Great, thanks... this is very helpful. ...
Hi Quincy, I will definitely mention this to my doctor.. next scope is after 3 years. I was taking Lialda + canasa supps before switching to imuran. At the time, it wasn't helping my flare at all and...
Thanks, I will look into these as options too. ...
Thanks Quincy, yes I have copies of all my reports and that area was perfectly clear until now so of course, I'm concerned and want to figure out what I can do to keep it perfect as I've been doing...
Thanks momto2boys. Honestly, I had never heard of discontinuous inflammation in UC until now (always associated that with Crohns) and in my case inflammation never went beyond the rectum so was a...
Thanks, I'm currently taking 75mg imuran and canasa suppositories daily and my doctor didn't mention making any changes to my meds based on the biopsy results. The last scope prior to this was a few...
I recently had a colonoscopy and everything looks good although the doctor found a residual peri-appendiceal red patch of superficial inflammation. There were various biopsy samples taken during the...
Thanks so much for the info everyone, appreciate it. I wonder if there's anyone who successfully was able to get off all meds and only take qing dai, curcumin, etc and stay in remission.. probably...
I've been pretty strict as well. I haven't been to the grocery store or any other store in months. I step out for walks a few times a week and only meet up with family as I know they are barely going...
Thanks, yes I'm keen to learn about natural remedies. Sorry to hear that you didn't feel well after taking qing dai. Can you share where you bought it from.. is it in capsule or pill form? And the...
Yes, I agree that everyone responds to meds / supplements differently. My doctor has recommended miralax for a while now. In the past I tried Metamucil ( at the time I was flaring and it made things...
Hi everyone, I was curious to know if anyone has any experience taking Boswelia or other natural supplements to treat UC / Proctitis. I recently read somewhere that Boswelia can help with chronic...
Thanks all, yes it's so tricky. On one hand, I'm nervous about staying on these meds and on the other, nervous about tapering or changing meds. The doc did mention that there's no guarantee that any...
Hi everyone, I had a follow up appointment with my GI yesterday and based on my last visit, I thought he might suggest that I should try to taper off of imuran since I've been in remission for a few...
I've been in the same boat too where Canasa was just too expensive. If you're open to getting the generic form from another country I would recommend universal drug store. You just need your doctor...
I'm curious to know what your doc said.. I've been in your boat and I have proctitis too. I definitely agree with what the other members said about trying mesalamine completely first with the pills /...
I can't disagree with you... why mess with something if it works. I've been on it since about mid 2015. I really wish I could go med free and just manage all of this with some natural supplements but...
In my case imuran really helped me get my life back... my doc mentioned tapering for the first time earlier this year. I've been on Imuran since 2015 and have been in good shape since then ( knock on...
I would definitely prefer to be on a much more natural alternative.. I'm aware of options 1 and 2 that you listed but haven't heard of the others. Thanks, will look it up.. ...
Thanks, I will ask my doctor... in the past Metamucil has proved to be harsh on my system but magnesium tablets sound like a good idea.. ...
Yes, I'm currently taking a combination of 75 mg Imuran and 1 canasa suppository at night... this combination plus 1 cap miralax has kept me in remission since around end of 2015. In 2013 I was...
Hi everyone, is there anyone that has taken miralax on a regular basis and found a good natural alternative to keep C far far away. My GI has always told me to stay on it since it works well for me...
Hi, no I haven't tried anything except soft gel stool softeners but they didn't really help. In the past, when I wasn't doing so great I tried Metamucil powder but it felt like it made my symptoms...
Ideally, yeah, constipation should be treated first with dietary changes and increased water intake, along with regular exercise. But unfortunately that's not good enough for everybody. Long term...
Thanks quincy, actually there is no rectal inflammation based on my last colonoscopy ( late last year) and I don't have any proctitis symptoms either. I just find it difficult to keep the stool soft...
Hi all, It's been a while since I posted here... things are going well, had a colonoscopy last Nov/Dec and doc said all looks good, zero inflammation and to continue whatever I have been doing. The...
