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Serenity Now

HealingWell Forum
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Member Profile
Display Name
Serenity Now
Profile Created
1/21/2009 9:43 AM
Last Seen
Yesterday 6:04 PM
Total Posts
2728

Last 50 Posts

Inverse Vaccine and Autoimmune Diseases

Wow.......

9/28/2023 8:01 AM

Ulcerative Colitis
Not able to access HW yesterday

Well now that I think about it again, when I logged in a couple days ago and wrote that thread that has disappeared, the forum did look different. Then it went down and... now it looks how it used to...

9/19/2023 8:13 AM

Ulcerative Colitis
Not able to access HW yesterday

I was able to login a few days ago. I posted a topic that I see has disappeared. Then it went down again and finally I'm able to get in today....

9/19/2023 4:54 AM

Ulcerative Colitis
Kidney stones

That is great news, Clo, I am happy to read this!...

9/5/2023 6:10 AM

Ulcerative Colitis
training too hard with auotimmune

YES, I have found the exact same thing you have all mentioned. I have to "walk" a fine line between doing moderate exercise and doing too much. I can see the effects of doing too much the next day. I...

8/31/2023 6:02 AM

Ulcerative Colitis
How many of us have flared after a scope?

I have had 8 colonoscopies, and one flex seg. My first colonoscopy was done as I was transitioning from flare to remission. It had no impact - did not cause setback. My most recent scope was during a...

8/30/2023 4:01 PM

Ulcerative Colitis
Is this constipation or what?

Sometimes what feels like constipation is actually rectal inflammation. Feels like there's something there that needs to come out. Or there really is something but it can't pass due to the...

8/25/2023 12:04 PM

Ulcerative Colitis
Rinvoq causing very high lipid numbers

I can believe it. I once noticed corn passing days after I ate it. Wonder where it was all that time. A 48 hour fast... oh that sounds fun....

8/24/2023 6:19 PM

Ulcerative Colitis
Rinvoq causing very high lipid numbers

Well that is a relief, much better news from the GI NP. Good thing you got that more knowledgeable opinion rather than just reacting to what the PCP said. Wow look at all acronyms in this post, LOL....

8/23/2023 6:13 AM

Ulcerative Colitis
Rinvoq causing very high lipid numbers

Ugh, I hate that kind of conundrum. The meds are helping your UC but causing other issues... I don't have input just sympathy. One thing I've found is that often specialists will just be focused on...

8/20/2023 4:33 AM

Ulcerative Colitis
food avoidance/food missed..

The only thing I am still not eating is raw vegetables. I never thought I would say it but I miss my daily salads. I also am a bit leery eating fresh berries, even though I eat frozen ones. I'm sure...

8/16/2023 11:46 AM

Ulcerative Colitis
Just curious - how did you find this forum?

It was definitely a google search, but I don't recall if I was searching for an online support forum, or specific questions and HW would come up in the results. I think it was the latter. Still today...

8/16/2023 4:50 AM

Ulcerative Colitis
HealingWell's New Chaper

Agree with poopydoop and CC. I much prefer this format....

8/14/2023 5:03 AM

Ulcerative Colitis
HealingWell's New Chaper

I got an email... to my old email address that I only check sporadically. I updated my email address on Healingwell ages ago, but somehow communications go to the old address....

8/13/2023 6:16 PM

Ulcerative Colitis
Does HW censor doctors?

Again, I am not wanting to argue with anything the moderators did. In fact, it may need to be pointed out that no one is obligated to continue visiting here if they don't like the way things are...

8/3/2023 7:34 AM

Ulcerative Colitis
Potassium low

Interesting. My next door neighbour - who does not have UC - has the same issue. Low potassium consistently for the last year or so, and she consumes loads of food & drink high in potassium with...

8/1/2023 6:51 AM

Ulcerative Colitis
Colonoscopy prep

Oh I didn't know the GoLytely was discontinued in Canada. I remember you saying that was the kind you preferred. I tried using the straw method, but I can drink it faster without a straw. Okay I will...

7/20/2023 11:44 AM

Ulcerative Colitis
Colonoscopy prep

It nearly killed me this most recent time, but it did work better....

7/20/2023 4:57 AM

Ulcerative Colitis
Colonoscopy prep

I'm quite certain that I did start the Pico Salax earlier than the instructions said, but I don't have my notes anymore. It's from nearly 10 years ago. Those were just the official instructions. And...

7/19/2023 5:41 AM

Ulcerative Colitis
Colonoscopy prep

Oh boy let me see if I can find the directions... this was probably 10 years ago. But then, I do tend to keep things around much longer than necessary... Hmm, I did not keep all my notes but I do...

7/18/2023 11:08 AM

Ulcerative Colitis
Colonoscopy prep

I've tried the Pico Salax. Much easier to drink, no nausea at all, no issues getting it down. Unfortunately it was not very effective for me, but I am a freak of nature so don't let my experience...

7/18/2023 9:17 AM

Ulcerative Colitis
Colonoscopy prep

Oh no!! Sorry to hear the prep was so awful - I can relate!! - but fantastic news from the scope....

7/17/2023 11:58 AM

Ulcerative Colitis
Can’t catch a break

"I wish they would speak to us when we are more lucid." Amen to that!!! I am still seriously annoyed that my GI talked to me RIGHT after they stopped the sedation and I remember only 1 sentence of...

7/15/2023 10:34 AM

Ulcerative Colitis
Can’t catch a break

BG, are you sure he didn't take biopsy samples? Maybe the printout just didn't mention it. They would be sent to the lab and take at least a few days, if not a couple weeks, to have the results. So...

7/15/2023 8:50 AM

Ulcerative Colitis
Can’t catch a break

What??? Endoscopic remission?? Oh that's amazing! What a big surprise. You were not expecting that, and I'm sure none of us were expecting to read that! Now they have to figure out that pain that's...

