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Uniform Charlie

HealingWell Forum
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Member Profile
Display Name
Uniform Charlie
Profile Created
7/26/2015 11:17 AM
Last Seen
1/26/2022 4:21 AM
Total Posts
1104

Last 50 Posts

Mark Cuban Pharmarcy

I don't recall seeing many on here taking Apriso but they have the generic for cheap. I would consider switching off generic lialda if my insurance wasn't good....

1/25/2022 4:36 PM

Ulcerative Colitis
Colazal/ Mesalamine Intolerance? Help!

I would keep notes. These things aren't always clear cut and a few days is not enough time to make a determination but keeping detailed notes will help you make future decisions....

1/11/2022 3:23 PM

Ulcerative Colitis
Triclosan and UC

https://www.genengnews.com/topics/omics/microbiome/gut-bacteria-enzymes-link-antimicrobial-triclosan-with-gut-inflammation-ibd/ "Studies by an international research team have demonstrated how...

1/10/2022 4:00 PM

Ulcerative Colitis
PFOA and ulcerative colitis

Impossible to say...

10/5/2021 8:52 AM

Ulcerative Colitis
First patient dosed with biontech mRNA cancer vaccine

https://www.clinicaltrialsarena.com/news/first-patient-dosed-in-biontech-phase-ii-trial-of-mrna-cancer-vaccine/ First patients have colorectal cancer....

10/2/2021 12:15 PM

Ulcerative Colitis
PFOA and ulcerative colitis

I don't claim to know a lot about it but the main application for Dupont/3M was Teflon prior to that particular chemical being banned....

10/2/2021 12:12 PM

Ulcerative Colitis
PFOA and ulcerative colitis

Food for thought. Environmental factors have been linked to Ulcerative Colitis. In the last few years I have stumbled across a few studies linking PFAs and UC. All started out on a Netflix special...

9/22/2021 5:42 AM

Ulcerative Colitis
Hiatal Hernia Question

I've suffered from some digestive issues for several years including ulcerative colitis and a hiatal hernia. The hernia only really caused me some minor reflux in years past. Recently, I've had...

7/18/2021 12:18 PM

GERD & Acid Reflux
What's your CBD experience?

Thinking of trying CBD for sleep and anxiety. Anyone had good luck? What did you take it to treat? I figure the anti inflammatory properties can be a bonus for UC....

4/5/2021 5:50 PM

Ulcerative Colitis
Colazal side effect

My skin turned yellow...

2/20/2021 5:14 AM

Ulcerative Colitis
cymbalta (duloxetine) safe for UC?

It causes diarrhea as your body adjusts. It is safe for UC and helps greatly with my nerve pain. I had to settle on 30mg because 60mg gave me restless legs. Give it time if you don't like it...

2/15/2021 6:21 PM

Ulcerative Colitis
Poop pill study?

This popped up in my Facebook feed. They are recruiting. https://www.eco-resetstudy.com/#!/ ...

1/27/2021 2:08 PM

Ulcerative Colitis
got the first shot of moderna vaccine

Just got my second dose of Moderna. It was almost universal among my peers that we all got aches and chills (flu like) the day after along with the sore arm. Nothing more though....

1/27/2021 2:05 PM

Ulcerative Colitis
Any vitamins/supplements that are no-brainers?

Psyllium seed powder is proven effective at maintaining remission in UC. Don't quote me, but I believe it is effective on it's own (comparable to oral mesalamine) but taking it along with mesalamine...

1/27/2021 2:01 PM

Ulcerative Colitis
Haileys letter

Do you live in the Ohio River Valley area?...

1/11/2021 1:55 PM

Ulcerative Colitis
OT Covid vaccine

Thought I should update that I've experienced frequent headaches on and off for the past 5 days or so. Had the Moderna shot 12 days ago. Likely related to sinus issues but just thought it was worth...

