I also have proctitis which is quite stubborn and sent me to the hospital twice this month. I agree with Quincy about oral mesalamine and enemas. I was in remission for 6 years using Lialda and...
I just got out of my 2nd week-long hospital stay in as many weeks (October surprise for real!). I had a blood vessel come thru an ulcer in the colon and had 3 hemorrhages resulting in blood...
I agree with TT, go in if you feel you should. You know your body. I am back in the hospital right now after being released 10 days ago. I woke up to the same hemorrhage and knew to go in....
I use medical marijuana as an edible or a tincture before bed and I sleep solidly until about 4:30 a.m. and often can fall back to sleep until 6. It works for me....
Mine began as proctitis about 10 years ago and eventually progressed about 2 years ago with a bad flare that I am still trying to get under control. I was well controlled with Lialda and rectal meds...
Hi folks, I have been home for a few days and am awaiting my first Remicade infusion on Monday. I was sent home with 40 mg Prednisone. I was doing better for a few days - no blood (my main symptom...
Hi Mike, Seems like you and I have been having similar flares, although mine is limited to the rectum at present. I was on Entyvio since November, Rowasa, Canasa, Uceris foam (basically anything we...
Thank you Momtoboys! Just saw the on call GI and I am to continue the rectals, Lialda and add Pred while home. 40 mg and a slow taper, while they attempt to get insurance to approve the switch to...
Thank you, that gives me some hope!...
Hello folks, I am currently in the hospital from a spontaneous hemorrhage that was quite frightening. I have had Proctitis for about 10 years which was well controlled with Lialda and Canasa with the...
I have been on Entyvio since December 2019 and it has truly helped to about 85% healing. I do have an uptick in symptoms a few days after infusion, which is weird. I also have mostly rectal...
If you still want to stop by for support, we will be here. I am new to the forum, so you may not know me, but I am sending love and thoughts for ease and peace....
I am so sorry to hear you lost your friend. That is so very hard. Hope you heal soon and that Entyvio helps you to a speedy recovery....
It is likely telogen effluvium, which is temporary hair loss that can result from the stress the flare causes . I had this happen when I first started using Entyvio and started to get my flare to...
I started Entyvio in November after 8 years using just Lialda and rectal meds as needed. We could not get the flare under control, even with steroid rectal meds. Started Prednisone at 40mg and it did...
I am currently in a flare, which began in September (right after my wedding). We added Uceris oral and rectal during that time, but it didn’t help, so we switched to the dreaded pred, which also...