7/15/2023 4:58 AM

Ulcerative Colitis
New blood test results - retesting Vit B12 & ALT

LOL, thanks Clo. Maybe you can develop the same issue, your docs can write a paper, and we'll all learn something new! Hahaha....

7/15/2023 4:56 AM

Ulcerative Colitis
New blood test results - retesting Vit B12 & ALT

Get out! LOL, that is funny. Now I'm waiting for mine to say that to me....

7/14/2023 3:03 PM

Ulcerative Colitis
How long do flares take to go down?

17....

7/14/2023 2:00 PM

Ulcerative Colitis
New blood test results - retesting Vit B12 & ALT

Yeah I get all the weird things....

7/14/2023 1:59 PM

Ulcerative Colitis
New blood test results - retesting Vit B12 & ALT

I posted about my blood test three months ago when my Vit B12 came back high (728, where normal is between 153-655), and my ALT was high (65, where normal is <36). I had called my doctor in a panic...

7/14/2023 6:48 AM

Ulcerative Colitis
Flares

There is a connection between flaring and colon cancer though - at least so my GI is always harping at me about....

7/11/2023 10:42 AM

Ulcerative Colitis
Colonoscopy prep

Bacon Girl - that's how I feel about jello! My husband likes jello and often wants to have some. But I feel sick at even the thought of it. If I eat it at all, it is the red kind since we can't have...

7/11/2023 5:46 AM

Ulcerative Colitis
Looking for anectodal stories of people who treated themselves with non-standard means

There was that "Think!" guy, and more recently the barefoot runner. My next-door neighbour, a craniosacral therapist, insists she cured a patient of UC in one treatment....

7/9/2023 6:13 PM

Ulcerative Colitis
Humira or Skyrizi?

OMG I love that, beave!!!...

7/9/2023 11:16 AM

Ulcerative Colitis
Nausea

If you are having watery d, then another thing that could be causing nausea is dehydration. Happens to me....

7/7/2023 1:14 PM

Ulcerative Colitis
Can’t catch a break

Oh no, I am so sorry to hear this!! I think of you often, Bacon Girl. I have no advice to give, but maybe in your low moments you can think of us who are thinking of you and sending virtual hugs. I...

6/26/2023 9:37 AM

Ulcerative Colitis
Sutab prep

OMG! How scary and awful that happened to you! And you did your due diligence first, consulting with the cardiologist and GI and still this happened. Well I am glad you are okay at the end of it all....

6/21/2023 12:23 PM

Ulcerative Colitis
Is UC an energy deficiency disease

Ah, I see... Well maybe I will stop drinking this potato starch. Who knows, maybe that will help me get fully into remission....

6/16/2023 2:36 PM

Ulcerative Colitis
Is UC an energy deficiency disease

Okay I am just looking at the titles of those studies. I had to google "what is apoptosis". When I read this (below), does this not indicate that apoptosis is a good thing? So if butyrate induces it,...

6/16/2023 11:10 AM

Ulcerative Colitis
Annoyed with my IBD team

Charlie, I am one who finds it harder to get to remission. Once I am in a good solid remission, I (thus far in my UC journey) find it easier to stay in it. My theory is, while I am struggling to get...

6/16/2023 6:43 AM

Ulcerative Colitis
Wegovy and IBD

I've never even heard of it, Clo. I would be doing what you are doing, looking into it and being cautious. I hope someone here has had personal experience with it....

6/14/2023 5:08 AM

Ulcerative Colitis
Vit B12 too high on blood test

Oh, interesting. Well just a bit high, especially if it's consistent, does not sound too bad. I am feeling pretty much like normal. If I didn't look in the toilet, I would think I was in remission....

6/12/2023 6:58 PM

Ulcerative Colitis
Is UC an energy deficiency disease

I'm going to have to think about that. Trust you will post anything else you find. Glad you are looking into all this....

6/12/2023 3:02 PM

Ulcerative Colitis
Is UC an energy deficiency disease

OM, this is all way above my head. But when I see "butyrate" I think of resistant starch. There was a big buzz on this board a few years back advocating the consumption of resistant starch in order...

6/12/2023 1:15 PM

Ulcerative Colitis
Been a long time since I was on here!

Wow, the smell was so bad your bf thought you died! That is really foul indeed! I wonder if the abscess or infection is responsible for any of these symptoms or even the foul smell, but those things...

6/11/2023 10:26 AM

Ulcerative Colitis
Been a long time since I was on here!

Hey Banana Girl, great to see an update from you. Sorry to hear about the pain you are suffering! I wonder what the colonoscopy will reveal. I agree with following the low fibre diet to try to reduce...

6/11/2023 6:46 AM

Ulcerative Colitis
Words to describe poop - could be TMI even for this place

Oh I've not heard that one before! We'll have to add that one to the list. Nice to see you, Notsosickly....

6/2/2023 7:53 AM

Ulcerative Colitis
C-scope insurance coverage (USA)

Yes! I had thought that about the flip phones = communicators, but hadn't thought of kindles and the pads they had....

5/31/2023 3:37 PM

Ulcerative Colitis
C-scope insurance coverage (USA)

Well then let these insurers come up with a less invasive, less costly way of doing what colonoscopies do. We need a Star Trek style tricorder! If a polyp is identified, then you need to go internal...

5/31/2023 5:16 AM

Ulcerative Colitis
FRUSTRATED !!!

For myself, when I am flaring I do a low-fibre diet. Sort of what you eat when prepping for a colonoscopy. It reduces how much output you have. So it helps moderates symptoms, but in my mind I...

5/27/2023 6:40 AM

Ulcerative Colitis
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