I love Stelara!! It gave me my life back. I have minimal side effects: sometimes a bit itchy after the injection but I take benadryl prior, and sometimes feel a bit tired after the injection. The...
I like the blueberry RX bars. No funky ingredients and I tolerate them very well....
Make sure you are getting enough protein. I worked with a nutritionist who advised getting at least 100g per day, as our body is contstantly trying to rebuild itself and thus needs more. I found I...
I flared last year after a two week round of doxycycline. I was on oral and foam budesonide until early December, had a colonoscopy in Feb and that sent me off again. Hope you can snap back sooner...
CCinPA: I am not sure of the elapsed time, however, I initially had a significantly better response than my husband, who has crohns and is on balsalazide. My levels were over the 2500 upper threshold...
Just a note that I had a cortisone shot in my shoulder last June, and also went on daily Budesonide and I noted that my SARS-CoV-2 Semi-Quant Total Ab went from pretty good to almost non-existent, so...
I love it. After five years of nothing working, with horrible side effects, Stelara has given me my life back. The injections are easy peasy. It did take awhile to really get back to normal. I ended...
Make sure you are getting LOTS of protein. I saw a nutritionist specializing in IBD and she emphasized that we need extra protrein because our colons are contantly trying to rebuild themselves. I...
I'm sorry, that really sucks. Which test did you do? The 164090 SARS-CoV-2 Semi-Quantitative Total Antibody from Labcorp? Hopefully monoclonal antibodies would help if you ever did contract Covid....
I think our doctors could prescribe a fourth dose since we are considered immunosuppressed. Would be worth a try…...
I am in that study too. They are testing different things, I am not certain what UNC is testing for. The test I did back in July after the second vaccine shot was only 10 for me, but at that point I...
Stelara and trying to avoid inflammatory foods as well as trying to eat anti-inflammatory foods, esp. no more alcohol....
Sounds like it went well!! Wishing you a quick and easy recovery!!...
Johns Hopkins has released their initial report on what those antibody levels indicate. I know many of us participated in the initial study and may be in the ongoing one as well. FWIW, you can now...
I have used Quest Chocolate Milkshake flavour, it is whey based, and even though it has sucralose I have had no problems with it. Have also used Nutiva Hemp based protein powder. Not really great...
Do you take any probiotics? I started taking some (Culturelle) after being wiped out by an antibiotic in the spring and they make a major difference. I also eat Siggi's yogurt daily (as much for the...
I have been having a lot of success adding a once-daily probiotic, currently using Culturelle but about to try Florastor. I would not recommend not eating. Try to get as much protein as possible, I...
Not really backwards but not a lot of forwards either. I was on Budesonide for a prolonged period (July thru November) trying to help it along. I was getting pretty bad when I started so there was a...
After a few months, including supplementing budesonide my doctor switched me to monthly injections and after a few more months I really noticed a big difference. After about 9 months I was pretty...
I did have antibodies but ongoing Budesonide has really lowered them. I had 1104 U/ml (the spike protein test used by Johns Hopkins study) one month after my second Pfizer vaccine. I started...
When I was on 50mg I had a nurse tell me it was "a wimpy dose of a wimpy drug". I don't think 25mg will really affect your gut. I am on 100mg daily with no issues....
I really like Psyllium husk. I was pretty sensitive to it, I think the dosage says three with each meal and I'm good with one per day!...
I am going through something similar with Stelara. After being on it monthly and finally reaching remission my insurance company has declared they won't cover it monthly because the FDA recommends...
When I started Stelara I also started Budesonide both orally and foam. After four months my doctor switched me to every four weeks and that did the trick....
I am in the Johns Hopkins study and asked them if they had any idea of what range of antibodies is normal. They said ask your doctor. Not really helpful!! I am on Stelara and my husband is on...
Yet another case of a medicine developed for other conditions (in this case Multiple Sclerosis) being subsequently approved for UC. The side effect profile seems similar to JAK-1 inhibitors. It would...
I had a somewhat similar response until I started doing the injections every 4 weeks instead of 8. It has made a huge difference and I am finally mostly in remission. You will need to get insurance...
Funny, I find prednisone relieves all my body pain. If only it didn't have such nasty side effects... I sometimes wonder if I have kind of a rebound effect when painkillers wear off. It's kind of...
I had horrible pain on Entyvio. Joints and muscles. I was moving like I was 85 years old. After being off it for about two months all the pain was completely gone!! I would marvel each time I went up...
I did my Stelara shot on Wednesday and had the first dose of the Pfizer vaccine on Friday. My arm was a little sore but no other symptoms. My husband was a little emotionally overwhemed (he got his...
I started Stelara last June, and also started a course of Budesonide (oral) and Uceris foam. (I had been off all treatments due to surgery in March, and Entyvio wasn't really working that great). In...
I had my gallbladder out 3 years before I developed UC. I have GERD and there are some fats I have problems with, but mostly I have no issues with fat at all, especially dairy fats. I eat milk,...
I was also premedicated, with tylenol and two benadryls which really did me in. I barely made it home!! I started in June 2020, along with starting a course of budesonide at both ends. In November I...
I like Psyllium Husks but instead of the 4 per meal I start with 1 or 2 per day. That may be all that is needed....
Fish oil makes me bleed. Maybe eliminate that....
I really liked Uceris foam...
I always thought bright red was from hemmis?...
I am off to the store for Robitussin and Mucinex :-) Thanks...
thank you, I will try this...
Hey everyone, I have been suffering from especially bad nasal congestion from Stelara. My sinuses are blocked and I have almost constant post nasal drip. It's very thick. My GP prescribed a nasal...
It's definitely helping me but I think I also suffer from some side effects from it like headaches and diarrhea. Hard to tell!! I have been on it since June and am going to every 4 weeks to see if I...
I use vaseline as a protective barrier, seems to help for me....
I found some relief using an edible with a ratio of 20mg CBD to 2 mg THC. I started using only half of this dose or less. I find I sleep better and if I awake I can fall asleep easier....
I have had both of them, had the second just recently. I do have a reaction, mostly just extreme fatigue for a day or so....
I am following in your footsteps. I know that people say they wonder why they waited but on the other hand I keep seeing a lot of people with a lot of issues after surgery so... I plan on staying on...
I'm just curious how many of us also suffer from tinnitus. I always thought it was from too much loud music (and that probably didn't help) but was surprised to find out it is linked to IBD/UC....
If you are not doing too badly, I would remain on the Remicade as long as possible. I have already gone through them all and am at Stelara. Next stop is surgery. You don't know that any others will...
I like to use Psyllium Husk capsules for constipation....
Thanks for posting about the Uceris foam Butthurt! My Dr prescribed Cortifoam but it is unavailable. Am trying to get prescription changed to Uceris foam now....
Try following a low FODMAP diet. My nutritionist is recommending I do this. I was until I decided I could probably handle watermelon again. I regret that decision... ;-)...