs. No cost to me here in Canada. Tried pills in the past which bothered me more....

10/10/2021 4:30 AM

Ulcerative Colitis
FDA latest warning re: Xeljanz

I have been on Xeljanz since March 2019 and it has been the wonder drug for me. I can hardly remember how bad it used to be as these days I live a normal life, no rushing to bathrooms etc or planning...

9/18/2021 4:15 AM

Ulcerative Colitis
Starting Xeljanz

Yes I do take 10 mg in a morning and 5 mg at night. I have always done well on Xeljanz at 10 and 10mg but never found it quite enough when I went to 5 and 5. So had a discussion with my guy about...

8/11/2021 4:23 AM

Ulcerative Colitis
FMT with Dr. Borody in Australia

I was on FMT at our Macmaster teaching hospital back in 2016 and for me it did nothing for UC however at that time I had 4 bouts of C -Diff and FMT is fantastic for that. Not a trace of it since....

8/9/2021 12:33 PM

Ulcerative Colitis
Starting Xeljanz

Ive been on Xeljanz since March 2019 and have never looked back. I don't go looking for bathrooms as I don't have urgencies as was once the case. My second shot of Pfizer did upset me slightly but...

8/9/2021 12:26 PM

Ulcerative Colitis
Xeljanz Cost

Nice thing about being Canadian my Xeljanz is free....

6/25/2021 12:08 PM

Ulcerative Colitis
Xeljanz and tinnitus?

As a fairly long time Xeljanz user I used to suffer from Tinnitus not because of Xeljanz as I had it prior. However I am an older person and I started to use hearing aids and this actually stopped...

6/20/2021 5:49 AM

Ulcerative Colitis
Starting Xeljanz

I have been on Xeljanz since March of 2019 and I guess I am one of those success stories. I started on 10 Mg and weaned myself down to 5 mg twice daily. Its like I've almost forgotten what UC is and...

6/16/2021 7:16 AM

Ulcerative Colitis
pfizer vaccine and flare?

Im a Xeljanz user and no problem with flaring on either of my two doses of Pfizer....

6/11/2021 11:06 AM

Ulcerative Colitis
Xeljanz and Hair Loss vs. Major Flareup and Hair Loss

I am 80 years of age and have been on Xeljanz for 2.5 years and have a good head of hair so doubt your hair loss is being caused by Xeljanz. On another note here in Canada hair dressers have been...

5/28/2021 11:22 AM

Ulcerative Colitis
Any Xeljanz success stories?

I have been on Xeljanz since two years last March and it has been a game changer for me. It started to work a couple of days into starting and has been good ever since. I might comment that I do live...

5/25/2021 4:44 AM

Ulcerative Colitis
Swollen Fingers and Painful Joints

I have been on Xeljanz for a couple of years now and works fantastic against UC for me , however I do suffer some joint pain in my knees but the strange thing is both of my knees are replacements so...

4/9/2021 8:09 AM

Ulcerative Colitis
Is your dr having you get the shingles vaccine if you’re on Xeljanz?

Well I have had Shingles twice in my life, first time in my 20s and second in my 40s but my GI insisted on me getting the shot before going on Xeljanz some 2 years ago in my late 70s....

4/3/2021 8:11 AM

Ulcerative Colitis
Experience with Xeljanz

Sounds like your husband is doing well but can I offer an alternative as to dosage, I also tried to go down in dosage but was not held as well so I tried a different approach instead of using 10mg...

3/27/2021 6:35 AM

Ulcerative Colitis
Experience with Xeljanz

Well Im 80 years of age and like many others have gone through the biologics over the past few years. For myself Xeljanz has ben the best thing since sliced bread. I started on it 2 years ago to the...

3/25/2021 11:32 AM

Ulcerative Colitis
Questions for people who got covid vaccine.

Got Pfizer vaccine a couple of days ago no problems at all, not even a sore arm. Some one mentioned being worried about having to give up their meds for some reason I am on Xeljanz and a couple of...

3/15/2021 6:14 AM

Ulcerative Colitis
Failed Humira, and now Remicade, what’s next?

Xeljanz started working for me within two days and that was two years ago. I even went off it for 3 weeks when I had a knee replacement and stayed controlled for the first two weeks....

2/26/2021 12:22 PM

Ulcerative Colitis
About to Give In to Biologics

Interesting, from what I've read Xeljanz isn't typically given for IBD. Why did they go with that over Humira, Remicade, etc?[/quote] Sorry my mistake I had been on humira prior to entyvio....

2/25/2021 10:12 AM

Ulcerative Colitis
About to Give In to Biologics

Entivio worked fine for me for just over a year and then it lost its effect. Since then I changed over to Xeljanz some 2 years ago and it started working for me after a couple of days. Its been my...

2/24/2021 12:21 PM

Ulcerative Colitis
Do you ever feel completely alone?

Well I guess someone must be a fellow Canadian to follow the leafs. Certainly don't be afraid of biologics, they have been the best thing since sliced bread for me. Having said that I have had UC...

2/7/2021 12:07 PM

Ulcerative Colitis
New Drugs

Sorry to hear that Xeljanz is starting to fail for you, just interested in hearing how long you have been on it. For myself I will have been on it for 2 years at the beginning of March. Touch wood I...

