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CCinPA

HealingWell Forum
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Member Profile
Display Name
CCinPA
Profile Created
12/30/2014 4:30 AM
Last Seen
Yesterday 11:23 AM
Total Posts
1550

Last 50 Posts

COVID Vaccine

The biggest health group where I live opened a website today to sign up for appointments to get the vaccine for age 65 and up and those with a variety of co-morbidties (including being on immune...

Yesterday 11:19 AM

Ulcerative Colitis
Epstein Barr virus and autoimmune disease

I can't say I understand what this is saying so hopefully one of you more scientific folks can explain it. From what I can understand there seems to be a link from having had Epstein Barr (mono...

1/15/2021 4:50 PM

Ulcerative Colitis
antibodies and the covid vaccine

That's good, 3tc! Nice to know that the antibodies are lasting longer than what I had read....

1/15/2021 4:11 AM

Ulcerative Colitis
Vent about knowing our bodies

I've never had a nurse do anything like that. Her job is to give you the medicine that you and your doctor agree on. Period. Since Xeljanz is completely different than other biologics I don't see why...

1/15/2021 4:05 AM

Ulcerative Colitis
antibodies and the covid vaccine

3tc ... do you know if you still have antibodies?...

1/14/2021 6:12 PM

Ulcerative Colitis
COVID Vaccine

Where do you live? I checked with my PCP and pharmacy last week and they didn't know when I could get it ... they said "maybe March". Keep us posted....

1/14/2021 3:40 PM

Ulcerative Colitis
antibodies and the covid vaccine

Covid is so new as a disease and the vaccine even newer I don't think anyone knows how long the antibodies will last yet. I have read that if you had Covid they think the antibodies last 7 months,...

1/14/2021 3:38 PM

Ulcerative Colitis
Question about considering Entyvio and vaccines etc.

I loved Entyvio. I was 100% normal for the first time since I had been diagnosed 3 years before. I was very bummed when it stopped working for me after just a little over a year. Many people get...

1/14/2021 3:23 PM

Ulcerative Colitis
Question about considering Entyvio and vaccines etc.

I got the shingles vaccine before I started Entyvio. Once on a biologic we aren't supposed to get live vaccines. I get a flu shot every year....

1/14/2021 3:20 PM

Ulcerative Colitis
Feeling terrible

If your dosage is 5 mg/kg of inflectra then for 175 pounds your dose would be 400 mg, 160 pounds would have been about 370 mg. I doubt that difference would affect you much since the max dosage is 10...

1/7/2021 6:05 PM

Ulcerative Colitis
OT Covid vaccine

I checked with my doc as to when I would be eligible to get the vaccine and he said they have no info at this time and suggested I contact a pharmacy. The pharmacy didn't have any info and said...

1/7/2021 11:12 AM

Ulcerative Colitis
Where's Keith??

Both he and Sarah disappeared around the same time. I just assumed they got booted because of arguing, but I also thought they were just in time out and would be back. It's been so long now I wonder...

1/7/2021 11:03 AM

Ulcerative Colitis
OT Covid vaccine

I don't trust any info from China on this virus. China says they have only had a total of 95,944 cases and 4782 deaths. Pennsylvania has higher numbers. As for the other stats ... no one knows who is...

12/31/2020 1:02 PM

Ulcerative Colitis
Pain & infection 1 years till now

From what you have described it sounds like you might have an obstruction since you can't eat or drink anything without vomiting, are in pain and feel bloated & swollen. I think you should get to the...

12/23/2020 6:18 AM

Crohn's Disease
OT Covid vaccine

I read that there is another new strain in South Africa that affects younger people more. The new strain in the UK is more contagious. Let's hope that those 2 mutations don't join together. Unknown...

12/20/2020 4:27 PM

Ulcerative Colitis
OT Question about Covid vaccines

I just had a doctor friend tell me that the vaccines don't necessarily prevent infection with Covid. The 95% rate was that they are effective in preventing serious infections -- they didn't track...

12/10/2020 10:29 AM

Ulcerative Colitis
After 20 years - how often do you c-scope?

