I have the exact same diagnosis as you. I did both oral and rectal meds together which didn't tackle my flare, I added steroid foam to the equation and still no luck so I ended up on Biologics which...
Great, thanks. I'll take your advice and see how I get on. Thank you....
Thanks for the reply. So far 1-2 bms and formed. I take Psyllium Husk tablets, 6 a day but had been slacking a bit last week so last Friday when I had to strain to go to the toilet and saw blood I...
I started on a biosimilar medication to Humira at the end of June. After 6 weeks I was back to normal, no blood, urgency and normal stool. 2 weeks ago I was suffering from Costochondritis and the A&E...
Thank you for the replies. I agree UC is unlikely to be what killed him and maybe we will never really know. Obesity is a horrible condition, where I live if you are an anorexic girl there are loads...
Thank you for the replies and condolences. Whatever resulted in his death definitely wasn't helped by his weight, his mother had asthma when she was younger but he never suffered with it himself. I...
As the title says I'm not sure if my question can really be answered but I just thought I'd ask for my own mind if nothing else. When I was first diagnosed 3 years I was the only one in my family...
Anecdotally I can count on one hand the amount of times I've taken an antibiotic, can only remember one as a child. There can of course be different triggers for different people so who knows....
Thanks for the reply. Started to feel better on Monday so took my next single injection on Tuesday, felt OK for the rest of the day and Wednesday too but today I'm back to multiple BMs, back pain and...
I had my loading dose(160mg) of Idacio ( a biosimilar medicine to Humira given in Ireland ) 30th June, then an 80mg dose on 14th July and I'm due my regular 40mg dose on Tuesday. Didn't think I was...
Thank you iPoop, your post is very reassuring. Can I ask how severe your colitis was and what you tried before going on Remicade? I suppose personally I'm trying to weigh up risks and benefits; are...
This is a question I am asking myself at the moment. Flaring with Proctitis the last 6 months, upping my Pentasa had no effect, suppositories had no effect, steroid foam had no effect, Prednisolone...
Blood in my stool was my first symptom, 2 weeks later extreme nausea, survived on a bite of cereal or toast for 10 weeks, lost 20lbs, finally diagnosed with Pancolitis....
Had an appointment with my GI yesterday, she suggested I go on Idacio (Humira) which I've reluctantly agreed to as I'm not sure what else to do to get this flare under control. I must admit I cried...
I spoke with my GI 3 days ago and he suggested a fortnightly taper of 5mgs instead of weekly so I'm currently down to 20mgs as of today. Feeling a bit better too, left side pain is gone and down to 2...
Great, thanks. I'll ring my GI in the morning and see if I can get a script for some more Prednisolone as I won't have enough to taper down any slower with what I have here. Really appreciate your...
Thank you for the replies. What would be the next tier of medication if I did need to go up? Could some of the symptoms I'm feeling be caused by the taper rather than the disease? Things like an achy...
Apologies in advance for the long post: I was diagnosed with pancolitis in April 2017 age 37 after a sudden onset. I was treated with flagyl and budesonide granules for 2 weeks and was almost normal...