I was reading something about baking with cricket powder and how it helps mask the taste, perhaps it would be good added to a loaf of bread?...
I was eating an organic, WFPB vegan diet when I was diagnosed with UC, I don't think my diet could have been any cleaner but I still ended up with UC. I think diets work for some people, but not...
You see, do keep me posted. My husband has joked about buying cricket powder for a while and even if I don’t like it I’m sure he would eat it....
I wonder if cricket flour/powder would do the trick?!...
Still great info, thanks for sharing....
The raised heart rate could be UC but is most likely the prednisone. I agree that you might need to slow your pred taper down a bit but you should also call your doctor and let them know what is...
Check with your doctor, but I think it could be vax related. I had to reschedule my mammogram because it was too close to my second covid vaccine dose and they are known to cause lymph nodes to swell...
Sounds like you need a scope with biopsies to rule things out. I had all of your symptoms for months before things escalated and I ended up getting scoped and diagnosed with UC....
I have had both doses of the Pfizer, other than feeling tired after both doses and having a really bad headache after the second dose I was fine. I did cut my work schedule in half the day after my...
It really varies, it could work in a day or two, it could take a week or two. Indeed, prednisone is a beast of a drug and your done will likely experience terrible mood swings or “steroid rage”. Did...
I certainly understand not wanting to switch to something new. You could call around to other pharmacies and see if they can get it for you, I also called my insurance provider and they had a health...
Good that you have called for a follow up. Also ask for a medication refill until you can be seen. Even if all you have is UP, you may need regular medication....
I was not fully out of my flare when I tapered off the steroid enemas but much more stable so the rowasa was able to work more effectively. I am allergic to sulfites and have to use sfRowasa which...
I have used them many times over the years, I have been fine alternating every other day l, but if you are nervous, try using the hydrocortisone ones for two nights, then mesalamine for a night, the...
Congratulations!...
I second the colonoscopy and biopsy suggestion! There is no way to know without doing this test. Your symptoms sound just like what I was experiencing when I was diagnosed, but I could not say for...
I am sure the oily drops in the water are from the suppositories, I wouldn't worry about that at all. I would hold at 4000 mg of Asacol until all your symptoms are gone, generally lowering the dose...
I got my second Pfizer on Thursday (also on Imuran) and I was tired and had a terrible headache on Friday, but I took a Tylenol and felt much better. Completely back to normal on Saturday!...
Curcumin can act as a blood thinner, so yes, it could be making your bleeding worse. I have to stop taking it whenever I flare with heavy bleeding, but I take it regularly once the bleeding starts to...
@ Old Hat: Express Scripts is the bane of my existence! I'm sorry you no longer have a good pharmacy to go to, it does seem like all the independent ones are going and being replaced by Walgreens,...
Old hat, I am so sorry you haven’t been able to get a vaccine yet. I agree that the New York State rollout has been a challenge for sure. I live in WNY and got my second vaccine yesterday morning...
Yes, you can absolutely take them together. You may notice an improvement in your UC while on pred as well....
I second the possibility of it being anemia. I also experienced shortness of breath doing simple tasks when I was anemic....
I got mine on Thursday, I’m also on Aza. I was really sleepy Thursday afternoon and my arm hurt Friday but it is fine today. I also got the Pfizer....
I had my first dose on Thursday (Pfizer) and other than feeling tired that day I had no side effects. My arm was sore on Friday but it is 90% gone today....
I would use the enemas for sure, they will reach all of your inflammation if it is up to 25 cm. Pred will work, and likely quickly, but the side effects are brutal. You could do both or try something...
Excellent news!...
I noticed the same thing when I switched to Colazal. I upped my water intake and it has normalized. My doctor told me I would have to drink more water when I switched; I thought he was crazy but I...
I always struggle with the drop in pred, what I found helped me was alternating doses, 15mg one day, 10 the next, and then repeating that step once more before going down to 10. It adds a couple of...
From what I have seen most of the NY state run clinics had moderna. I have an appointment in early March since I also teach at a SUNY school and fully expect to get a moderna vaccine. Most of the...
This is the worst part of having UC! Anytime things are less than perfect that cycle of worry starts up again. It is the worst. I don't have any helpful advice because it is something I also struggle...
These medications are very expensive. We have a high deductible plan and have to pay out of pocket for e wry thing until we hit our deductible. That being said, my doctor’s office always gives me...
Hope it doesn't cause any major issues. My mother got hers last week and she was fatigued, had chills for a few hours, and vomited at one point but felt completely fine after sleeping for 14 hours!...
That's great news!...
Fingers crossed! Those rapid tests are not as reliable for sure. Hope you are feeling ok and get your next PCR test results quickly!...
I do think a plant based diet can help many folks with health issues, but sadly I was diagnosed with UC while eating a whole-food, plant based diet so while it may heal some folks, it certainly isn’t...
Oh you have had quite a difficult year! My condolences. Between the loss of your father, having a new baby while caring for another child, and having a spouse at work all day it makes sense that you...
I second the suggestion that this could be PPD and that you consider a new therapist if this one is not helping you. Don’t feel bad about looking for someone new, it can take time to find the right...
Merry Christmas and happy holidays to all!...
Did you drop from 20-10 with nothing in between with pred? That could be the problem. When I go below 20 I have to drop by 2.5 mg to keep the blood at bay....
My insurance won’t cover brand name lialda at all anymore. I was fine until my pharmacy switched from the shire generic to NorthStar’s generic. After a few months of ups and downs I switched to...
Congratulations on your new baby! I had c-sections with both of my children (pre-UC) and they really upset my digestion. I didn’t take any pain meds after I left the hospital except Motrin but the...
I take Life Extension super bio curcumin and Jarrow Curcumin 95, for some reason the life extension one gives me heartburn if I take it exclusively so I take one of each brand with every meal....
Me! I had a cecal patch with general inflammation to 24 cm when I was diagnosed and had the same redness near my appendix as well. It wasn’t there in my last scope, just sign of old inflammation to...
We are learning that having had covid doesn’t necessarily protect us from getting it again. My SIL works as a resident physician in a hospital in Georgia and she has now had Covid twice. Once in June...
That’s how all of my flare ups have been, the last being the worst. My last flare up I was passing blood with big clots every evening around 7:30-9 and it was borderline head to the hospital. In...
I would check with your doctor. Are you doing blood work? I would get horribly nauseated if I took it in the morning so I switched to taking mine at night with dinner. If I don’t eat a full meal when...
How much potassium are you eating? Have you had those levels checked? I would try limiting foods high in potassium and up your sodium intake for a few days and see if it levels out. I suggest you...
I had an appointment with my PCP today and she said no live virus in any of the current vaccines in development. The issue with the Pfizer one is that it has to be kept in deep freeze which limits...