Sorry to hear about getting whacked going down to 25mg of pred... I too am supposed to go to 25mg tomorrow. How fast was your Taper? Mine is drop 5mg every seven days... Thanks!...
Hey Guys. I too get fast heart rate, high blood pressure, elevated sugar and elevated white blood cell count when taking prednisone. When I'm not flaring, I'm fairly healthy, exercising etc.. so this...
Good to hear! Stay the course!!...
I take prednisone, which is pretty much the same thing but it normally takes at least a week for me, and its taken as long as 6 weeks before....
In my experience, you still wake up...just a little foggy... It may settle things down just enough that you can sleep. You know, that's when we're healing. Benadryl may work too.....
Hi, Sorry your suffering with no sleep right now. I too have the same problem. When I first started my UC journey I hated to take any medicine, now I'm like a walking pharmaceutical.... With that...
Hey Donnie, Ahh Man.. terrible! I stayed at 40 mg of pred until symptoms got a little better. It basically just locked everything up for me for a couple days and gave my butt some rest. At the same...
Yeah, I'm a "project" machine on prednisone! Anything around the house that's been lacking gets taken care of! Thanks for the suggestions! Like I said in my original post, I take Restoril and its not...
Hi! I take all 40mg around 8am every morning. I made the mistake in the past of trying to take 20mg in the morning and then another 20mg at lunch and it was much worse. I don't think I can switch...
That's interesting. I just filed for my medical marijuana card a week ago, and now I'm waiting to be approved. I don't like smoking anymore, but I was thinking of trying an edible or liquid...
Hi everyone! I'm curious how many of you experience sever insomnia, while on high doses of prednisone? What do you take for sleep, and how do you manage? I'm currently flaring after being in...
It has really been a game changer. I can't believe I was able to retain before! After just a couple days things seem to be getting better. Next step is starting to ween the 40mg of Pred.. The Doc is...
Thank you so much. That is great insight. I didn't think to try and increase bm's to avoid constipation. Will definitely give that a try! I actually was able to withstand the enema much better last...
Ughh so frustrating! Hope the Humira works for you!!...
Hi All... I haven't been on in a while because I was in remission for a little over a year. (First full year of remission since first being diagnosed 8 years ago with uc.) I currently take Entyvio...
Hello, I've been taking entyvio for around 8 months and I don't have any side effects. I'm not sure about the Lupus/Psoriasis side effect but I wouldn't doubt it. I think all biologics have similar...
I haven't been on this site in a while, but I just passed a kidney stone and I was curious if others with UC were dealing with the same. I woke up with the most excruciating pain ever about a week...
I'm currently on Humira and was just switched from 6mp to Mtx. My Dr. told me the reason is that there is a greater chance for some kind of disease or infection with the combo of 6mp and Humira....
Hang in there! I'm on 6mp and Humira and have been trying to get off prednisone. Now on 15 mg and the weening. I wanted to comment on what Dkid said that prednisone can cause serious damage after...
Bananagirl, it may not have that effect on you but I've definitely heard of quite a few people say they have had problems with it. Good luck...
Not sure why creatine seems to cause problems but sure seemed to with me. I would rethink and do some research on it......
That is the one I use. I actually only drink one shake a day in the morning(2 scoops) with oatmeal and a banana. I haven't really had issues with the brand though. It's called just natural whey...
I love this thread. I too am an avid gym goer. I've been going to the gym regularly for 12 years or so. I'm 190 6" tall and am 33 year old male. I was diagnosed in 2012 and it was right around the...
I've pretty much been on Prednisone for about 9 months. Varying from 40 mg down to 2.5. I also take a calcium supplement and take my pred in the morning. And all I drink is water. Don't have any...
I have tried rowasa enemas before but at the time I was also flaring so I stopped, not knowing if it was making things worse. I know 20mg is fairly low and I think I'm gonna go to 40...I think the...
