When I say that blood is the last symptom to go away I mean just that.... it's the last "symptom". BMs are fully formed with normal frequency, no urgency etc. The blood lingers for a while and then...
I read the little paper with the enemas and it said that side effects "may" be similar to oral steroids but there wasn't anything definitive. Side effects listed were the same as oral. The little...
I guess I should have said that blood was always the last symptom to go away for me when in a flare. While there may still be inflammation, without having any actual symptoms my life returns to...
Entyvio stopped working for me after about 1.5 years. But many people have much longer remissions so don't get bummed by the short length that it worked for me....
P.S. Blood was always the last thing to go away when I am in a flare....
When you were on Pred did you start at 20mg and then taper? If so, I have never heard of anyone getting relief when starting at that low of a dose. The usual pred dosage for a UC flare is 40 mg for 2...
My doc is fully aware of my enema usage. He even gives me 90 day mail order prescriptions. In the past 3 years I have received 2 shipments of the enemas. Still have 2 months left of the last...
Since you have been on pred for so long you may need to taper slower -- say 1 mg at a time. I would go back up to 10 and ask your doc for a script for 1 mg tablets and then only go down 1 mg at a...
I have seen some people here saying that long term use of steroid rectals will thin the wall of the colon/rectum. Can anyone share a link on that? I have tried searching and can't find anything with...
The other thing about enemas is that if you have a swollen hemi you could be scraping it with the nozzle which could be causing the bleeding...
Hemis bleed when they get swollen and then get irritated. The steroids calm them down so they aren't swollen. To get rid of them permanently requires banding or surgery I think. Yes the suppositories...
Luna -- that is a difficult decision. You don't have any symptoms that affect your quality of life. But I understand the worries about long term inflammation. I am in a similar boat. Remi has given...
Doc never said I had to taper ... I just do that on my own lol...
You can get those steroid suppositories for just 7 days. That should be long enough to see if it resolves the blood. If it works then see about getting some to keep on hand because hemies will flare...
David -- if you can get the ok to use Entyvio that's the biologic I would recommend. It's specifically targeted to the colon so it's not systemic like the other biologics. It takes a while to work,...
A couple years ago when I was in a bad flare, mesalamine enemas stopped doing anything and only the hydrocortisone enemas helped even a little. I was on them daily for probably 6-9 months until...
I use enemas for general inflammation/maintenance, but when I see occasional bright red blood like that I assume it's my hemi and I switch to steroid suppositories for a couple days and that takes...
I just had my 1st dose of Pfizer this AM. Will post if any reaction. 2nd dose scheduled for 3/7. The nurse said that being on immune suppressant meds (Remicade) could affect whether the vaccine will...
I try hard not to have to use pred, but nothing else works when I get a bad flare. Last time I waited until I was in pretty bad shape before I asked for it. I shouldn't have waited as long as I did....
I have a hemmie that bleeds sometimes and it always freaks me out. I use a steroid suppository for a couple days and that takes care of the issue. Worth a shot to give them a try....
See if you can get some steroid suppositories (prescription). I use them for hemmis. Works for me in a couple days...
Twingirls -- I am on Remicade and checked with my doc about the timing of my infusions with the shots and he said there are no known concerns with the vaccine and Remicade. I have my 1st shot...
The biggest health group where I live opened a website today to sign up for appointments to get the vaccine for age 65 and up and those with a variety of co-morbidties (including being on immune...
I can't say I understand what this is saying so hopefully one of you more scientific folks can explain it. From what I can understand there seems to be a link from having had Epstein Barr (mono...
That's good, 3tc! Nice to know that the antibodies are lasting longer than what I had read....
I've never had a nurse do anything like that. Her job is to give you the medicine that you and your doctor agree on. Period. Since Xeljanz is completely different than other biologics I don't see why...
3tc ... do you know if you still have antibodies?...
Where do you live? I checked with my PCP and pharmacy last week and they didn't know when I could get it ... they said "maybe March". Keep us posted....
Covid is so new as a disease and the vaccine even newer I don't think anyone knows how long the antibodies will last yet. I have read that if you had Covid they think the antibodies last 7 months,...
I loved Entyvio. I was 100% normal for the first time since I had been diagnosed 3 years before. I was very bummed when it stopped working for me after just a little over a year. Many people get...
I got the shingles vaccine before I started Entyvio. Once on a biologic we aren't supposed to get live vaccines. I get a flu shot every year....
If your dosage is 5 mg/kg of inflectra then for 175 pounds your dose would be 400 mg, 160 pounds would have been about 370 mg. I doubt that difference would affect you much since the max dosage is 10...
I checked with my doc as to when I would be eligible to get the vaccine and he said they have no info at this time and suggested I contact a pharmacy. The pharmacy didn't have any info and said...
Both he and Sarah disappeared around the same time. I just assumed they got booted because of arguing, but I also thought they were just in time out and would be back. It's been so long now I wonder...
I don't trust any info from China on this virus. China says they have only had a total of 95,944 cases and 4782 deaths. Pennsylvania has higher numbers. As for the other stats ... no one knows who is...
From what you have described it sounds like you might have an obstruction since you can't eat or drink anything without vomiting, are in pain and feel bloated & swollen. I think you should get to the...
I read that there is another new strain in South Africa that affects younger people more. The new strain in the UK is more contagious. Let's hope that those 2 mutations don't join together. Unknown...
I just had a doctor friend tell me that the vaccines don't necessarily prevent infection with Covid. The 95% rate was that they are effective in preventing serious infections -- they didn't track...
That's good scope news!! Congrats!...
I don't know much about Stelera, but this is just the beginning of December so at the most you have been on it for about 4 weeks. You may need more time. Have you asked your doctor how soon you...
Thanks, Suzi -- I will check out the FDA Jane -- that is a huge number of people in the vaccine trials! Surprising that meds can get approved after testing on just 150 people. Pretty scary actually....
How do they know the vaccines work? Did they try to infect people? I ask because if people in the trials were still wearing masks, distancing etc how do they know that it was the vaccine that...
Happy Thanksgiving to you, too! (and everyone else too!!) Enjoy the day safely and know that by this time next year we will hopefully be back to normal. I am thankful for the internet that has places...
I am not anti vax at all. Got my flu shot a couple weeks ago. The Covid vaccine was rushed, but by the time it's widely available a lot more will be known about it. If it's still safe in the...
Iam -- that dr you mention hasn't worked at Pfizer for 9 years. I don't know why all the hospitals are getting overrun with false positive Covid patients ;) You lurk in some very questionable places...
Does anyone know if the current leading vaccines in the U.S. (Pfizer & Moderna) are live vaccines? Those of us on biologics aren't supposed to have live vaccines so I have been wondering...
Wait ... you are in Canada so not sure if they ship there...
Have you tried ordering from Walmart? I just checked and seems like they have a lot of options for Metamucil available for delivery...
You could try hydrocortisone enemas. They work pretty fast for me. I think I would ask to get another c diff test to make sure it's really gone (sometimes there are false negatives) and then try...