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quincy

HealingWell Forum
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Member Profile
Display Name
quincy
Profile Created
5/23/2003 10:41 PM
Last Seen
Yesterday 8:19 AM
Total Posts
33494

Last 50 Posts

Cancer risks??

If you're meaning colon cancer statistics, I don't know. However, they are not subjective. Consistent inflammation can cause cells to change toward cancer, however, there are some with a genetic or...

2/7/2023 10:11 AM

Ulcerative Colitis
Salofalk enemas and switching to Pentasa granules

I suggest you call and ask for a foam steroid enema initially to use during the day and the mesalamine at night. I understand the impatience. That's why I remain on maintenance and increase at first...

2/6/2023 10:33 AM

Ulcerative Colitis
Salofalk enemas and switching to Pentasa granules

Thanks 😊 good you didn't have to use more than the normal mls salofalk. Hard to say re retention. Pentasa is in 100ml bottles, and it also has a 4g. q...

2/5/2023 8:37 PM

Ulcerative Colitis
Salofalk enemas and switching to Pentasa granules

Hi CW...I understand your point and am not disputing it. This is a topical med...not systemic, so it doesn't compare to my logic πŸ€” How I explain it is...the 4g wouldn't be in a concentrated dose of...

2/5/2023 10:48 AM

Ulcerative Colitis
Newly Diagnosed. Any input appreciated.

What were the path results for the sigmoid and rectum? q...

2/4/2023 10:22 AM

Ulcerative Colitis
Salofalk enemas and switching to Pentasa granules

I don't suggest doubling the enemas...but you could do one during the day and one at night. Doubling them is still 2g, just a larger amount. When are the majority of your bms during the day? q...

2/4/2023 10:10 AM

Ulcerative Colitis
Nausea

Absolutely, find out what's going on with your sinuses. An x-ray would be best and swab test to see if you might have an infection. Have you had allergy testing? Have you tried using a sinus rinse...

2/3/2023 10:51 AM

Ulcerative Colitis
Stelara and Predsol enemas (prednisolone enemas)

Is there a reason Predsol and not the Mesalamine enemas? q...

2/3/2023 10:37 AM

Ulcerative Colitis
Stelara and constipation

Constipation is a part of healing with the regression and location of inflammation. I do suggest adding rectal meds if you aren't on them. As well, add more foods that help with constipation to...

2/3/2023 10:31 AM

Ulcerative Colitis
Treatment when newly diagnosed

Hi...welcome to the forum. Firstly, I suggest you get a copy of the pathology results to know exactly where the location extent of your UC is. Left-sided to me means including the descending colon,...

2/3/2023 10:16 AM

Ulcerative Colitis
Salofalk enemas and switching to Pentasa granules

A good start...my first GI always said "patience". I still suggest you request the 4g. Keep us updated, because symptoms will change as you heal. q...

2/1/2023 10:37 AM

Ulcerative Colitis
Pretreatment of Gymnema sylvestre revealed the protection against acetic acid-induced ulcerative col

Made it a live link... https://pubmed.ncbi.nlm.nih.gov/24507431/ q...

2/1/2023 10:33 AM

Ulcerative Colitis
UC or Crohns?

Sounds like Crohn's. q...

1/30/2023 11:30 PM

Ulcerative Colitis
Salofalk enemas and switching to Pentasa granules

CW...I've been at this for 34 years, but I did go off the enemas once in the first year...waited too long to see my doctor because of wishful thinking, aka denial...lol. I learned...but it took many...

1/30/2023 11:28 PM

Ulcerative Colitis
Do you take Nonsteroidal anti-inflammatory drug like Motrin or Advil

Keep us updated...but both my husband and I ended up with an infection after Covid. I had a continuing cough for months after Covid. Hugs, q...

1/30/2023 10:41 AM

Ulcerative Colitis
Salofalk enemas and switching to Pentasa granules

CW...make sure the enema nozzle is somewhat pointed toward the front rather than the back. Use a lubricant on the tip. Re going off meds...all my last 3 scopes show all as normal. Cellular...

1/30/2023 10:38 AM

Ulcerative Colitis
Currently Flaring

Hope the increase of infusions will show improvement soon. Keep us updated, q...

1/29/2023 11:30 AM

Ulcerative Colitis
Kathy1946

Kathy...i also suggest you get copies of all results. You might even be able to get a copy of past results. Absolutely, you need to be your own advocate, but be prepared with knowledge and a list of...

1/29/2023 11:27 AM

Ulcerative Colitis
Kathy1946

If your GP has put forth request to test for suspicion of UC...re your past, but unmedicated, diagnosis...biopsies will/should be done. But discuss with the GI that you need to know what's going on,...

1/29/2023 12:11 AM

Ulcerative Colitis
Salofalk enemas and switching to Pentasa granules

You didn't start rectal meds till long after inflammation started. Remember where it starts, and oral mesalamine meds aren't going to deal with that area. It will take a while before they kick...

1/29/2023 12:04 AM

Ulcerative Colitis
Kathy1946

Have you had biopsies during any of your colonoscopies? I suggest you request them at the next one. q...

1/28/2023 10:05 AM

Ulcerative Colitis
Salofalk enemas and switching to Pentasa granules

I use Salofalk 4g...my suggestion is to never go off them completely, but to taper (and I stress taper) to a maintenance of 2x weekly. Are the bottles accordian style or smooth? You could warm the...

1/28/2023 9:58 AM

Ulcerative Colitis
Do you take Nonsteroidal anti-inflammatory drug like Motrin or Advil

"Once in a while" is different than "for a period of time". Were you also on antibiotics? What has caused the perichondritis? Sounds terribly painful. Re surgery...I suggest you venture to discuss...

