2013 was the year for me so i’m going into 10 years. Failing inflectra and waiting on Rinvoq approval. I’m at the tailend of a 3 month flare. Still not out of the woods yet, but my good lod friend...
Hi, i am doing a lot better, 2 times i prepared poop test i could not deliver it to the lab with 24 hrs 🤦🏻♂️ but good news pred 40 mg finally got it under control. I’ve lowered it 20. Stool has...
Not a cure, but good soothing teas. In the balkans they use Blackberry and Raspberry leaves for tea to calm upset stomach. I did a superficial lookup online and long and behold there are anti...
How long does it take for Pred 40 mg to make significant dent to a bad flare? From your experience...
Thanks, Susie! I'll do a test tomorrow, I have the kit here at home. last time they tested me was in October....
I looked at SIBO's signs and symptoms and I clearly don't have that, so I can rule that out. for now i'm just sticking to a low residue diet, low fiber until i get some control over the flare My...
Thanks "MedicalNerd" I'd love to check out that article. But for now I'm going to avoid Manuka. I am having so much gas and cramping and what looks like a wound on my hemies because it drips blood...
Thanks for asking. I just did my 3rd loading dose of inflectra which looks like i’m flunking. So i started 40mg pred last night. And already seeing results. prednison never fails thank God. And i’m...
Noodlesnoodles is right. Mesalamine enemas did this to me all the time, but only when i was able to retain them overnight and they traveled far. And yes very often the first part of the stool did not...
Thanks for starting this thread. I was just suggested Rinvoq by my GI as my next stop after we exhaust one more dose of inflectra. I have read the numbers on rinvoq and yes it is not for everyone....
Hey guys, i used to have manuka honey a lot, but in the past 6 months i’ve associated it with worsening my flares. So i’ve quietly avoided it. But i love manuka. Am i being crazy? have you ever heard...
I’m on inflectra (remicade’s sister) and seems i’m failing it too. Did it ever put you in remission during that 1 year? Did you ever see any significant improvement from Remicade?...
Bad day, feels like the day i went to ER, so i started pred like GI suggested. 20mg 2x a day. Will keep you posted. I hope inflectra decides to kick in...
What techniques do you guys use to avoid straining? At this stage i am right now feels impossible to avoid that final push. I have tried the squatting, deep breathing, the stepstool under the feet. I...
I figured Rusty didn't mind :D well I saw the GI yesterday and we both sort of agreed that I am flunking inflectra but we don’t want to give up yet. In four weeks I will get the 10 mg/kg and see how...
Today in the morning, my bowel movement didn’t look terrible, better than anything I’ve seen in the past week. However, after the main bowel movement, I go every other hour or every hour to get out...
We both sort of agreed that I am flunking inflectra but we don’t want to give up yet. In four weeks I will get the 10 mg/kg and see how I do on that. If I don’t get any improvement in a few days, he...
I have an appt with the dr today in about an hour. I would have never thought inflectra not working for me. But it surely looks that way. I’m having D for many days now. And that last part of the...
so I got my IFX blood work result today, my levels are at 20.6, well within therapeutic levels. but i'm still having watery diarheah, cloudy-looking liquids. some cramping and definitely urgency...
Nah I wish it was the enemas. Well i did infusion #3 yesterday (love it how they call it infusion 😅), had a super rough night last night waking up every 1-2 hours, gass and D and pain, but the...
Well FMT didnt heal me P) i did my infusion today, have an appt with Dr on 27th Question: the fact that for the past 2-3 weeks when i go to bathroom what comes out first is a decent amount of just...
Thanks CC for checking in. I'm about to throw a lot into this reply: I have the infusion tomorrow so I'm just gonna get by without any steroids. I am taking my mesalamine pills, and doing mesalamine...
I am on inflectra now, had 2 doses so far. But just like you after the first week i feel i start going backwards. My third was due on 12/27, but i spoke to my dr today, i have pain, tenderness, mucus...
Thanks Susie, appreciate your feedback, one main thing I try to wrap my head around is I was on two super strong antibiotics for two straight weeks, both antibiotics at the same time. I can’t help...
thank you for the feedback. I have seen positive results from inflectra but very slow and unsteady and as soon as it was time for the next dose I started going backwards very fast so makes me worry...
