He’s on protonix and they tested for hpylori. It takes 2 weeks to come back with results ....
Yes it was really fast. He was scoped 1 week after his appointment. I’ve always gotten in quickly as well. He’s being treated for reflux for now. Thanks for the responses because the stress was...
Thanks All for replying . Son was scoped up and down and there were signs of reflux and also internal hemorrhoids (probable cause of the temporary blood). There were no signs of IBD!...
I had 1st shot of Moderna (on Remicade) and had mild headache and body aches 24hrs later. I agree that an immune response is a good thing....
I just got my first Moderna and from the people I know it is the easier one to tolerate . I heard more reactions from Pfizer . I had headache but that’s it/...
Hello I’m super concerned about my 24 yr old son. He is in med school and has terrible reflux. He takes Pepcid as omeprazole GIVES him diarrhea. Lately he’s been complaining of fatigue, inability to...
Jane Once in remission on a biologic you will not need a rectal med long term. You can use the steroid enema/foam if a mild flare creeps up....
I. PA moved us to the 1A group so I now qualify and made an appointment...
Yes it can be missed if rectal inflammation or if it’s mild . I think it works better for the small bowel to rule out Crohns . I had one a few years ago and it was normal but a sig scope showed mild...
Maybe it’s just a small flare that a short course of pred will fix. I had a few small flares on Remicade that went away with 2 to 3 week course of prednisone....
I’m sorry to Spring. My friend just got a colectomy and is doing well! She was at your point but didn’t try the Stelara (mainly because pred stopped working). At least the surgery is a cure....
I agree with flowers as I also tried every imaginable natural thing and it didn’t work. Once in remission, I can eat anything although I don’t eat raw veggies (too chicken to try). I tried SCD and...
No tapering and this happened to me once. My doc swore it didn’t make me worse but just didn’t work. I did try it again about 2 years after that and it didn’t make me worse, but also didn’t stop the...
I felt anxious and depressed after the diagnosis . It’s the unknown that causes the anxiety and in addition to everything else you’ve gone through,it’s a lot to deal with. I had to start Lexapro and...
I failed Humira but had success with Remicade. I did have a response with Humira for awhile but not long . I guess I lost response but didn’t fail it altogether. I wouldn’t waste a lot of time with...
She can’t tolerate the Mesalamines . She responded to Humira for a several months but then it stopped working for her. She then tried Entyvio and Remicade with 6mp. Her scopes are basically mild and...
I have a friend with mild UC on the left side. She’s been on Humira, Entyvio, Remicade and now Xelanz. She was doing great the first few weeks on Xelanz but is now having flare symptoms again. She’s...
Honesty I would never say it’s a nuisance to try a diet, but Some of the diets are hard because of the high fiber. I cannot eat oats and that’s a big staple in the IBD diet. Also other diets include...
I would love to live on a plant based diet but it’s hard to digest so many veggies. I eat only fish and chicken as my protein at this point ....
I was living with 3 - 20 something kids who had covid and didn’t know it until they got tested. I didn’t get it either . I do have 0 negative blood but so does my son and he got it....
Yes thanks so much! I started on Macrobid today which is low risk for C diff. It’s better than waiting and ending up with kidney infection. I feel better about it now, but what an ordeal having to be...
Thank you so much! I went to a minute clinic and they were very good. I definitely have a UTI and started on Macrobid and Florastor. Macrobid is very low risk for C Diff so I feel a little better...
I am still on Remicade and doing ok but getting a UTI and I’m terrified of antibiotics . I had c diff 5 years ago and also am afraid of flaring. Has anyone treated UTIs naturally? Is macrobid easier...
Hi I’m on Remicade and have a history of C diff. I’ve managed to stay off of antibiotics for many years . Now I think I have a UTI starting and I’m terrified of antibiotics. Do you have any...
I drink lots of tea but cannot tolerate coffee....
I have it and I have found that 5ASA meds and also the biologics increase it . I’m so used to it now that I ignore it...
A week for sure!...
If not seeing blood stick with it and figure out a solution for the IBS portion. I was the same way but had a clean scope. I was out on lexapro for anxiety and it helped tremendously. Having said...
Well now I am flaring with blood so not sure what happened....
Hi all Been doing well on Remicade and had second Shingrix vaccine shot on Thursday. I have had Intestinal pain and increased BMs since. I may have had some symptoms the morning prior to the shot as...
I have had family over on the 4th. I went out to eat a few times (but that’s it). I go to the store sometimes? I live in PA where masks are mandatory and things are not quite opened up. Previously I...
My doctor told me that studies show that Remicade users are not at a higher risk. Initially I was very strict but now I just take general precautions. He did say that prednisone and immunomodulators...
I can pretty much guarantee you that kefir will not put you in remission. It will give you gas and bloating though. It’s worth trying very small amounts and working your way up but it’s also worth...
Ditto what CC said...
My hospital just restarted doing colonoscopies and doc said the rules are very strict. You should be fine...
I have to agree with the others . I tried digestive enzymes and they didn’t work . Other than avoiding high fiber foods or eating very plain, getting the Inflammation down is the only solution....
I emailed you a few days ago on this subject...
I wish you all the best as well. This is such a tough situation to be in. I hope the prednisone kicks in so you can get some relief in the meantime. Try to focus on the baby. I’m so sorry this...
This is good news! I have osteoporosis too and haven’t been on steroids long term. Your dose is so low and I wouldn’t worry too much....
All of your options are good but everyone is different. Remicade has a good track record and has been around a long time so maybe start there? It works fast for some and takes months for others. The...
I have more issues with transverse colon that any other area. I responded well to oral And rectal Mesalamines for the descending colon and lower but not area around splenic flexure. My doc basically...
I will add that I am also on Remicade and once on the right dose it’s a great drug of it works for you. I had 1.5 years of remission eating anything I wanted . I recently had a mild flare and too a...
Ya know I have a friend on entyvio every 4 weeks and she always complains of feeling like a truck has run over her. She first thought it was from weaning prednisone and now I was concerned she might...
Yes spring you do have options and at least with Xelanz you don’t have to venture out for infusion . Remicade has been very good to me and yes the 20 day pred course did the trick so far anyway. I’ve...
Hi Spring I’m bummed for you too. Maybe it is time for a change to something like Xelanz. I know you were very patient with Entyvio. I just got through a minor flare after a 1.5 year remission on...
Glad you are on the mend. Double whammy for you to have the severe GI symptoms as well. At least there is no flare to worry about. You are a true survivor t...
I have heard of this back when I had cdiff . I stopped eating all pork products since . The antibiotic should be fine and maybe it will help your UC symptoms as well. What an awful time to be...
Oh I’m so sorry! You will get through this!!! Please keep us posted...