Just went through this, I just didn’t all day till I got home. Woke up early and tried to go as much as possible and took a Xanax. Might as well be relaxed and not stressed. I would recommend the...
Mine was 4210 so is that bad? Currently in a flare. Had a colonoscopy and yes I still have moderate to severe colitis inflammation to 35cm. I think he’s fine. I had biopsy and the whole 9 yards. All...
Hey D, Exact same. I’m still somewhat flaring. We did flagyl and enticort. I did the infusion and 2 at home injections and after the second I was already flaring. Then did the third in week 6...
Stelera was the same for me. Infusion was good and then 2 months later my flare came back....
Covid shot messed my Entyvio up as well. I tried stelera and it only worked for 4 months now I’m considering xeljanz or Zeposia. Good luck....
Mine is 4100 and I’m currently flaring so I believe it is common to have a high level with a UC or Crohn’s diagnosis....
Just had yet another colonoscopy this morning 3rd or 4th since 17’ when diagnosed with UC. Unfortunately I had originally 25cm of inflammation last March and according to the results today it is now...
Sorry to hear that. Hope you feel better soon. I’ve been flaring since early February and we can’t figure it out. I might take a chance on Xeljanz. 🤞...
Been flaring since February while on Stelera, just did another injection Tuesday with no response. Currently on enticort 9mg. Tried pred IV for 3 days but didn’t work out. I did really well in...
Just wondering if anything really helps dietary during flares? Should I go all liquid diet or just chicken and rice very bland route? Interestingly I feel so hungry this time around, I just started 3...
I was on Entyvio and then got vaccinated and it stopped working. Covid vaccine for some reason counter acts the medication and I’ve been flare and struggling to get something to work for last 6...
Sorry to here that. My doctor just sent in Metronidazole 500mg “Flagyl”. Has this helped during flares? I’m running out of options. I’ve tried Remicade, Entyvio, Stelera. Guess I’ll try xeljanz Or...
Definitely flare. Started out just small now it’s rocking and rolling....
I really had high hopes for Stelera. First infusion completely stoped my previous flare from the good ole covid shot and now here we are on VACATION in Florida after only 2 at home injections and my...
Oh I don’t dread the shot, doesn’t bother me at all honestly. Just for the next 2-3 day after the shot I feel terrible mentally and physically. Then bam I snap out of it. It’s weird. Like all the...
I’ve only done 2 at home injections with Stelera and both times I have felt very depressed, empty and just not myself about 2 hours after injections and it last for multiple days afterwards. Anyone...
Quick update. All is good. I did get really tired about 6 hours after injection but just slept it off. Feeling good and I lost my appetite for the last couples of days....
I just did my first at home injection today. So far so good. Has anyone had any side effects or issues after the injection? So far I have responded well with stelara, my 5 month flare stopped after...
Anyone have sharp pains on stelera in the lower abdomen? Just for a second or 2 and then they go away. That started this morning....
Finally after waiting 4-6weeks on insurance I received first infusion. Felt really tired and out of it after infusion. Went home and took a long nap. Woke up feeling good. So far no changes other the...
Just wondering if this has happened to anyone before. I’ve been on pred since July and last week I started to get blurry vision. Started noticing it a lot while driving and yea it’s freaking me out....
My GI put in the order for Stelera Wednesday. So hopefully sooner then later. I’ve been flaring since July 1st. Im so tired of being on prednisone!!! I want my life back and to feel somewhat normal....
Zeposia is doing free medications for 2 years right now according to my doctor and the rep but for me it seems way 2 new of a medication. It’s primary use is for MS. I’m heading towards stelera....
I’ve been in Remicade, had bad side effects from that. Tried to get on Xeljanz but insurance wouldn’t cover that until I try Humira. My doctor also suggested maybe doing Entyvio every 6 weeks but I’m...
I need a new biologic, ever since I got my Covid shot( j and j) in June I’ve been flaring. Did pred for 6 weeks and was better but as soon as I dosed down bleeding came back and flare. Just received...
