I'm sure lots of possible things can cause infections like that. You'll probably never know. For now, don't worry and just focus on healing and feeling better....
And that's why I say the mental hurdle is the hardest to jump. Often fear means a misunderstanding of something. Can you horseback ride and be physically active with a temporary ostomy or a completed...
I would not worry. Healing isn't a linear line from flare to remission with daily progress. Rather it's more like a rollercoaster ride full of surprise rises and sharp drops. Look at week-to-week...
Have you tried methotrexate? It's typically a Crohn's med but can be tried for UC patients who have a history of adverse reactions to 6MP. Xeljanz and stelara are both fairly new for UC, so there...
I was in a similar situation, a long term remission on 6mp and remicade simultaneously. Doctor said quit 6mp cold-turkey. I decided to drop my dose more slowly over about 8 months. Taper a bit, hold...
I've been in a remission 8 years on remicade, no side effects and not any more sick than my normal. We've had a few posters who've been on remicade since the initial clinical trials back in 1999,...
That's a tough one. Certainly risky to rock the boat, but also awful to have a limited quality of life with lingering symptoms. A few different options: Continue taking remicade and add a thiopurine...
Sorry to hear that you're struggling. I'm not really sure on that one, many things could cause it. Regarding the poster, Kazbern, that you reference, he/she hasn't posted here since 2017 and no email...
Bumping this back up for more attention. Not sure, a complicated scenario and I'd defer to a colorectal surgeon with more familarity with your case history....
I would assume IVIG is off-label use for UC. Nonstandard treatments are harder to get prescribed by gasteroenterologists and approved by health insurance. You have better luck if you've failed...
The highest dose of mesalamine I've been prescribed by my gasteroenterologist is 4.8 grams orally, and two 4.0 gram enemas daily. That's a grand total of 12.8 grams mesalamine daily. It's very...
Welcome hailey, and I'm very glad you've been doing very well over the long term! Today, are you on any meds, supplements, or diets? Certainly, a big change like going off to college can worry us,...
Remicade and azathiopurine are a common combination used over the last 20 years. I was on remicade and 6-mercaptopurine together for about 6 years without issues or side effects. I too was initially...
There's a blood test for antibodies your immune system can create against remicade which your gasteroenterologist can order. Possible it's not remicade too. Skin conditions can pop up like eczema or...
Most are candidates for a j-pouch and don't have a permanent appliance/bag. Have you got a DEXA bone density scan recently? Pred is bone wasting......
There's no tapering required for budesonide. It's a 90 percent topical steroid, so no systematic immunosuppressive element. Typically you take budesonide for 8 weeks then quit cold-turkey. Many say...
Oops autocorrected. Shire makes the brandnamed lialda and a generic lialda with the same pill code, they look identical. Only the bottle is different. Likely off if the same assembly line. Mylan, and...
Welcome back Deacon Blues. 40 mgs of Pred for 4 years isn't good. Any reason you haven't gotten a colorectal surgery rather than have long term steroid dependency?...
The generics feature the same dosage, 1.2 grams per pill, and once a day administration. The rest is different in the generics. Different coating, different inactive ingredients. As an example wet...
Merry xmas and happy holidays...
Common to take an oral mesalamine (balsalazide) and an mesalamine enema together. It's the recommended treatment, treat from both ends produces the best results. No adverse interactions. No worries....
You can get generic sulfasalazine for $20 a month even if you had to pay 100 percent out of pocket for it. Here's a link to the prices of the various mesalamines https://m.goodrx.com/aminosalicylates ...
Sorry that's awful. Certainly do insist on strong meds like biologics to control your flare. Whatever you were treated with before was far too weak....
There's no link with mesalamine and neurological conditions. Randomly hear about UC patients suffer with neurological issues over the years and the meds they are on vary wildly (a biologic,...
A low residue diet is generally recommended for those of us flaring. As flares narrow the inside diameter of the intestines and leave them raw and bleeding, fiber is bulking and abrasive (two things...
