Good for you. I had a choice of being vaccinated in March with AstraZeneca (GP had some leftover vaccines at the end of the day while doing the over 60s) or waiting until June (when it should have...
Hahaha I'm sure you won't be alone in that! I am also neurotic but better to be safe than sorry.......
Pps another symptom is fainting...
Ps. The other thing, in the highly unlikely event you end up in hospital with a thrombosis post vaccine, don't let them treat you with heparin as that makes it worse (though they ought to be educated...
Hi I don't know what they would do in Canada (I'm in Europe)... I educated myself via google because at the point when I had mine they were still establishing if the risk was there. A quick search...
The main risk factors seem to be being young and female. I asked my GI because I am on both xeljanz and birth control which both have a thrombosis risk, he said he was very happy I'd had the vaccine...
I no longer use the NHS (am living outside the UK) but my sisters with crohns do, so I know how it works... if you get to the point where the symptoms are significantly impacting your life then you...
😂😂😂...
Order some KFC (joke) I'm the same height as you and weigh around 125 pounds and I'm happy with that, but I'm a woman......
Re bag supplies- I feel similarly about medication. Any break in the supply chain would mean I get very sick, very quickly....
No, I've seen them in the supermarket - also the mealworms - and thought it was disgusting 🤣. Yes the wings and the legs freak me out too...I'd probably try one if they were being served as a snack...
I think I'm not allowed to post a link but if you search for "eat grub" and "edible crickets" you can buy them online (uk). Nom nom nom....
I'm also curious! Good luck 🍀🍀...
That tool gave me a 0.8% risk of death on xeljanz and mesalamine. Bear in mind that the statistics there are biased towards more severe cases because many mild and most asymptomatic are simply...
GP should refer you on to a gastroenterologist for a diagnosis. It could be crohns or colitis, you'd need a scope to get a better idea which it is, if either.....
Yep. I had the Astrazeneca vaccine 3 weeks ago, which has the same problem. It was a bit scary waiting to see if I would suffer these vary rare side effects. However the odds of dying from covid are...
Unfortunately some people are allergic to mesalamine. That has no bearing on how well biologics are going to work. Flares also get worse if a given medication doesn't work for you. That doesn't mean...
Mesalamine acts locally on the lining of the colon. Unlikely to influence a systemic immune response....
Hmm I'm more like UCyousee in that i try to eat anti-inflammatory and nutrient-dense foods as much as my body can tolerate, because that's good for overall health, but beyond that I gave up trying to...
Have you been tested for C diff?...
Hi thank you for sharing your experiences and experiments with your diet, happy it works for you and hope it might help some others. Here's the thing with the diet. What you're suggesting is quite...
Redness itself is not tooo bad... I've had scopes where my rectum was full of yellow ulcers......
Those people who are suggesting "natural" remedies please be aware that the OP has low albumin, this could be a sign of protein-losing enteropathy which is a medical emergency. The time for natural...
Oh really? That's a lucky coincidence 🥳...
Hi i used mutaflor for about a year. I live close to Germany so i could just drive over the border to buy it, as they sell it in pretty much any pharmacy over there. From the uk there used to be an...
That's not a bad idea if you can pull it off. There was a thread on HW from 2 guys on the upadacitinib/rinvoq trial, they were both doing really well at the last update....
Check the other thread(s) on vaccines on this page. Lots of people have had mRNA vaccine and noone flared. I had an Astrazeneca vaccine 2 weeks ago and did not flare (in fact i just measured my fecal...
Most UC-ers have to take medication for life. I know one person with a very mild case who doesn't need it since his first flare up, and a few people on this board can manage their symptoms with diet....
Hmm i think it's really a lottery which one you pick, because you don't know which one will work for you in advance. Skyrizi i thought was an IL2,3 inhibitor not a jak inhibitor? Either way, not sure...
At the risk of sounding offensive, refusing medical treatment when seriously ill is pretty irrational. The low albumin is worrying, and I'm not sure that feeding her lots of protein is going to fix...
I would postulate that the people on this forum tend to have more severe disease, and hence tend to require medical (or surgical) intervention....
It's possible that her state of inflammation and malnutrition is also causing her to not think clearly and hence the fixation on natural methods. Having skimmed through her old posts I think she must...
I have been on xeljanz for two and a bit years now, it gave me my life back. Sometimes I forget that I have UC. Of course I live in fear of when I'm going to flare again but I'll take what I can get....
Dear Jayce, I can understand your frustration. Here my gastroenterologist referred me on to the infectious diseases clinic in the hospital for that side of my treatment. They had never heard of...
I'm sorry to hear that and can imagine your distress 😥 I was reading through some of her older posts and saw she'd been on prednisone. In the long term, biologics are much safer than steroids. I...
Dear Deee's family member, Lots of us on this forum have taken or are taking biologics for years and have had no adverse effects. The fact that we are taking them does not mean that we didn't want or...
Ps my doctor's advice was "if you get shingles you can stop taking Xeljanz for a week."...
Hi Old Hat Xeljanz is specifically associated with a higher incidence of shingles so that's why some doctors recommend a vaccine. Unfortunately shingrix is unavailable where I live (apparently all...
I've not had one because the only vaccine available where i live is zostavax which is live and you can't take live vaccines on xeljanz. Shingrix is safe to take but not available yet in my country....
chicken wings, i also did not do well with remicade or entyvio. Stelara was not approved when I was at that stage, so I tried xeljanz instead. Xeljanz is not a biologic but another drug with a...
I would guess either wanting to limit immunosuppression or other side effects (prednisone) or other meds just ineffective....
I would also please encourage her to find a top notch IBD specialist who can support her to make the switch to stronger medication if she hasn't tried them We all want to heal ourselves naturally but...
Yes, I've taken biologics with 5-ASA meds and azathioprine (imuran) and even prednisone (short term) Only the last 2 make you more immunocompromised.......
I don't think anyone knows how long it will work... 😒 No worries re humira. It only means that you might mount less of an immune response than if you weren't taking it, but should still get at...
I eat whatever I feel like.... I've always felt better after colonoscopies because they clear everything out. Mind you I've only had full scopes while flaring....
Xeljanz (is not a biologic)...
That's awesome! Long may it last!...
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4628015/ ...
I hear you. I cried when I got the phonecall to go for a shot....
I don't really understand anger at modern medicine, it's not like we are paying them personally to come up with a cure so why should we feel entitled to one? I mean, we don't get angry with other...