Hey guys, Well I am in the suds again and need some help. I have both UC/Crohns disease with rectovagina fistula. I had a colostomy 2016, hernia repair and colostomy relocated 2019, 2020 has been...
Are any of the antibody tests over the counter? How much are they? I have surgery scheduled and wanted one but my PCP stated it wasn't really needed because I need the surgery regardless of the test...
I am sorry you had to go thru all of that. Its Scarey. I have so many questions I don't know where to start. Background...healthy all my life, food poisoning at 54, diagnosed with severe fistulizing...
Hey all, I am still lurking and reading. I hope everyone is hanging in there! I noticed that Minnie, UB and NCOT have not checked in lately. Wondering if anyone has heard from them? I have found...
Just had 2nd Pfizer vaccine this week. No reaction to either except a slight sore arm that was gone within a day and a tiny headache on 2nd shot that was gone the next day. I have read that they are...
Had my 2nd Pfizer vaccine this week. I had just a little bit of a sore arm. A tiny headache. That's it. I don't know if I should breathe easier or not. They state that when your immune system is...
Minnie, How are you? Keeping you in my thoughts and prayers! Clo...
I have been able to buy raw unprocessed cane sugar and then white table sugar. To me they do taste different and my body reacts differently to all three.(high fructose included) I didn't even start...
I struggle with this also. I don't know if this will help...but for me...it seemed to make a little difference if I stayed away from products with yeast and sugar in them. I also added Briggs apple...
I haven't made it to any relaxing medications yet. I probably should. I just don't think I could take one more pill right now. One of worse enemies is stress and Dr. Google. Yikes!!! Sometimes I get...
Gosh, I am sorry you are going thru this. I totally understand not wanting to go into doctor offices. The insurance, and financial stress during this pandemic is crushing. Its bound to impact you. I...
Thanks all for responding. I have a Hartmanns pouch. (Part of my sigmoid they left attached to the rectum.) I also have a rectovagina fistula. The Hartmanns pouch drains mucus 5 to 10 times a day. It...
You made me LOL! Thanks I needed that! SCD yogurt, boiled and mashed carrots, chicken bone broth (SCD), thin watery oatmeal with honey, white bread toast, applesauce, soft scrambled eggs, bananas,...
I have such a hard time with this. I have a colostomy now so it has changed my view point a Little. (I don't stock up on Depends and Calmoseptine.) Regardless, when something pops up different I...
I can tell the difference between cane and regular sugar. Cane sugar is supposed to be healthier. If I drink a soda with cane sugar I don't have any issues. Soda with regular sugar (not high...
Hey All, I am still dealing with UTI. Have been on antibiotics since September. Shingles started in November. Stoma partially obstructed December. Shingles started to fade end Jan. And stoma started...
Does the Pfizer or the Moderna have worse side effects after the 2nd shot? My niece had Pfizer 2nd shot. She was nauseated and ill for 72 hours. Intermittent high Fever for 48 hours. She said the...
I am in the US. I haven't heard anything about a shortage of Remicade...and I have asked several times. My next infusion isn't for another 4 weeks though. Perhaps that was just to let you know that...
Whenever I drink a dark drink my output turns really really dark. I bruise all the way around my stoma. I did with my 1st one and now on this one also. When I eat fiber or nuts...my stoma will bleed...
3x, Hey, how are you? I know you go in tomorrow. Hope it all goes well. Please let us know you are ok. Clo...
I am glad you got signed up. Our sites are not working properly either. They are crashing, slow.. or you don't get a notification that it actually went thru. My sister is so frustrated that I am...
Lab, I posted on the hernia thread...then I saw this and just wondered... Could this have anything to do with your maybe hernia pain the other night? Hmmm??? Just a thought. How are you doing? Clo...
Lab, Yikes!!!! How are you doing? How long did it take for you and Ambling to have trouble walking with your original hernia? Thanks for your help guys! Lab, hope it turns out to be ok. Clo...