Wow, thanks for all the replies everyone.. it helps to know that I'm not alone. :) I just found this feeling on my skin so odd so had to ask here.. I was about to book an appointment with a...
Hi all, I haven't posted here in a while as I have been doing good ( knock on wood!) ever since I started imuran last fall. It took forever for me to get in remission and imuran was the answer...
Hi quincy, the dosage is the same as canasa.. 1000mg.....
Hi everyone, I've been taking imuran + canasa combo every day for a few months now... things have been great. A few weeks ago I ran out of my canasa supply and found a few boxes of Salofalk from...
Thanks, that's good advice..I'm sending a note to the doc tonight. It seemed to have gone down a bit in the morning but at the moment it feels a little bigger and tender as usual. Really would like...
Thanks guys, yeah it seems like a swollen lymph node..swelling seems to have gone down already and I didn't have any nausea last night..guess I'll keep an eye on it for a few more days... thx!...
Hi everyone, I've been on Imuran since Aug of this year...am completely off all steroids now ( thank god, was on the cortenemas on/off for about a year so it is quite an accomplishment). I haven't...
Thanks guys! iPoop, I think you're right... it's probably nothing. I usually always see food residue on my stool but I've seen a very tiny bit of red on tp ( maybe a total of 2-3 times) in the last...
Thanks Sheri... I just updated my signature.. I'm no longer on Lialda... have been on imuran since august'2015.....
Hi everyone, I'm sure this is a common problem but thought I'd ask... red peppers / tomatoes are regular vegetables in my diet and occasionally I have noticed a red speck here and there on TP. I have...
Thanks guys, Imuran hasn't really been causing that much trouble... just this slight feeling of a cold coming on that I get sporadically... other than that I've been doing really good.. no nausea,...
Hi everyone, my doc started me on Imuran ( 50mg) on 8/3 since I was unable to get off the cortisone enemas...I'm doing good symptom wise and am slowly tapering off the enemas. In the last month or...
Thanks Dikid, the mesalamine enemas don't really work for me... so I think the best way for me to taper eventually will be with the steroid enema on alternate days. I noticed from your sig that...
Thanks, I had a feeling that tapering was probably a bad move since it hasn't even been 2 weeks...it's amazing how one night of not taking the enemas can cause symptoms immediately....
Hi all, I started Imuran last Mon ( 8/3) and asked my doc if I should still continue with the steroid enemas or taper to alternate days. I was told that I can try alternating if I feel perfect....
Thanks, I cannot disagree at all.. the thought of being on either the steroid enemas or imuran is bothersome to me but at the end of day, I need the right maintenance med and I don't think steroids...
Hi all, I've shared my story here before but in short I've been struggling to get off the hydrocortisone enemas these past few months and I know that it's not a long term solution. I've been on and...
Thanks guys.. I definitely feel like there is some connection. Kdragon09, just curious.. did you have any other symptoms when you were eating high / moderate GI foods besides bleeding? Also, can you...
Hi all, I was wondering if anyone thinks there is a connection between High GI foods and inflammation...I've noticed that I have a little bleeding whenever I have white flour, potatoes or rice based...
Hi everyone, I've been trying to get off the steroid enemas for a while now and recently thought I'd try going gluten free for a week to see if it would help ( am already following a dairy free / low...
Thanks everyone... it's definitely very frustrating to have both IBS and IBD since most of the time I just can't tell what's going on. I was eating whole wheat indian breads, whole wheat tortillas...
Hi everyone, I decided to try a pretty strict gluten free diet this week to see if it would help me... I think it caused more harm though.. system just seemed to be clogged up for the most part.. c...
Thanks... I might give buckwheat and millet flour a try someday soon.. they sound like good alternative options.....
Hi imagardener2, I just tried almond meal for the first time this week and don't think my system liked it at all either! I was just curious about what kinds of fibrous things you eat assuming you...