Dr Remzi fixed my jpouch...
Hi I could answer in German but this forum is mainly English I'll keep it in English. I don't have experience with it. I take ubrelvy for my migraines and it seems to help. It doesn't make me flare....
Nicotine patches didn't help me at all. But I'm sure my mom never got colitis because she smoked her entire life....
I had it after a lot of my surgeries and it was fine. I always indicated that I cannot take NSAID so I assumed it was fine. And it was...
I've been on azathioprine for 15 years or so, no side effects except nausea in the first 3 months. It's my life line and I went back on it after my colectomy to control joint and other types of...
I have only experience with NYU langone and they were awesome. I had my 2nd 3 step jpouch surgery/redo there and they were fantastic. No clue about osteoporosis though...
They refuses to give me rejections or infusions and I had to take Boniva...
I was lurking and I saw you had your surgery! Congrats! I hope you're recovering well. I'm sorry to hear about your dad passing. I'm on reddit.com/r/ostomy for support. I don't have a stoma right now...
HI Miranda I hope it all went well...
They gave me a different betablocker lol I haven't started it yet. I'm coming out of the flare though so that's good...
I have no advice but when I was around that age, I was also very skinny (43 kg at 165 cm height) and even though colitis hasn't treated me well, with time things got better. I'm at 55 kg right now,...
I was supposed to have my appointment this Monday but my cardiologist caught covid and had to reschedule. I hope we can find something else because for the first time in my life I was able to shower...
Sara I'm so happy you're in remission. Keep doing what you're doing and I hope you'll never flare again....
Well my problem is different. I have been fainting whenever I stand since I was 11 years old. The betablocker helped because the way my cardiologist explained it, my heart is supposed to go faster...
Planning to once I go to my appointment. As this point I've been fainting for so long that I'm used to it 😅...
I already tried it twice. The same thing happened the first and second time. I don't want to flare again....
My appointment got rescheduled so I couldn't ask. However I have dropped the betablocker and I no longer feel like I'm flaring. My ulcers are healing and I'm no longer incontinent....
I'm on my trusted Imuran 100 mg and I recently added Atenolol 25 mg. I initially went to the cardiologist because of irregular heart beats. He was more interested in me fainting all the time and...
I haven't been around because I'm doing well haha I got diagnosed at 17 and I'm 37 now...
Well I do but I also don't have UC anymore lol I just like to sleep through the night so I finish eating early...
I don't trust third party apps that much so I keep track in a sheet on my phone...
I was on them for 2 years and not just once Minnie, I hope you've had a dexa scan...
I flared as soon as I increased my dosage of azathioprine and subsequently went off of it...
During my last flare I ate whatever I wanted because it made no difference...
I don't believe reviews online anymore. My surgeon had excellent reviews and he botched me. I'd just see a few gi and see if I get along...
For depression and anxiety I take John's wort. It's over the counter. I've always had depression and anxiety and after every surgery it got a lot worse. After my last surgery I took John's wort and...
Got my iv fluids and I'm better...
I don't want to go. I will try and sit this out. I ordered a iv online and they will come tomorrow. Cheaper than ER and I get to stay home...
I was bullied and tortured in school. As soon as it all ended my flare started...
I can't chime in I had 7 surgeries...
I woke up last night with a lot of nausea. I'm unable to drink fluids. I'm going to deyhrydrate. Had Zofran and doesn't help. What do I do...
Haha thank you...
I couldn't sit after surgery and it was because of ulcers and a twisted intestine...
When I got remicade they gave me benadryl and prednisone to prevent a reaction and kept me there for a long enough time to see if I'd get a reaction. OK that was more than a decade ago but don't they...
Hi my jpouch is working well too and today I tried a new food and cried little happy tears. I agree the jpouch is not the end of the world...
I almost never see blood except when it's around the time of the month I go ~6 a day With the colon gone they're shouldn't be blood imo...
Yes I got my jpouch fixed in New York. Previous surgeon left my rectum and twisted my jpouch...
My UC is definitely hereditary. My uncle and a great grandfather had it. I was sterilized with my jpouch repair last September. I will not pass this on....
NCOT I'm glad you responded. We we're worried about you. I'm sorry you're going through all this. Please keep us updated....
There's an address in her profile. Have you tried that?...
Let me tell you my experience with imuran. I'm not allergic. And I'm back on it after 7 abdominal surgeries including a colectomy. Here's why I was on 100 mg consistently. I was in remission. Over...
https://www.bionicsinstitute.org/news/a-world-first-device-to-treat-inflammatory-bowel-disease?gclid=Cj0KCQiAybaRBhDtARIsAIEG3knrQQukqbfsRlQAxYYHK-qF3lBVU-QKICFYC6I94EV4ParIvpitAKYaAhuEEALw_wcB Live...
Yes I'm on Imuran...
I went to the best. Dr Remzi...
I finally upped my food intake to 3 times a day and life is good...
My surgeon suggested I take a biologic after I had my colectomy. I told him the reason why I had a colectomy was because no biologic has worked...
Moon face is temporary and will go away. Osteoporosis however is permanent. Please take calcium...
I was literally pulling up her email but haven't send anything...
My uncle and my great grand father (?) had it. I got sterilized...
Hi NCOT, any updates? Also did you ever get your Euro passport? Unrelated, but are you currently writing a book? Cheers...