Yesterday 5:30 AM

Ulcerative Colitis
Experience with biologics

Ive been on Humira , Entivio and each only had a certain working lifespan with myself. I started on Xeljanx on March 27 2019 and it worked for me after just 2 days and it has been working good every...

1/12/2021 6:39 AM

Ulcerative Colitis
Xeljanz 5mg vs 10mg

I take 10 mg in a morning and 5 mg at night which gives me the right balance that works for me. My specialist is fine with that....

1/12/2021 5:36 AM

Ulcerative Colitis
Another C Diff infection

I was suffering a number of bouts of C-diff in 2017 and although Vanco seemed to help it kept coming back. I got accepted into a trial of FMT at our Local McMaster teaching hospital here in Canada...

12/29/2020 11:13 AM

Ulcerative Colitis
Biologic Decision

Im 80 years of age and have been on Xeljanz for almost 2 years now with no problems to report. ...

11/28/2020 10:51 AM

Ulcerative Colitis
OT Covid vaccine

As an 80 year old male here in Canada I will certainly get the vaccine. As we don't manufacture vaccines here we will certainly be slightly behind the States before it will be available here. So we...

11/28/2020 10:47 AM

Ulcerative Colitis
Wife wants Husband present during colonoscopy

My wife wanted to be in the room with me once for my colonoscopy to no avail, and she is a registered nurse....

11/14/2020 5:28 AM

Ulcerative Colitis
Xeljanz and muscle pain

I get some slight aches in my knees that I put down to my Xeljanx. Both my knees were replaced over the last 5 years It tends to come and go. Been on Xeljanx since March 2019...

11/11/2020 12:25 PM

Ulcerative Colitis
Starting Xeljanz :)

Im just past 18 months for me, its been a game changer for me plus no side effects ....

11/9/2020 5:17 AM

Ulcerative Colitis
Xeljanz medication for UC

Im also on 20 mg per day and have no problems, started March 19 2019. I went down to 15 mg for a short while but found it did not always hold me....

11/1/2020 5:47 AM

Ulcerative Colitis
Have you gotten the Shingles Vaccine?

I got mine before starting Xeljanz, no side effects for me, couple of years back. I had shingles twice earlier in life, turn 80 next month....

10/19/2020 11:17 AM

Ulcerative Colitis
Question on Xeljanz

I take 10 mg Xeljanz in a morning and 5 mg in the evening which works for me, as I found that 5 mg each time did not quite hold me. I have been on Xeljanz for 16 months now....

6/14/2020 4:30 AM

Ulcerative Colitis
Xeljanz and weight gain

I have been on Xeljanz for over a year now and have gained 20 ibs which I put down to not having UC issues now, so my body is getting more goodness from what I eat. My diet has remained the same for...

6/8/2020 4:18 AM

Ulcerative Colitis
FMT through Colonoscopy Tomorrow

I am a great believer of Fmt for C-diff, the success rate is about 80 % cure rate. I had 4 bouts of C-Diff and Vanco never really cured the problem so I was put into an FMT program at our Mc Master...

5/19/2020 4:31 AM

Ulcerative Colitis
Regarding xeljanz

I was on 20 mg when I first started just over a year ago and it worked great for me but when I went down to 10 mg it was not enough so I compromised and take 10 mg in a morning and 5 mg at night...

4/30/2020 4:30 AM

Ulcerative Colitis
Moving on from Entyvio

For me Xeljanz has been the wonder drug it started working on day 3 and has been great . Been on it over a year now and its like not having UC. Good luck in what ever direction you take, we are all...

4/18/2020 4:39 AM

Ulcerative Colitis
started xeljanz

I was in a similar situation to you having failed many of the biologics about a year ago for me it starting working about the 3rd day and has been great every since For others it can take a week or...

3/27/2020 4:30 AM

Ulcerative Colitis
Remission without meds possible?

Im on Xeljanz and last Oct I had to give up my meds because of a knee replacement. Because of a slight infection I was off my Xeljanz for 6 weeks and it was only towards the end that I felt I needed...

3/23/2020 4:21 AM

Ulcerative Colitis
Xeljanz side effects?

No side effects for me other than I have gained a little weight back to my normal weight as over the years I have had UC (18) I had lost weight so in a way glad to have a better weight....

2/17/2020 5:15 AM

Ulcerative Colitis
Entyvio vs. Xeljanz

I will have been on Xeljanz for a year at the beginning of March. For me it has been a wonder drug and these days I forget I have UC, no rushing to find bathrooms and just a couple of BMs per day. At...

2/14/2020 2:01 PM

Ulcerative Colitis
Folic Acid, thoughts...?

I take it every day as recommended by my wife the nurse...

12/31/2019 5:31 AM

Ulcerative Colitis
C-Diff positive

Don't be afraid of FMT I was on it at my research hospital after 4 bouts of C_diff. It was a life saver for me and have been clear for the past 2 years. I recently was in Hospital for a Knee...

11/23/2019 5:31 AM

Ulcerative Colitis
HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
Facebook Twitter Instagram Pinterest LinkedIn
© 1997-2023 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.