You get the same amount of mesalamine delivered to the large intestine, just through different means. Most gasteroenterologists and pharmacists will say there's little if any difference among the...
You can slowly taper off of imuran over 6 months or more. If things get worse then increase the dose again. Not sure your pill dosage, but you can drop by 1/2 a pill at a time, as an example....
Read about one of our crohn's friends who got the Pfizer covid vaccine within the UK. The text of her post and a link follows: I've had the Pfizer/BioNTech COVID-19 vaccine! Hi all. I (F 29) have...
When we're inflamed in a flare, we can get extra-intestinal manifestations. Most common is joint pain elsewhere in the body. Usually in the big joints of the extremeties, back or hip....
A few drops of blood mixed with diarrhea or toilet water can look like a blood bath. It can be a bit deceiving and cause a lot of anxiety and panic. UC is characterized by small, almost microscopic...
If a biologic gets you in a sustained remission, then you'll likely taper off of the mesalamine. As usually gasteroenterologists keep us on only the strongest med for long term maintenance treatment....
If you don't get an initial response within a few weeks time, things get worse, or you're suffering too much, then you might need a stronger medicine. Often a form of corticosteroid is used in oral...
Patience. Mesalamine is a mild anti-inflammatory medicine that might take 2-4 weeks to begin showing an affect. It might take 1-3 months to feel normal again. Some trial-and-error in treating us, so...
Seems our outcomes (all IBD patients regardless of meds) is better overall. We also have a lower mortality rate, even after adjusting for age (as IBD patients tend to be young). We're not invincible,...
Have you had any fasting blood sugar tests? I ask as type ii diabetes can cause tingling within the extremeties (we're at higher risk thanks to Pred). Peripheral neuropathy is infrequently mentioned...
An interesting one, they checked blood serology for IBD patients on biologics to check for exposure to covid19 (presence of Antibodies against covid19). 58 percent who had been exposed had zero...
That's the most difficult question in the game show, for $1 million dollars: Is it a hemorrhoid or a flare? You can get a Calprotectin stool test or C-Reactive Protein blood test to check for a...
Most over the counter cold and flu treatments are fine for us. Just make sure they contain tylenol/acetaminophen and not an NSAID. Most are tylenol, like NyQuil and generics of it....
Please be nice here as well. If this turns into a flame war than it will be locked. In the end, you either take the vaccine or you don't. You can either trust that ample precautions were taken or...
Happy Thanksgiving to our USA posters (at least I don't believe other countries celebrate). Enjoy the day off and stay safe! I know they're asking people not to travel and be in large gatherings,...
Can you please advise on the brand names for whole milk and whole yogurt ? Is it plain or flavored? Do we need to pick lactose free? Ditto listen to your body. I'm fine with gluten and dairy, so not...
Age and biologics risk is a good conversation to have with your gasteroenterologist. If there's additional risk, I'm not really sure how much. There's risk in being undertreated and flaring over the...
Has anything changed? Like you're now taking a higher dosage than before? Please mention this to your gasteroenterologist if you haven't already....
Read Pfizer is mass producing the vaccine before it's certified for emergency use. Good as there will be vaccine ready for use when certified. My state expects to receive tens of thousands of doses...
Yes, the data does pique a lot of questions which I wish I had answers to. 90 percent topical, anti-inflammatory Mesalamine isn't protective against nor should it worsen covid-19. It's pretty strange...
Carbs is good for bulking up, breads, rice, pasta. I was able to put on weight with whole milk and whole yogurt too....
Welcome back! The covid-19 vaccine isn't live, and is fine for those on biologics. As far as IBD meds and covid19 outcomes go, this site has the known results: https://covidibd.org/current-data/ ...
Are you currently flaring?...
I'll gladly take the vaccine when approved. I could breath a heck of a lot easier knowing I had some decent immunity. Pfizer's vaccine was developed in Germany, not the mad rush in the usa that's...
Aza pills have no impact on WBC currently within your blood, rather it slows new WBC production within your bone marrow. Your body regularly clears WBC from your blood and then releases replacements...