1/5/2021 8:46 AM

Ulcerative Colitis
OT Covid vaccine

I am in a workplace where 150 people received the Moderna vaccine 10 days ago. I experienced a sore arm at the injection site the next day. I took a long nap the day of the vaccine as well. To my...

1/3/2021 7:11 AM

Ulcerative Colitis
unusual neurological symptoms and UC connection?

I think if your symptoms aren't progressing and you aren't in pain then you probably don't have to do much about it. Depends on your comfort level. The first neurologist told me that "there is no...

12/24/2020 10:23 AM

Ulcerative Colitis
unusual neurological symptoms and UC connection?

I can't say whether it has progressed over time because of ebbs and flows. My neurologist said that further testing would not yield any results and I believe him. Even if they did all that would mean...

12/22/2020 12:54 PM

Ulcerative Colitis
unusual neurological symptoms and UC connection?

Hi Jane. I have suffered from odd neurological symptoms since I developed, and began taking medication for UC. I can say with relative certainty that my mesalamine medications make these symptoms...

12/21/2020 1:51 PM

Ulcerative Colitis
Flare very painful

The way I see it you have four options. You can wait it out on your current regimen, travel out of state for a scope and a shot at a biologic, take prednisone, or perhaps take a shot at some...

12/7/2020 7:11 PM

Ulcerative Colitis
swollen colon

Inflammation in the colon can cause weird stuff higher up in the digestive system. Trapped gas etc....

12/7/2020 6:46 PM

Ulcerative Colitis
The Devil We Know

Just to hand-wave all documentaries on Netflix as not trustworthy is not the way to go. Here is the study on residents of the Ohio River Valley where Dupont dumped water runoff from production of...

12/6/2020 6:49 AM

Ulcerative Colitis
The Devil We Know

Anyone seen this documentary? In the largest study ever on a polutant in a human population, C8, a chemical used by Dupont in teflon, was proven to increase incidence of Ulcerative Colitis (among...

12/5/2020 7:13 PM

Ulcerative Colitis
Struggling with SCD

Sarah the IBD-AID diet is a slightly more liberal version of SCD. It allows occasional sweet potato, oatmeal (any time), and tamari (soy sauce) in addition to other SCD foods....

9/27/2020 5:20 AM

Ulcerative Colitis
Japan's Prime Minister resigns due to UC

Very interesting. Now I want to research this more....

8/30/2020 3:12 AM

Ulcerative Colitis
Struggling with SCD

I lost a ton on it as well and looked sickly. Sweet potatoes and oatmeal should be fine to add in as they were added into IBD-AID diet. Check your calorie intake using MyFitnessPal app. It's not...

8/23/2020 1:19 AM

Ulcerative Colitis
No Medications are working for my UC - looking for advise

I agree with others that some form of elimination diet may be worth a try. If you have failed all therapies and still have severe UC your next option is surgery to remove the colon. Before doing...

8/18/2020 3:23 AM

Ulcerative Colitis
SCD Recipes

Buy Paleo cookbooks. Most recipes will be SCD compliant. Good luck....

8/14/2020 12:25 PM

Ulcerative Colitis
Ulcerative Colitis and Prostatitis

I have had urinary problems here and there all through my late 30s. My urologist is terrible and just offered flomax after a 15 second discussion. You should develop a relationship with a good...

7/28/2020 2:52 AM

Ulcerative Colitis
Can’t Find Someone To Drive Me To/From Colonoscopy. Any options?

If it was urgent I would just like then get an Uber. Otherwise I'd postpone....

7/28/2020 2:45 AM

Ulcerative Colitis
Oral Manifestation of Ulcerative Colitis

I have no input other than sharing my dentist suggested peroxyl mouthwash for a bad (likely UC caused) canker sore years ago and it sped healing. It provides mild pain relief as well....

6/8/2020 10:56 PM

Ulcerative Colitis
B12 Dificiency

Hey Impala. We spoke a while back and had similar symptoms. I was diagnosed with fibromyalgia by my neurologist but I don't buy it. I've found three things in my own experience that effect my nerve...