That's good scope news!! Congrats!...

12/10/2020 10:27 AM

Ulcerative Colitis
OT Covid vaccine

I just had a doctor friend tell me that the vaccines don't necessarily prevent infection with Covid. The 95% rate was that they are effective in preventing serious infections -- they didn't track...

12/10/2020 10:24 AM

Ulcerative Colitis
Stelara

I don't know much about Stelera, but this is just the beginning of December so at the most you have been on it for about 4 weeks. You may need more time. Have you asked your doctor how soon you...

12/3/2020 5:50 PM

Ulcerative Colitis
OT Question about Covid vaccines

Thanks, Suzi -- I will check out the FDA Jane -- that is a huge number of people in the vaccine trials! Surprising that meds can get approved after testing on just 150 people. Pretty scary actually....

12/3/2020 5:43 PM

Ulcerative Colitis
OT Question about Covid vaccines

How do they know the vaccines work? Did they try to infect people? I ask because if people in the trials were still wearing masks, distancing etc how do they know that it was the vaccine that...

12/2/2020 4:58 PM

Ulcerative Colitis
OT - HAPPY THANKSGIVING

Happy Thanksgiving to you, too! (and everyone else too!!) Enjoy the day safely and know that by this time next year we will hopefully be back to normal. I am thankful for the internet that has places...

11/26/2020 11:20 AM

Ulcerative Colitis
OT Covid vaccine

I am not anti vax at all. Got my flu shot a couple weeks ago. The Covid vaccine was rushed, but by the time it's widely available a lot more will be known about it. If it's still safe in the...

11/19/2020 4:17 PM

Ulcerative Colitis
OT Covid vaccine

Iam -- that dr you mention hasn't worked at Pfizer for 9 years. I don't know why all the hospitals are getting overrun with false positive Covid patients ;) You lurk in some very questionable places...

11/18/2020 4:18 PM

Ulcerative Colitis
OT Covid vaccine

Does anyone know if the current leading vaccines in the U.S. (Pfizer & Moderna) are live vaccines? Those of us on biologics aren't supposed to have live vaccines so I have been wondering...

11/18/2020 5:26 AM

Ulcerative Colitis
Metamucil shortage?

Wait ... you are in Canada so not sure if they ship there...

10/20/2020 3:55 PM

Ulcerative Colitis
Metamucil shortage?

Have you tried ordering from Walmart? I just checked and seems like they have a lot of options for Metamucil available for delivery...

10/20/2020 3:55 PM

Ulcerative Colitis
Frustrated!!!

You could try hydrocortisone enemas. They work pretty fast for me. I think I would ask to get another c diff test to make sure it's really gone (sometimes there are false negatives) and then try...

10/15/2020 10:19 AM

Ulcerative Colitis
Advice please

A dance class means that people are likely breathing hard so they will spread aerosols further than 6 feet. Since this is indoors all it will take is one person to be infected (even if they are...

10/15/2020 10:07 AM

Ulcerative Colitis
Onto Humira

4 weeks will just be your 2 loading doses plus 1 regular dose. If 40 mg of pred for 2 months hasn't shown any improvement I have my doubts that you will see improvement from Humira in just 1 month....

10/6/2020 2:25 PM

Ulcerative Colitis
Humira fail?

Some people get better response from weekly injections. Didn't help me at all. We went to Remicade after Humira and it was a dramatic difference. Some people say if you fail 1 medication in the same...

9/21/2020 4:17 AM

Ulcerative Colitis
Fibrosis in uc

Isn't fibrosis just scarring? You get it when you have had long term inflammation. I never heard that it causes bleeding though. Do you have other symptoms besides seeing blood? Did they do a test...

9/17/2020 10:04 AM

Ulcerative Colitis
Changing from Cobra Insurance to family insurance. What covers Remicade?

What is a "family insurance provider"? If it's private insurance that isn't on HealthCare.gov it could have all kinds of limitations to coverage as I think there are plans out there that are no...

9/17/2020 9:59 AM

Ulcerative Colitis
Continue Remicade or move on?

