Second shot went well as well...
I'm on azathioprine and other than a sore arm, I had no side effects. I got the Pfizer...
I had my colon removed and I got arthritis instead. I was put on Azathioprine again. You're right when you say that only the site of the attack is removed but not your autoimmune disease. I've been...
I had a sore arm for 24 hours and then it went away. It's all good. I'm bracing myself for the second dose. I don't mind if I get sick for 24 hours again because it's worse to be on the ventilor....
The Pfizer. I'll be back in 3 weeks...
Because I'm on azathioprine I was eligible however my State didn't ask for proof My arm just feels sore so far Let me know if you have questions...
Utah...
I was on cipro and very sick. But I'm speaking with my GI again on the 25th of January. He already referred me to a surgeon. And she has bad reviews. I don't want to go to her. If I have to go, I...
I just quit uceris after I was done with it...
I decided to have my j-pouch redone but only if the surgeon I picked will take on my case. I'll have an appointment in February. Wish me luck...
I'd be willing to try them. I also haven't tried stelara and entyvio and I feel I didn't give xeljanz enough time. I just hope my GI agrees with biologicals. And my insurance. The antibiotics are...
So ummm I started antibiotics yesterday and today haven't had a bowel movement yet even though I ate. Does it mean the antibiotics are working? I really just want to find a treatment, not have...
I'm worried biologicals will not work since I failed them while having a colon. I'd be willing to try but I'm worried I'll get disappointed again. I really struggle with the thought of a redo and...
Yes which may be caused by lack of blood supply...
Even if there is a blood supply issue? Doesn't that automatically mean new surgery?...
What medical option do I have? What's the common treatment here?...
I just had a scope and I have more inflammation than last year. He was talking about a redo and blood supply issue I actually thought I was doing well because I had no significant symptoms but then...
Why would you want a colostomy over an ileostomy? Just curious...
I tried to use visbiome but it gave me acid reflux. Now I have a jpouch and I take a 10 strain probiotics from a wholesaler. I must take it 4 times a day. If I go down to 3 I get sick....
I just wanted to quickly check in and say that I'm doing OK. It's been ~1.5 years since I had the take down and it's been quite a roller coaster. I was diagnosed with arthritis so I went back on...
It's just how she felt about the stoma. It's really not for everyone. I was fine with mine and if they told me I'd have to have it again I'd be OK with it I wonder what her tattoo (?) said in the...
Hi Sarah. I tried SCD for about 8 months before giving up. I would have loved it if it had worked but sadly I was still bleeding. I'm glad I tried it though. I tried many other things like CCherbal...
I was basically flaring since diagnosis with the exception of remicade and sometimes azathioprine. I had my colon removed after 16 years. Generally it's not a good idea to have constant inflammation....
Yes I get them when I'm flaring. I also get genital ulcers at the same time. Very debilitating I have a J-pouch now and it still happens. Yes I can still "flare" it just has different targets in my...
Well the autospy wasn't conclusive so I can only guess. I have no idea why he suddenly passed away. I'm sorry for your loss....
Yea I have those too but it's easy to overcome. Did you get my email 3timechamp?...
Today I was able to pass gas over the toilet. It wasn't possible in the last couple of weeks. I'm still trying to figure out why. I've been dilating every day....
What was yours and how did it get better?...
Today I feel like things are manageable again. It always fluctuates....
He already said he wants to put me on biologics if cipro fails and things so I know I can come to him and request it. But I'm hoping it will get better. Isn't the first year the hardest anyways or...
I like my gi and I like how logical he approaches things I'm just not ready for biologicals to be honest with you...
I'm glad you can do that but I can't. I have so many additional things to do and I'm in pain every day. I wear diapers I have to listen to my body and take it slower than I normally would otherwise...
No I haven't called them except the billing department because I keep having issues and keep being threatened with collections even though I made payments it leaves a sour taste in my mouth right now...
I dilate myself and it helps I just have to do it every day. That's not the problem anymore. Somehow I got inflamed again and I don't know what I did wrong. I'm able to release the gas so it's not...
I had bad nausea each time I started azathioprine. Each time it passed and it got me into remission. I was living on ginger for a while...
I was doing a little better and now I'm struggling again. My eyes are swollen from crying all day....
I had my colon removed in 2018 and I'm struggling...
Stem cell treatment isn't an option for me. Also I'm no longer a German citizen so going back to Europe is also out. Sorry if all this sounds negative and dismissive. I seem to be OK on probiotics...
I tried LDN a while ago and I had one of my worst flares while on it. I also tried CCherbal, SCD diet, nicotine patches and lozenges, tumeric, L-glutamine, spinach & seed flower diet. I can't...
That's what I meant I also became immune to mesalazine because I used it so much it had no effect. Also prednisone needs higher doses and doesn't work as effectively anymore as it used to. I'm...
I'll eventually get immune to biologics as well, no? I already have tried them all. How will it work if they haven't worked before?...
Thank you all for your support. I appreciate all the responses. I'm sorry if I'm sounding bitter but it's really not easy. Just a quick update. I've increased my probiotic intake and I seem to have...
Nothing good has come along in the 18 years I've had this disease. I even went through surgery to get rid of it and I'm still plagued with inflammation in my intestines, lady parts, mouth and joints....
I need to ask my surgeon to get one maybe I truly believe it would solve all my issues but I highly doubt he will perform it. He said only older surgeons do it...
Did you have the mucosectomy? Because I didn't...
I should have known it because I was always flaring with UC as well....
Constipation for a week followed by diarrhea...
I know he's on biologics now. I need to call my GI...
How many capsules would be needed if I started taking it? I'm currently flaring...
I've had my jpouch for over a year now and I just finished a course of antibiotics 2 weeks ago and now I started flaring again. I can't be on cipro constantly? I haven't called my gi yet to refill...