Ok All, To those of you that have gotten your booster can you let us know how that went....and which vaccine you got? I still haven't had anything. Arm wasn't even sore after 24 hours. But...my niece...
Franny, I know they are doing tests on Remicade which have shown benefits for people in a Covid 19 cykotine storm. I haven't found anything on Humira. If I do I will post it here. How are you...
Nicky, Checking in on you.... How are you? Did you get your 2nd shot? I had my first vaccine this morning...Pfizer. They aren't giving us a choice where I live. (I don't think anywhere in the US-but...
Just had the Pfizer vaccine this morning. Everything ok so far. The shot did not hurt. Immediately after the shot my arm "tingled" and felt cold at the injection site-besides that nothing. Clo...
3x, Since 2016 colostomy...I have developed 2 5mm stones in left kidney and several smaller stones in the right. The infections just keep on coming. We are still trying to figure out what to do...
Lan, How are you doing with things on your end? Thinking of you.... Clo...
Thank you all for replying. I appreciate your words of advice and hope you don't mind if I continue to pick your minds... I have gotta say...this pain is pretty awful. You all are warriors!...
Oh no Minnie!! These are challenging times. IMO the virus and everything probably played a part in your flare. The antibiotics...Did I read that right? 2 different types of antibiotics a day? Plus...
Congratulations! I bet it feels a bit like winning the lottery. How are you feeling now? I go in next week for the Pfizer vaccine. A family member had a pretty rough time with the 2nd Pfizer shot so...
Minnie, So very glad to hear from you! I am sorry about you are still having issues with Covid. A friend of my sisters family caught Covid and her whole immune system is still out of sync plus they...
Has anyone here had hernia repair surgery? What kind? Did they use mesh? What should I ask/research/be aware of? The long incision scar from 1st colostomy surgery has torn apart internally. There is...
Hey Everyone, Has anyone ever had chicken pox/shingles on their stoma? October 27th I developed a red flat rash on my abdomen, back and legs. I thought it was an allergic reaction from the contrast...
They don't cause gas for me. They do stop the flow of output. When I eat 3....they completely stop everything for 24 hours....
Minnie, How are you? Saying prayers for you and hoping you are feeling better. Clo...
I just read your post. So sorry you are going thru this. I hope you get better and feel better soon. Clo...
Halo, I tried the closed bags but I just "went" to much. It was much less expensive for me to use the desirable bags. Depending on what type of 2 piece you have-the company may have a closed bag that...
1st colostomy was Fred when it was good...Freddie when it was bad. 2nd colostomy is Bubbles.... 3rd time is going to be called This is it! Lol......
I am on Remicade. I have severe fistulizing Crohns disease and it is located in my colon. They thought it was UC until the fistulas started. My Crohns disease started suddenly. Remicade caused such...
I tried LDN right before I started Remicade. I only had about a week on it and I was already very very ill. It did make me feel better and my symptoms seemed to decrease. I did have a hard time...
It is going to take awhile. I thought that the vaccines would be done like the Covid testing...go online, make an appointment, then just drive thru. That is not happening yet in the county I am in....
Lab, I did have severe inflammation. I have been much better since the colostomy....but all that inflammation has been healing and scarring and it has wreaked havoc. My GI has said from the beginning...
Just got off the phone with my hometown/home county pharmacy in Texas. They are thinking March here too...and that's for people with health issues. Yikes!! Actually I called several pharmacies trying...
I loved his posts--they made me stop and think...and research. I hope he is able to come back....
Ambling, I certainly did not state any of the items listed in your post. I hope that part was not for me. I enjoy your posts. You can be counted on to present information on subjects presented. I...
I would ask him to give you a referral to the doctor of your choice. My PCP, GI, and CRS have all changed their referrals to others when I requested. I just say that I would like to see this person...
Ks1905. I was looking for him last night because he hasn't been on since March. Anyway to check on him? I hope you are right. I know we all come and go but....I get worried when I don't see someone...
Sorry for all you are going thru. I thought the Remicade was sorta working...but after your last post it does not sound as though it is. Personally...I would still try the methotrexate. It will help...