2nd day felt a little sore all over, but am fine now. Sheesh....the trust we put in our government. LOL...
My wife and I both got our first dose of the moderna vaccine yesterday...due to age....I'm currently on Entyvio so I'll keep everyone informed as to my progress. So far, only a little soreness at the...
My GI doc got approval for me to begin Remicade in 1997. It wasn't approved for UC back then, but he's a great doc and a very smart fellow. I had NO reactions or side effects from Remicade until my...
In my case, it plays a BIG part. I have IBD as well as UC and if I'm under stress, it lets me know. I was having a terrible flare a while back and nothing was helping. The more I worried about...
Hi all, Have only been lurking for a while since I'm in remission!! I have a question about the covid vaccine and the theory of people building antibodies to it if they don't get the 2nd dose of the...
probably another 5 years! Funny how the big drug companies can pop out a covid vaccine in a year but it takes YEARS to get a UC drug approved in this country. Oh well....I suppose better safe than...
I was on Remicade for many many years...over 20, and never had ANY problems until I developed antibodies. I'm now on Entyvio and doing well. I will tell you that BlueCross/Blue shield made certain...
Hi everyone! Like Jen, I'm in remission so haven't posted in a while. I've had UC for 24 years and now have scope around the 2 year interval. Good luck and relax all ya can....
Most definitely prednisone will cause both weight gain, never feeling full after eating, and fluid retention. Also will give you shaky hands, sweats, acne, fuzzy vision and a fat, round, head! Good...
Florastor has been working great for me. Was drinking 8oz of Keifer daily but never really enjoyed the taste of buttermilk. I think most any probiotic with LIVE bacteria is good. Yogurt is also good...
Hi Cario….I was on Remicade over 20 years and did great until I got antibodies to it, then tried Humira...nothing bad, but didn't work for me. I've been on entyvio since last year and have been doing...
Go to your doctor, walk in clinic or emergency room. You could have pneumonia, pleurisy..especially with the fever!!! IF it is, you could do permanent damage to yourself by not getting it taken care...
Do as CC suggested. And NO...you are not as good as it gets....but be patient, take your meds, and you will get into remission eventually. All will be as good as ever for you hopefully. It has for...
I had my Entyvio on the 3rd of April. My doctor highly approved of my not missing it. No problems at all so far, and I am in a 'high risk' category due to my age and pulmonary damage. I DO wash my...
Andrina….I use a mortar and pestel. A food processor also works....
Fennel seed tea. LOL Grind the seeds first than make a tea of it just as any tea. Beano and Gas-X never did anything for me....but we're all different I guess. Good luck to you...
Hope you get MUCH better soon Champ. You've been through a rough time;so hopefully, you're on your way to being good again. Pneumonia alone makes you weak for quite a while. Take it easy but exercise...
I know...sounds dumb but....when I was have a TERRIBLE time with it, I tried fennel seed tea. You have to mash or grind the seeds for best results. Then just let it steep in boiling water until it's...
So sorry to hear this champ...best of luck to you, fight it and don't give up....
symptoms will go away when you're off of prednisone. Mine usually gets better when I bet below 20 mg. I HATE prednisone!!! Watch the eating...it will cause you to gain a bunch of weight. Plus, it can...
Make me.... I'm in the same 'boat' as you. Next Entyviois scheduled for April 3rd. Hopefully, they'll have it set up so I don't have to make a tour of the dang hospital to get to the infusion suite....
Maaaaan….I was almost totally confined to our house for the past two years due to being in a terrible flare and C. Diff. A little over a month ago, my doc got the right combination and I've felt...
yup, I've been on 90 a day and had sweating, blurred vision, 'pred.head'...couldn't focus on ANYTHING, oily skin, blood sugar went sky high, hands and legs felt like rubber bands....just ALL messed...
Sarah, I don't want to alarm you, but my wife had a heart attack after experiencing symptoms like yours. Turned out she had no blockages but she has an electrical issue with her heart. Don't let your...