One bottle here in the US is about $65. I take two pills three times a day. It’s not terribly expensive. But then I’ve never calculated how many cfu’s that is. It helps me a lot to solidify stuff...
Any of the senior members in here see any problem with trying out FMT while on inflectra/remicade? I’m on inflectra now, second dose just went in. I have done some decent readings on FMT on here and...
Are you trying any probiotics? VSL#3 helps me. How is your diet? Consider decreasing high fiber intake for now. How is your sleeping? Are you getting enough rest? How is your stress level? Obviously...
Hi, yes I had just started inflectra, I have had just one dose. Second dose was to have been last Wednesday. Now it is pushed to this Tuesday. I am definitely several steps back already. I’ve started...
Hey Susie and all, So i’m doing much better on inflectra. Was gonna get my second dose today but i came down with a cold so they rescheduled it. One thing that i still see is excessive mucus coming...
Hi Sara and everyone, yes I am home now. Got discharged on 10/30 - after 5 days there. I have to say after inflectra, which from what i read is just a cheaper version of infliximab (Remicade), i have...
I got the first dose of Remicade yesterday. Any recommendations or suggestions from any of you that have been on it for years would be much appreciated....
Things turned bad. I did urine and bloodwork Monday 10/24. Dr calls me 10/25 in am to say i have a uti and tells me to go to ER to get a CT scan because she feared a possible fistula. Came to ER, got...
Thank you so much guys! Yesterday was a rough day, muscle pain all over. But at the end of the night my intestines were at pease, i though i was going to have a good night. So i inserted a mesalamine...
Is it normal to feel like prednisone has errored nearly 50% of all my muscles and strength in 4 days 😣...
Is it possible to overdo the rectal mesalamine suppositories? Prescription says once a day, I am going 3 to 4 times a day. They’re only 1 g...
Thank you Susie! I did not think of hydration. I am trying to make sense of what’s coming out of my behind. In the mornings I have two or three BMs and the poop is soft but it is digested not raw...
They approved remicade for me and im scheduled this tuesday for first infusion. My dr wanted to push it out 1 more week because of the norovirus, but that was 1.5 weeks ago. I will double check w her...
Why not try the mesalamine suppositories? I’m going through a terrible flare now, cannot retain enemas, but i can retain the suppositories. (Not hydrocortisone supps)...
So here i go again, another nasty stubborn flare. Started with a cold, then Covid, then upper respiratory infection, Noreau virus, and now colitis is out of control. All this in past 4 weeks. So I...
Question: what is your take on using Hydrogen Peroxide for moth wash and rinsing? I do that every night...
Guys, I love pomegranates so when they come out at Costco I buy cases and cases of them. And I had a bunch in the refrigerator still from December and now at the tail end of this flare I started...
Can you tell me where you buy your supplements? And what brand? It will help me tremendously in my search. I buy lots of stuff on Amazon but I feel Amazon has also lots of misleading products...
Be vigilant. , that might be a sign that your flare is escalating. Do not ignore gas pains. Typically when I start getting gas pain is the start of a bad flare and you must attack quickly...
Hi what brand of these do you buy? Because I tried the couple from Amazon and I felt that made me worse now that I’m recuperating from a flare...
Thank you! I am looking for these probiotics on amazon, i get this feeling that some of these products on amazon are not trustworthy. where do you buy yours? And thank you for getting my attention...
Help! After being on some serious antibiotics treatment, my gut microbial clearly got pretty wiped out. How is that supposed to come back by itself? One can logically assume that some microbes Got...
I have not read all your posts in detail, but I'm going through a flare now, on Pred 40 mg (2x20), been on it for 5 days and doc said I can start tapering off 5mg - we'll see, but anywho, for you -...
Just a refresher on what Pred does to our body, our muscles everywhere including our intestines “ The study showed prednisone directs the production of annexins, proteins that stimulate muscle...
Hi Susie, yes they tested for cdif, negative they said. But i feel there are so many possible bad bugs out there that could cause a flare that they do not check or are not able to check /test for...