For now we are just going to stay with Remicade at 10 mg/6weeks. He said if things get worse the next drug he recommends is Xeljanz. He said this may be what my new normal is....

9/5/2020 8:40 AM

Ulcerative Colitis
Japan's Prime Minister resigns due to UC

I am glad he is able to afford to resign. The rest of us usually aren't able to do so if for no other reason that we would lose our health insurance (in the U.S.). I hope his new treatment gets him...

9/5/2020 8:35 AM

Ulcerative Colitis
Entyvio

Sounds like Entyvio has helped you. It's pretty slow acting so can take a while to completely get to remission. As long as you are seeing improvements week to week (rather than day to day) and aren't...

9/5/2020 8:27 AM

Ulcerative Colitis
stomach acid and diarrhea

I have heard that using steroids if you have a pathogen or infection can make symptoms worse. Have you had stool tests to rule out pathogens? Not a good idea to suddenly stop oral steroids. What dose...

9/5/2020 8:21 AM

Ulcerative Colitis
Japan's Prime Minister resigns due to UC

https://www.youtube.com/watch?v=Z50iEpxDWkI Wowser...

8/28/2020 3:31 AM

Ulcerative Colitis
Continue Remicade or move on?

I thought the same thing poopydoop. I wondered how so many people get that test all the time. I will check on that again....

8/28/2020 3:19 AM

Ulcerative Colitis
Early life antibiotic use and UC

Quincy -- sadly I realize that UC is forever. What I meant by "heal from overuse" was is there a way to prevent more damage and for non UC peeps to mitigate the damage from antibiotics? I suspect...

8/25/2020 2:15 PM

Ulcerative Colitis
Continue Remicade or move on?

Thanks everyone. Seems to be a general consensus to stay with remi. That's what I was thinking too. I was in really bad shape before I started remi -- severely anemic (had to get blood & iron...

8/25/2020 2:07 PM

Ulcerative Colitis
Early life antibiotic use and UC

I had been on numerous antibiotics during my life. The year I was diagnosed it was 3x! So how do you heal from overuse? I have used probiotics many times and never saw that they helped or hurt...

8/24/2020 10:09 AM

Ulcerative Colitis
Continue Remicade or move on?

I have been on Remicade since March 2019. Doc moved me to 10 mg/6 weeks on August 2019 since I wasn't in complete remission and my levels were on the low side of being ok. I have never been in what I...

8/24/2020 10:01 AM

Ulcerative Colitis
CT scans results good and bad.

That has to be a very difficult thing to face. My sister had lung cancer. With aggressive treatment I think she lived about 1.5 years after diagnosis (stage 4), but she didn't take care of herself at...

8/19/2020 3:11 PM

Ulcerative Colitis
Azithroprine (Imuran) or 6mp

Aza & 6mp are similar meds. Both take 2-3 months to work and are for long term maintenance. Usually people use prednisone as a bridge until they kick in. I believe you were on prednisone or Uceris....

8/19/2020 2:52 PM

Ulcerative Colitis
Switching to Xeljance

Spring, Since you have antibodies to the entyvio I would suspect that any reaction you are still having should be gone pretty quickly. How are you feeling now? From what I have read here Xeljanz...

7/13/2020 3:53 PM

Ulcerative Colitis
Inflectra Levels / Increasing Dose

It's the low end of the range. I think mine was around that and because I still had mild symptoms we increased the dose to 10 mg. I have read that many in complete remission are in the high teens or...

6/27/2020 10:43 AM

Ulcerative Colitis
Affordable Care Act

As long as you can qualify for the subsidies on the ACA you should be able to get a good policy that covers the drugs you need at an affordable price. If you make too much money to get the subsidies...

6/26/2020 3:32 AM

Ulcerative Colitis
anybody taking STELARA

KLC ... that's great news! I hope it works for you for a very long time!!...

6/16/2020 3:55 PM

Ulcerative Colitis
Is Remicade being used anymore?

I am still getting Remicade (started last year). Hope my insurance continues to cover it because it took me too long to get where I am now and I don't want to rock the boat!...

6/12/2020 12:05 PM

Ulcerative Colitis



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