1/26/2023 10:33 AM

Ulcerative Colitis
Appendix

Still have mine, no issues or sensitivities in that area. My UC flares have been milder and milder through the years. q...

1/24/2023 9:47 PM

Ulcerative Colitis
A Plant-Based Option to Treat Ulcerative Colitis

Let us know how it works for you. q...

1/20/2023 9:38 PM

Ulcerative Colitis
How IBD can impact you during stressful situations-, another funny farm story

Ditto CC's questions...thanks for the suspenseful stories, 😲! q...

1/20/2023 7:08 AM

Ulcerative Colitis
Long time no post - flare or not?

Fruitgirl...what were the 3 areas found to have the LC? q...

1/18/2023 11:15 AM

Ulcerative Colitis
It's my 14-year anniversary with UC

You can request to try steroid foam enema for day and mesalamine enema for night. q...

1/18/2023 11:11 AM

Ulcerative Colitis
Long time no post - flare or not?

Good news re c-scope! Looking forward to the outcome of your gyne on Tuesday. How are your symptoms at this point? q...

1/12/2023 10:59 PM

Ulcerative Colitis
Surgery anniversary

Wow...Happy 5th anniversary! Hope hernia surgery and recovery goes smoothly 😊 q...

1/12/2023 10:14 AM

Ulcerative Colitis
Currently Flaring

Good you called your doc...what's the result of that discussion? q...

1/10/2023 7:59 AM

Ulcerative Colitis
Currently Flaring

I suggest requesting mesalamine enemas...nightly till whenever. Probiotics...take them at night before bedtime. I'm actually dismayed at the fact your doc is basically wasting time till the end of...

1/8/2023 10:16 AM

Ulcerative Colitis
Possible Tear in Anus

Yes, it could be a fissure. You can take a look and check for yourself by squatting over a mirror. q...

1/6/2023 10:10 AM

Ulcerative Colitis
Manuka Honey

Retention mesalamine enemas 4g will also be of help... if you can use it. q...

12/30/2022 12:49 PM

Ulcerative Colitis
Manuka Honey

I sincerely doubt it has anything to do with a flare. Honey can cause softer/looser/diarrhea stool...depending on how much one consumes or how sensitive or allergic one is to it. What symptoms...

12/30/2022 12:11 AM

Ulcerative Colitis
So Thankful....

Huge gratitude to all on the forum...and for the support! Hoping 2023 will be a year towards better compared to the bs of the past. q...

12/27/2022 11:05 AM

Ulcerative Colitis
Long time no post - flare or not?

I've never had nor would accept it as a flare status diagnostic. I agree with others to have other things in the abdomen area checked... as well as a c-scope if it's been a while. However, I'm...

12/27/2022 11:00 AM

Ulcerative Colitis
Mesalamine and Omeprazole (PPIs)

Seems a good schedule. q...

12/23/2022 11:36 AM

Ulcerative Colitis
Happy Holidays (OT)

Hi Songlady! Thanks for sharing your updates. I do know of one person whi is doing chemo long term. Basically because he refuses surgery. I understand the reason why your specialists have decided...

12/22/2022 12:53 PM

Ulcerative Colitis
H Pylori diagnosis?

Wow...I'm shocked at your response. I would never give it a second thought to not take them and not deal with it asap. It's only 2 weeks and hopefully will deal with it forever. Low level...best case...

12/21/2022 12:14 PM

Ulcerative Colitis
Mesalamine and Omeprazole (PPIs)

I do...I'm on esomeprazole which I take about 30mins before breakfast. I take the mesalamine oral about an hour or more after eating. When do you take your meds and when the omeprazole. What oral...

12/20/2022 12:14 PM

Ulcerative Colitis
H Pylori diagnosis?

Absolutely it's of concern! You should be treated with antibiotics with PPI for 2 weeks. You do not want an h.pylori infection to be lingering. It can cause ulcers and stomach cancer. My husband had...

12/20/2022 12:11 PM

Ulcerative Colitis
Sulfasalazine - taking all at once?

You could split the dosage...half in morning, other half at night. I know sulfasalazine can cause nausea. Are you supposed to take with or without food? I personally wouldn't take it all at once. q...

12/15/2022 9:35 PM

Ulcerative Colitis
Do oysters trigger a flare?

No...it wouldn't trigger a flare. Food that disagrees can cause symptoms that might be interpreted as a flare. q...

12/15/2022 11:11 AM

Ulcerative Colitis
Paxlovid if you have IBD

You won't be able to take it if you're on certain medications. I was refused because I'm on Diltiazem and Rosuvastatin. I could have gone off the statin, but not the other. q...

12/12/2022 10:49 AM

Ulcerative Colitis
CBD Oil

What is P? q...

12/8/2022 12:32 AM

Ulcerative Colitis
J pouch and maybe gallbladder issues

Yeah, something is definitely going on... you should put in a call to your GI asap. Hopefully, you'll get in sooner than later. Otherwise, urgent care might be easier to get in than emergency....

12/5/2022 12:03 PM

Ulcerative Colitis
It’s looking like UC

Good idea on the suppositories. Looking forward to your update with the GI. q...

12/4/2022 11:40 PM

Ulcerative Colitis
It’s looking like UC

Wow...why stop the suppositories... it's a both-end approach. And...UC starts at the rectum! Anyway...request the enemas. And just a reminder...he just might say that they won't help because you have...

12/4/2022 1:36 PM

Ulcerative Colitis
a long whine

How pathetic it is when companies put their noses into poo-pooing the appropriate meds a specialist requests for a patient 😠 I hope it does a turnaround for you. What do you mean by most of the...

12/4/2022 1:20 PM

Ulcerative Colitis
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