I also began Florastor after having C.Diff. I've been just fine since. It did take two rounds of Vanco to get rid of mine. As Garyi stated....the test results could be determined much faster!! Best...
I must agree....insurance offer some crazy 'solutions' to our med. needs. I still think that the insurance companies should stick with insurance and not practicing medicine. Just my opinion...
Also suggest for him to drink plenty of water of fluids....
Good luck and don't give up on the Vanco. It took two courses for me, but it finally cleared. Have been taking Florastor probiotic since and doing well. Do as Sarah says and bleach EVERYTHING. LOL I...
I THINK....stress is the key. It certainly does a number on me. Since I've been taking Clonazepam and a good probiotic, I've been symptom free...something I was afraid I'd never see again. Ask your...
probiotics are well worth a try Florastor seems to be working well for me....
For the first time in two years, I'm officially in remission. LOL I've been so since just before Christmas; but was hesitant to 'brag'. Life is SO good right now. I'm fully aware that a flare could...
I had C dif and it started just as you describe. Get it checked and use probiotics. Best of luck to you....
it took about three months for me. Sloooowww but sure, hopefully!...
try crushing fennel seeds...about 2 tablespoons and boiling water. Make a tea from the crushed fennel seeds and drink a couple cups a day. It tastes like licorice. Sweeten with whatever sweetener you...
Were it me...I would start right away. Entyvio seems to be a fairly slow acting biologic...was for me, but it is working in my case and I've had NO side effects. As for travel....ugh...THAT'S been a...
LOL Yup, I too am still bleaching everything in sight....except my wifes clothes.LOL I went to my gastro doc last Friday and dropped off a stool sample for his lab Monday. HOPEFULLY....I'm all clear....
CC...I know most people scoff at this, but I have had GREAT relief from minor arthritis pain, by drinking ginger root tea. Ginger root is available at most grocery stores, is easy to slice into thin...
SO happy for you!!! That's about the best news any of us can wish for while in a flare. CONGRATULATIONS!!!!!...
jan...IF you must stop Remicade, there are many other biologics to go to. After many years of Remicade infusions, I can tell you, Remi worked better than anything I've been prescribed since. I'm now...
I'm very happy for all of you have been through surgery and have had good outcomes. Thank you for posting your experiences, worries, and feelings. I've been thinking a LOT about surgery for a while...
Hi T..going maybe 6 times, mostly early mornings. MUCH better all day now though. I THINK...the Vanco worked. Doc will do another stool test next month. Diarrhea is gone but occasional urgency...
Hi all, today is my last day of Vanco. and my symptoms are still with me. Called my doc and he told me to finish the Vanco. but that was it. sheesh I'm thinking I'll have to call his office again...
GREAT to hear Tblock. I'm still plodding along, but do feel much better. Just takes time I suppose. Continue to do well and stay safe....
LOL Flowers...I think if people DON'T vent, the insurance companies will dictate our care. Heck, they already ARE!! I too, had to jump through all their hoops before they would approve my current...
T...be sure to drink 6 0z. of Keifer every day....or some other probiotic. I wasn't going to, until I finished the Vanco, but doc said....start NOW and continue every day...forever. LOL Just...
CC, after being gently berated by my gastroenterologist yesterday....I'll just tell you as he told me....don't let them put you off in having the c. diff testing. The longer you wait to begin...
Went to my Gastro doctor yesterday. He said...quit the prednisone, doubled my Vancomycin dose, and prescribed Sucralfate and Cholestyramine powder drink mix. He told me after this round of...
kayaking, fly fishing, POTTIentology...
Tblock….Hang in there. It WILL get better....or so I keep telling myself. LOL I know I'm better but this is day 9 for me and I'm still having diarrhea, but not nearly as bad as before I began Vanco.....
Thank you for more hope IP!! I'm way too dumb to decipher all I read, but I'm glad there are people working on a solution who aren't too dumb. LOL...