Thank you. Yes, I had a bad few days but much better now. They are doing an antibody test the day before my next infusion....
What does non responder mean? Are you talking about anitbody stuff? It healed me wonderfully for at least the last 6 months. Haven't felt this good in years. Scares me to think it won't work....
Hello. I have been on Remicade injection ----100 mg/10 mL---- since April or May. Overall doing really well. Had last infusion last Friday. I started to have blood in my stool 1 day later with...
I have been on Remicade since April due to a bad flare and a horrible bout of Yersinia at the same time. Do Well however noticing significant hair loss. It is freaking me out. There are some...
Thanks for the info. Yes I think historically I tend to get this low-grade fever’s even with slight flares. It’s really weird....
I think for me will you see symptoms I can tend to run these low-grade fever’s. It might be a cold also. Just feel really drained and sick-ish...
I continue to be feverish. Right now low temp of 100. Also really fatigued....
Hello. I am wondering if anyone else on here it gets low grade fever’s with UC. Since this flare in for months I will have fevers from 99.1 to 100.2. It feels at times like I just hit a wall. I...
Or fat pieces possibly?...
I am now thinking it must be the prednisone. It is weird because i am tired and wired at that the same time....
is it mucous?...
Also beautifully stated. I need to copy these last two posts because they are so full with beautiful information. I am extremely fatigued right now. I just started Remicade and have been doing the...
Thank you. I’m trying to figure out what works and doesn’t. I am hoping that sometime I can enjoy small amounts of dairy and some gluten....
I think prednisone also to get it under control. I am currently in 40 mg from a bad bloody flare....
Hello. Last Friday they decided to start me on Remicade after my colitis flair and food poisoning with Yersinia. At the time of the infusion I did not have any troubles. I am now noticing fatigue,...
It is interesting when you look at the studies how these plant based foods when really well cooked actually reduce inflamation. The cooked fiver seems to help push out the toxic allergin type foods...
I would love to see that study. I wonder why more docs dont suggest it?...
Thank you everyone. This is very reassuring. About how long will it take to notice effects. I think they will continue me on predinisone for a bit....
Because of being so ill these last 3 weeks I decide to try a diet my friend whois an RN and dietician suggested. It is Dr. McDougals plant based diet plan. Has anyone had any success. I think I can...
Thank you so much for your feedback. In regards to the Yersinia I was so very ill that they ended up giving me an antibiotic. They did another stool study and it was gone . Thank God....
Also, inthe last 2 weeks I have been doing Dr McDougals plant based diet. Is anyone familiar with this or have had success?...
2 weeks ago I posted about being in a flare and the getting a rare food poisening illness called Yersinia. IT WAS HORRIBLE and my colitis became much worse. I am now on 40 mg prednisone and they are...
Anxiety can easily create frequency. Sending you healing energy. I strongly recommend meditation. I work as a psychotherapist and mediation teacher. Think about getting on Insight Timer which is a...
Thank. I just read your reply to him. He said we have one he just didn't use it. Hard lesson learned....
Yes- Pork has very little appeal to me now. I hear it is like having appendecitis for weeks....
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Oh good. That is reassuring....
Not sure about the testing. They haven't said. Are you thinking a colonoscopy or blood tests?...
YESSSS-- and it happend. So Thankful I did not take that flight to Alabama. Just diagnosed with a rare infection that is messing up my whole system. See my most recent post on here....
I am amazed at all the wonderful responses. If you read a post of mine form today you will see how very blessed I did not go to Alabama. I have become very ill with a very rare bacteria. What an...
Yes, I have read a lot of info on this. We think we have figured out the source. I very rarely eat pork. My husband did make marinated pork tenderloin 1.5 weeks ago. As we reflected on it I recalled...
Hello. So I was struggling with a flare- not on any meds since I just got off Entocort EC. They tested for C DIFF and they discovered I have Yernisia. https://www.cdc.gov/yersinia/index.html Each day...
Thank you. That is helpful....
I work the Mayo Clinic in Eau Claire, WI. I think I will say something to our manager tomorrow. Some of the hugs are very normal under normal conditions. This is just really concerning me. The good...
Thank you for all the responses. I haven't been on here for a few days. it seems so.e thought I was in Lialda. I stopped Entocort EC which is an immunosuppressant. I am 80% sure we will be staying...
I am currently on Entocort EC. stopped taking it yesterday. It is not workng well....
I am wondering if it is safe for me to fly. I am on Entocort EC but am stopping as of today. It isn't working well. No diarrhea. Blood, mucous amd some constipation due to some meds. This is our...
This is so interesting. I have had tinnitus for some time ( with it getting worse now that I think about since starting lialda 2 years ago. I have just started Entocort EC. It will be Interesting to...
I have been on it now for about 5 days. I am noticing some cramping on my left and right side. It may be related to diet too over this Thanksgiving holiday....
Thanks. it was so long ago that i don't recall side effects. Sarah14- where in WI did you grow up? This helps. I will start the meds today. Annie...
Hello. I have prescribed Entocort EC. Years ago I took Entocort with success. I am concerned however about some of the side effects. I am especially concerned about weight gain and many other...
Wishing you ease in your recovery. I hope you figure out what those symptoms are about. it sounds really really frustrating....
Thank you all. I am on prednisone now to see if that can help get control. if not they will do some testing. I appreciate the validation and support you all supply. Much gratitude....
yeah, i know ibuprofin is a no no but i couldnt walk due to bad bad bursitis in the side of my knee. i hafe asking for tylenol 3. I have been able to excercise at time because i tend to get bloody...
Hello. So, I am pretty sure I am in a flare . I have lots of pain stuff due to EDS and broke down and took some ibuprofin. I have now noticed that I am having darker blood with mucous and a continual...
I don't have Pylori. I first read it as if i do but o don't. I feel so horrible today. I do have moderate colitis in the rectum and Pylori in the gut. I have never felt this sick after a procedure...
No blood test. They have queationed chrohns in the past. Thanks for the reply....
Hello. Today I had a follow up colonoscopy and an endoscopy I was hospitalized About a year and a 1/2 ago for pancolitis. Today I have moderate inflammation in the rectum area. And today they Found...
Thanks again. The ideas and advice here are wonderful. Like no other site i know. I will call my PA tomorrow and ask about planning. I know they did say if there is any sign of flare if they do a...
Thanks a ton. My PA states the Doc I saw prior to the diagnosis of Pancolitis recommends the 1-2 years but the DOC I changed to ( now questioning that move- I can change back) is much more...