Wow.......
Well now that I think about it again, when I logged in a couple days ago and wrote that thread that has disappeared, the forum did look different. Then it went down and... now it looks how it used to...
I was able to login a few days ago. I posted a topic that I see has disappeared. Then it went down again and finally I'm able to get in today....
That is great news, Clo, I am happy to read this!...
YES, I have found the exact same thing you have all mentioned. I have to "walk" a fine line between doing moderate exercise and doing too much. I can see the effects of doing too much the next day. I...
I have had 8 colonoscopies, and one flex seg. My first colonoscopy was done as I was transitioning from flare to remission. It had no impact - did not cause setback. My most recent scope was during a...
Sometimes what feels like constipation is actually rectal inflammation. Feels like there's something there that needs to come out. Or there really is something but it can't pass due to the...
I can believe it. I once noticed corn passing days after I ate it. Wonder where it was all that time. A 48 hour fast... oh that sounds fun....
Well that is a relief, much better news from the GI NP. Good thing you got that more knowledgeable opinion rather than just reacting to what the PCP said. Wow look at all acronyms in this post, LOL....
Ugh, I hate that kind of conundrum. The meds are helping your UC but causing other issues... I don't have input just sympathy. One thing I've found is that often specialists will just be focused on...
The only thing I am still not eating is raw vegetables. I never thought I would say it but I miss my daily salads. I also am a bit leery eating fresh berries, even though I eat frozen ones. I'm sure...
It was definitely a google search, but I don't recall if I was searching for an online support forum, or specific questions and HW would come up in the results. I think it was the latter. Still today...
Agree with poopydoop and CC. I much prefer this format....
I got an email... to my old email address that I only check sporadically. I updated my email address on Healingwell ages ago, but somehow communications go to the old address....
Again, I am not wanting to argue with anything the moderators did. In fact, it may need to be pointed out that no one is obligated to continue visiting here if they don't like the way things are...
Interesting. My next door neighbour - who does not have UC - has the same issue. Low potassium consistently for the last year or so, and she consumes loads of food & drink high in potassium with...
Oh I didn't know the GoLytely was discontinued in Canada. I remember you saying that was the kind you preferred. I tried using the straw method, but I can drink it faster without a straw. Okay I will...
It nearly killed me this most recent time, but it did work better....
I'm quite certain that I did start the Pico Salax earlier than the instructions said, but I don't have my notes anymore. It's from nearly 10 years ago. Those were just the official instructions. And...
Oh boy let me see if I can find the directions... this was probably 10 years ago. But then, I do tend to keep things around much longer than necessary... Hmm, I did not keep all my notes but I do...
I've tried the Pico Salax. Much easier to drink, no nausea at all, no issues getting it down. Unfortunately it was not very effective for me, but I am a freak of nature so don't let my experience...
Oh no!! Sorry to hear the prep was so awful - I can relate!! - but fantastic news from the scope....
"I wish they would speak to us when we are more lucid." Amen to that!!! I am still seriously annoyed that my GI talked to me RIGHT after they stopped the sedation and I remember only 1 sentence of...
BG, are you sure he didn't take biopsy samples? Maybe the printout just didn't mention it. They would be sent to the lab and take at least a few days, if not a couple weeks, to have the results. So...
What??? Endoscopic remission?? Oh that's amazing! What a big surprise. You were not expecting that, and I'm sure none of us were expecting to read that! Now they have to figure out that pain that's...
LOL, thanks Clo. Maybe you can develop the same issue, your docs can write a paper, and we'll all learn something new! Hahaha....
Get out! LOL, that is funny. Now I'm waiting for mine to say that to me....
17....
Yeah I get all the weird things....
I posted about my blood test three months ago when my Vit B12 came back high (728, where normal is between 153-655), and my ALT was high (65, where normal is <36). I had called my doctor in a panic...
There is a connection between flaring and colon cancer though - at least so my GI is always harping at me about....
Bacon Girl - that's how I feel about jello! My husband likes jello and often wants to have some. But I feel sick at even the thought of it. If I eat it at all, it is the red kind since we can't have...
There was that "Think!" guy, and more recently the barefoot runner. My next-door neighbour, a craniosacral therapist, insists she cured a patient of UC in one treatment....
OMG I love that, beave!!!...
If you are having watery d, then another thing that could be causing nausea is dehydration. Happens to me....
Oh no, I am so sorry to hear this!! I think of you often, Bacon Girl. I have no advice to give, but maybe in your low moments you can think of us who are thinking of you and sending virtual hugs. I...
OMG! How scary and awful that happened to you! And you did your due diligence first, consulting with the cardiologist and GI and still this happened. Well I am glad you are okay at the end of it all....
Ah, I see... Well maybe I will stop drinking this potato starch. Who knows, maybe that will help me get fully into remission....
Okay I am just looking at the titles of those studies. I had to google "what is apoptosis". When I read this (below), does this not indicate that apoptosis is a good thing? So if butyrate induces it,...
Charlie, I am one who finds it harder to get to remission. Once I am in a good solid remission, I (thus far in my UC journey) find it easier to stay in it. My theory is, while I am struggling to get...
I've never even heard of it, Clo. I would be doing what you are doing, looking into it and being cautious. I hope someone here has had personal experience with it....
Oh, interesting. Well just a bit high, especially if it's consistent, does not sound too bad. I am feeling pretty much like normal. If I didn't look in the toilet, I would think I was in remission....
I'm going to have to think about that. Trust you will post anything else you find. Glad you are looking into all this....
OM, this is all way above my head. But when I see "butyrate" I think of resistant starch. There was a big buzz on this board a few years back advocating the consumption of resistant starch in order...
Wow, the smell was so bad your bf thought you died! That is really foul indeed! I wonder if the abscess or infection is responsible for any of these symptoms or even the foul smell, but those things...
Hey Banana Girl, great to see an update from you. Sorry to hear about the pain you are suffering! I wonder what the colonoscopy will reveal. I agree with following the low fibre diet to try to reduce...
Oh I've not heard that one before! We'll have to add that one to the list. Nice to see you, Notsosickly....
Yes! I had thought that about the flip phones = communicators, but hadn't thought of kindles and the pads they had....
Well then let these insurers come up with a less invasive, less costly way of doing what colonoscopies do. We need a Star Trek style tricorder! If a polyp is identified, then you need to go internal...
For myself, when I am flaring I do a low-fibre diet. Sort of what you eat when prepping for a colonoscopy. It reduces how much output you have. So it helps moderates symptoms, but in my mind I...