I think that what Gary said about communication is key. You just have to open up to him and be honest about how you are feeling. Things may be difficult now but will probably subside. And when your...
Thank you everyone for your responses. So I called back the doc and said why don't we stop the rowasa, I'll stop all the cold medicine and give it a day or two and see if there's improvement. So...
True, I guess the thing that gets me to is the pure liquid diet. I've never been told to do that. I don't feel like things are quite that bad and I think a lot of it may have had to do with being...
Hello, I went to see this new Dr. because my other one seemed kind of lackadaisical. This new Dr is well known in my area as one of the best. I am currently on 100mg of 6mp, 40 mg of humira and 20mg...
Everybody heals differently. I generally start the pred taper when I have no symptoms. Sometimes you have to do it on your own. My doc once had me taper real fast like that and it made it worse. When...
Hello, I too am on Humira and 100mg of 6mp. But I also don't have diarrhea, or urgency or mucous but have strips of blood on my poo or dripping blood. But stool is formed? I have come to kind of...
Hello, This disease can be really hard to deal with mentally! I've been in a 1 year long flare and maybe just now seeing improvement. I'm taking humira and weening off prednisone, down to 15mg. Also...
Your stool could have been dark from the biopsies that the dr took. Always happens to me after a scope....
Oopps I meant Apriso...Same as Lialda...
I had the same thing with Lialda...which is the same thing as the aza I think. Terrible headaches! The only thing that cured mine was Aleve and I know where not supposed to take Nsaids but I had to....
Thanks for your replies...spoke to my GI and he told me to go back on 20mg of pred and I have an appointment next Thursday. He did mention remicade. Thanks Again...
Whats up guys? I'm just super frustrated right now and need to vent... I'm currently still in a flare (maybe 6 months?) and just cannot pull out of it. I'm taking simponi shots every 2 weeks instead...
For now I'm on hydrocortisone enemas for about 9 days. Still having symptoms so I don't think I have a hemmie. My GI said that a hemmie would not cause increased bowel movements. So in that case I...
Honestly if I were you I would keep up both. If somethings working, keep it up. Let it heal for a couple weeks....
Hey Man, Glad your doing a little better. Thats an interesting idea. I wouldn't push the next remi infusion off though because it could possibly be the remi finally kicking in....
I know sometimes for me it just takes the bleeding a little while to stop. Generally for me as long as my bm's seem to be improving that the blood will subside but just takes time to heal. If it's...
Now that I really think about it, I'm not really sure I'm seeing mucous. I think its just blood......
I'm trying to figure out if I have a hemorrhoid or if it's lower inflammation. Are there any for sure signs of a hemorrhoid? I'd rather not pay the doc a bunch of money to look in there if I don't...
I'm having a terrible case of tenemus right now to. I just weened off pred and taking uceris which is doing nothing for me and for some reason my doc won't prescribe cortifoam. Its driving me crazy!!...
I'm one of those that went the pharmaceutical route. Not necessarily because I wanted to...in fact I didn't want to. But, I don't have the time to try and relieve my symptoms by diet. I did try the...
Thanks everyone! Guardian7...Yes I agree. I will go to just about any lengths to get a good night sleep. It's one of those things that I have had to stress to my Wife that it is imperative I get a...
I was just wondering how sleep effects your UC? For me it makes a huge difference with being able to handle symptoms and I think it actually triggers symptoms if I'm sleep deprived. I have a 1 year...
Hello Everyone, I'm currently in a flare, have been for 3-4 months. Started on Simponi 3 months ago. I have been weening off prednisone, down to 5mg and stopping completely tomorrow. Anyways this...
I agree about the rectals called hydrocortisone enemas. And I think you should stay at 40 mg of pred for at least a couple weeks before tapering. Make sure your GI has experience with uc and chrons....
Hey Scott, That's really good to hear!! I've been on simponi for about 11 weeks and things may be getting better. I Expected immediate results and when it didn't happen I was super bummed. I've read...