Has anyone tried topical NSAID creams for localized arthritic flares? I see them in the aisles but never tried them....
Congrats Sara! So good to hear success stories...every win, large or small, which makes a difference in our lives is to be celebrated. Hope yours last forever! I'm on year 24 with UC. More smiles...
How's the Stelara working fractal44...still on a good track?...
smw, how was your scope in November? Are you still seeing the benefits of Stelara? tiredofallthispoop, how about you? Hope the side effects have eased....
IT, I was on Humira for 4 months and had to come off due to what was deemed 'Humira induced psoriasis.' I had a nasty breakout throughout my body which took approx. 6 months to clear. Thankfully no...
Here's to better days in 2021! Wishing everyone health and patience. Special nod to the moderators who commit so much of their time to comfort others....
Interesting reading this post. Also noticed a 5/11/20 link to a recent article on LDN. Never heard of this stuff. Will do more digging into it....
Most of us go through the same agony you're facing Lodi - which med to go with. All of these drugs have pretty scary side effects. In my experience each body reacts differently, it can be that...
Hard to weigh the benefit of immune suppression to potentially prevent a cytokine storm vs the risk that the immune response is too weakened to fight off Covid....
My view on this is no size fits all. Each body reacts differently to food varieties AND reacts differently at various stages of colon health. Fried or fatty foods tax the digestive system for anyone,...
So disheartening to read our frontline healthcare heroes having to stress about your own wellbeing while caring for others. We are meant to be the greatest nation but can't provide basic protective...
typo - I am NOW in that boat....
Just reading this thread from years back. I am not in that boat - coming off 6MP after a couple months. Liver markers were too high and I finally had liver pains. Weird thing, but like electric...
Congrats 3tc on getting through this tough ordeal! Agree getting sick now is likely better than getting sick later. Stay well and hope you fully heal up soon....
albear, this UC seems to morph all the time and always disappointing when it rears its ugly head after a calm period. Don't despair...go through it methodically. Test if it's a flare, then decide...
3TC, hoping today was better than yesterday, and tomorrow yet again until full recovery. Hang in there!...
VJ, adding my well wishes to everyone before me. Hang in there! Mental wellbeing is so important - esp when fighting an illness -- any illness. The statistics on COVID still favor recovery for 95-98...
Congrats geezer! That's great news...even if stuck at home, at least you have a smile on your face! Entyvio seems to be doing wonders for many. Enjoy the new chapter and may it last long!...
Condolences CC - cherish the memories as you’re doing and enjoy a few smiles in the midst of your mourning. We all worry about elderly parents, relatives and friends. May she rest peacefully....
infotrad, I asked my GI about this and he simply stated "we just don't know." The info hasn't been parsed through. I mentioned in another topic on this forum that we spoke to a panel of...
Hi Sara, we did the same testing last week, and as of Friday we decided to close our offices worldwide and ask employees to work from home for 2 weeks. We're trying to do our part to encourage social...
We had a panel of epidemiologist speak to our team today via ZOOM. The idea was to gain insights beyond what we're hearing in the press, in order to make decisions on office closures, etc. We touched...
Hi tp, Hard to know the exact dynamics at play in your shop, so I'll give you my perspective more generically: In general, most bosses and bosses' bosses want ALL employees to succeed. The best...
Eight year remission is great JustaMyth...congrats! Hope you get this flare under control and find remission again quickly! Good luck!!...
Agree that at present the odds the super low of infection in the U.S., and that of the cases reported roughly 80% are considered mild. Still scary for those of us who are immunosuppressed to think...
turtle, agree it sounds like you need a break...find a way to take it. That said, a few days away are only a band-aid. Gotta find a better balance. I like to tell my colleagues to 'solve for the week...
Hi FlowersGal, thanks for sharing and very happy for you! I'm always encouraged when I hear one of the biologics working so well for people. Good for you and may it last forever!...
Sorry to hear you started flaring again. Did your bone scan show osteopenia or osteoporosis? I'm curious to know what your treatment for that will be since I'm in a similar boat. How did you decide...
Hi Suzie, Thanks for sharing your experience and your remedies! I will keep these handy just in case. Indeed a shame to have had to drop Humira. In my readings I found it pretty common for Humira to...
Hi iPoop, yeah can't know for sure, but the timing was uncanny. My GI thought it was 'classic' Humira-induced pso. Indeed it took a while to completely fade, and had to get on steroids to give it a...
Hi UCjustsucks, so sorry to hear about your daughter. The think I find with biologics is they work great when they work, but they are like a mad-scientist lab...sometimes they go wonky. I hope she...
Hi all, back after a year ‘off’! Quick background and then wanted to share two lessons I took from this which might be helpful to others. After a lot of thought, I finally succumbed to biologics and...
Hilarious thanks iPoop! Merry Christmas all....Happy Holidays!...
Hi...new to this section of the forum. I usually hang out in the UC section. But, had a Humira induced psoriasis breakout about 3 months into the treatment. Now off Humira and Dr is recommending...
jujub, Glad to hear you're doing better. Curious, how long were you on steroids? Sounds like they had a number of adverse impacts to your health....
Congrats 3xChamp! Glad to hear your choice was the right one for you and hope things continue to go well. Your journey is one we all face but dread to think about...so it's heartwarming to hear a...
Unfortunately it's common for UC to progress, change, worsen with time. Hopefully the Budesonide has you in check for now. If you have pancolitis, from everything I've read, it's normal to 'graduate'...
Thanks Susie for your feedback, with every passing day it doesn't clear increases the likelihood you are right. I will give it two more weeks before raising the white flag....
Hi all, would love some advice from the forum. I'm now 4 weeks since my last Humira shot. The psoriasis/rash that I have all over my body is being treated with Prednisone. Started at 40mgs/day and...
Hi Jujub, how is your psoriasis now? Have you had further improvement? Hope so....
SR2, thanks for sharing. Interesting and read the link you provided. Glad to hear it is working for you. Have you been diagnosed with UC, or other?...
Hi CC, I was just reading the Entyvio thread and how happy to see you and others gain remission. Sorry to hear of the set back and hope Humira does the trick for you. Best of luck!...
Just re-read this entire thread. Heartwarming to see so many having sustained remission success with Enty. I had a psoriasis-type breakout to Humira at month 3 and discontinued. Scheduled for Enty...
limey, first of all lucky to have a nurse as your wife! I'm sure it's reassuring having her nearby through these ordeals. I'm in the middle of what seems to be a Humira triggered rash/psoriasis. I'm...
LOL....but don't quit your day job :)...
Hey geezer, sorry to hear you're flaring. Sounds like you had an amazing run with Remi. I'm sure a couple of the moderators with Remi experience will respond much more knowledgably than I ever can....
naturalcurl, each Humira order consists of one package. Each package contains two PENs of 40mg each. Typical dosage is one PEN every two weeks = 26 PENs per year (or 13 packages). Prices will vary,...
Thanks again and so glad it worked out for you! Let’s see how mine turns out. Prednisone is calming things down quickly, but my system is still full of Humira; I’m 5 days away from the 2 week mark....
Thanks partlycloudy for sharing...that is encouraging to hear. Besides coming off Humira, how did you treat the Psoriasis breakout?...
Susie, thanks for your response and sharing your experience. Mine sounds very similar...all over my body, forehead, scalp, chest, back, soles, etc. Utterly itchy esp on my chest and scalp. I hope I...