6/8/2020 10:41 PM

Ulcerative Colitis
WANT URGENT HELP ASAP ! Pain in chest for almost 6.30 hours now.

Do not eat anything after 5pm. Elevate the head of your bed 7 inches. I take famotadine 40mg before bed and Omeprazole 10 mg in the morning. Both are available over the counter. I find eating or...

5/20/2020 3:31 PM

Ulcerative Colitis
Is this perianal abscess and what should I do

They need to have something to incise so waiting is likely the best approach. I had one years ago and it developed over the course of about 5 days. I would just set up an arrangement with the surgeon...

5/14/2020 2:51 AM

Ulcerative Colitis
Mesalamine and Covid

Seems prone to bias. For example, if a prominent physician suggests mesalamine may be a risk factor, other doctors will be more likely to confirm that hypothesis....

4/27/2020 5:55 AM

Ulcerative Colitis
Mesalamine and Covid

I believe the data collected for this site is self reported by doctors (who are aware the site exists). It is not randomized in any way that I can tell from quickly reading. A doctor is not going to...

4/26/2020 1:05 AM

Ulcerative Colitis
Itchy skin and funny smelling skin oil

Delta I have taken Diflucan on two occasions but the infection just returns once finished. My GP doesn't approve of me taking it... not sure exactly why. Second time it caused upset stomach so I will...

4/19/2020 9:59 AM

Ulcerative Colitis
Itchy skin and funny smelling skin oil

Wow what a crazy illness this is. I now see why you think a trip to the dermatologist is pointless especially with the connection to bms but perhaps it's worth a telemedicine conference. It's...

4/19/2020 3:40 AM

Ulcerative Colitis
Mesalamine intolerant?

Sorry for your difficult situation. If you trust your doctor I would follow their advice here. Realize you can reduce your chances of contracting COVID greatly by taking precautions like aggressively...

4/16/2020 3:38 AM

Ulcerative Colitis
VSL #3 or Florastor

It is not known whether the current VSL#3 formula is the same as the original. I thought they discontinued it due to lawsuits....

4/13/2020 2:44 PM

Ulcerative Colitis
Anyone have success with Plant based diet?

Here's the study. It's smaller than my memory led me to believe but hey, it's something. For Crohn's, not UC. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2877178/...

4/9/2020 10:53 AM

Ulcerative Colitis
Safe to volunteer?

Any personal interaction risks spreading the virus to yourself or others. That being said, if it is essential that you volunteer for others to eat, then the risk is probably worth it. If you are just...

4/9/2020 10:36 AM

Ulcerative Colitis
Anyone have success with Plant based diet?

I think a plant based diet is a great idea, especially one based on whole (unprocessed) foods. There was a Japanese study with Crohns where PBD was used to maintain remission with near perfect...

4/8/2020 5:03 AM

Ulcerative Colitis
Canker sore very slow to heal

Are you using a mouth rinse? Peroxyl or orajel can speed healing....

4/8/2020 1:33 AM

Ulcerative Colitis
Healthcare providers with UC and COVID

I am currently on the front lines as a first responder. Everyone is scared. I feel like every shift takes months off of my life due to stress but this is what I signed up for. I don't believe you...

4/3/2020 4:13 AM

Ulcerative Colitis
I have corona

Just be prepared that sometimes anxiety meds can make you feel worse before you feel better. There can be an adjustment period, depending on the med and the person. As long as you are expecting it...

4/2/2020 1:28 PM

Ulcerative Colitis
mental problem

Exercise helps...

4/2/2020 4:33 AM

Ulcerative Colitis
I have corona

I suggest picking up the telephone and reaching out to those you may have lost touch with over the years or calling close friends and loved ones several times throughout the day. In several weeks you...

3/28/2020 2:03 AM

Ulcerative Colitis
Have both Corona and Pnuemonia

Soon to be 4 time champ...

3/27/2020 4:02 PM

Ulcerative Colitis
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