I was in the same boat 2017, lost 40-50lbs with UC in the hospital for a week. IV prednisone stopped my flare which allowed me to eat and get back to normal. After that went to straight to biologics....
I flared after receiving the j and j vaccine and I’m still dealing with UC issues. Bleeding and cramping for the last 3 weeks. Oral Prednisone is not working. Hopefully my infusion next week knocks...
Sara I feel ya. Had a flare like 2 weeks ago. Started pred 40mg. Felt like Superman for 3-4 days. Starting to dose down…and yea f the world ya know but it works. For me pred is a devil’s advocate....
I’m allergic to mesalamine. My insurance won’t cover enemas and I’m not a fan of suppositories. Pred is the only thing that has stopped my flares in the past. What other medications do y’all...
I’ve been on Entyvio since April 2019....
So basically, 2 out the last 4 Entyvio infusions I’m starting to flare up about 2 weeks after the infusion. Had 1 in January, i did great. March had one and bam full flare, pred was the only thing...
Oral mesalamine only, it’s weird....
Had colonoscopy done yesterday. They found 25cm of inflammation in my colon. Which is causing all the blood and clots. Doctor insisted on flagy and mesalamine enema. If it progresses start high dose...
Had my GI appointment yesterday. Doctor wants to do Full labs, also another colonoscopy to make sure my UC has not progressed any further. Also, wrote a prescription for Flagyl just in case there’s...
I’m allergic to mesalamine. Pred didn’t help. Maybe try endocort? My doctor and I have discussed that but haven’t tried it yet....
So I stayed off my meds for 6-8 months thinking UC would go away, which it did for a while. Of course it came back, now I’ve done 2 Entyvio infusions but I’m constantly seeing blood in my stool,...
Quick update Entocort and me do not get along. Started it Wednesday morning as so did my flare. Ended up in bed by 7:30pm extremely tired. Worked up in the middle of the night with flu like systems...
Does Entocort keep you up at night or give you that extra energy? I know on pred I feel like a drank 3 cups of coffee. Any weird side effects?...
Good morning, my gastro just prescribed me Entocort for a mild flare, what’s the difference between that and pred? I usually do 40mgs of pred which usually takes care of it and with minimal side...
Definitely stomach cramps, no meds. Just an urge to go probably 1-2 an hour with cramping for a couple of seconds but not actually going. If that makes sense....
Good morning, so I have been without Entyvio since January this year, and now I’m having stomach cramps and that feeling you get when you have to use the bathroom multiple times a day but I’m not...
I was diagnosed in June 2017, started IV infusions after a nice hospital visit to get in under control. My last infusion was in January with Entyvio and I have not had any medication since. I’ve had...
As a dad, I to suffered from fatigue and decided to check my testosterone with my doctor. I too was an avid runner, workout guy full of energy and got UC and it was gone. Come to find out my...
Definitely having issues with fatigue and joint pain while on biologics. Hope to start running again soon. January 6th was my last infusion, so I should be getting better. I hear it takes 3 months or...
I used to run 10 miles a day, got UC 2 years ago and now can barely run a mile. Sorry for the bad news but got off all medications since January and hopefully I can get back into it. I feel biologics...
So out of the Hospital in July 2017, I never flared after we did IV pred and started Remicade. Did rem for a year and then Entyvio. Since 2017 I’ve never had an UC symptoms. Everyone will say because...
Entyvio and Remicade I had weight gain memory problems, hard to focus, and fatigue. Side effects that I tried to get over but unfortunately could not. Appreciate the good luck. I’ve been completely...
Unfortunately I’m allergic to mesalamine, but I do respond to prednisone very well....
Haven’t had Entyvio since January 6, trying to get on Xeljanz but my insurance is not wanting to cover it. My question is has anyone tried not taking meds? I’m not flaring or have any UC symptoms....
Is stelara IV infusion or self injections?...