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geezernow

HealingWell Forum
>
Member Profile
Display Name
geezernow
Profile Created
11/27/2017 6:57 AM
Last Seen
4/9/2021 6:09 AM
Total Posts
234

Last 50 Posts

‘Miracle’ probiotic for ibd, ibs - Mutaflor?!

I've been using Florastor for many years with very good results. It's available through Amazon and contains saccharomyces boulardil lyo CNCM 1-745. It does not have to be refrigerated, is a capsule...

4/9/2021 6:09 AM

Ulcerative Colitis
Are we immunosuppressed? (Without steroids/immunosuppressive drugs)

I'm in the US and in my state, any 'adult'...over 21, is now qualified to get vaccinated. I'm on Entyvio but my doctor told me it was ok to get the covid vaccination....

4/8/2021 4:23 AM

Ulcerative Colitis
I don’t want to stop taking my meds! Help!

YUP, look around for a really GOOD G.I. doctor. You may also wish to ask your doctor about some mild anti-anxiety meds. My doc prescribed some for me a while back and it got me back into full...

4/8/2021 4:20 AM

Ulcerative Colitis
Questions for people who got covid vaccine.

Had my second shot a month ago with no problems...other than a sore arm and a few aches after the first shot. NO problems since. Better to get the shots and have the mental security, than to GET...

3/28/2021 4:56 AM

Ulcerative Colitis
Still bleeding and now mucus

SEEMS to me, you need to consult with a gastroenterologist instead of a surgeon. Have you ever had a colonoscopy? Hope you feel better soon....

3/20/2021 4:35 AM

Ulcerative Colitis
Help Understanding Lab Results - Calprotection over 6000

I switched from Remicade to entyvio. Insurance forced my doc to prescribe Humira first with no success. Then to Entyvio immediately. It took about a month to really feel like I was going into...

3/13/2021 7:38 AM

Ulcerative Colitis
Nervous about taking prednisone

Every time I've taken prednisone, I've had jittery hands, tingling in fingertips, brain fog, and vision problems, insatiable hunger, weight gain, elevated blood sugar, and wobbly legs and shaking...

3/13/2021 7:33 AM

Ulcerative Colitis
Glaucoma

yup, I too have glaucoma. I have no idea if UC and my glaucoma are related, but with the faithful use of my prescribed eye drops nightly; the glaucoma has gotten no worse over the 5 years since...

3/11/2021 7:56 AM

Ulcerative Colitis
Where is IPoop????

LOL GREAT NEWS IPoop!! and thank you Stray....LOL Stay safe and keep in touch all. You have to KNOW that so many of you have helped so many others with your advice and information. Best of luck to...

3/2/2021 3:16 AM

Ulcerative Colitis
Where is IPoop????

LOL sorry stray....a computer guru I'm not. LOL...

3/1/2021 2:10 PM

Ulcerative Colitis
Where is IPoop????

Where's IPOOP???? I worry when I don't see a regular poster on here for a while. I hope all is well. Best to everyone. Geezer, I gave you a title on this one since others has posted here. Deleted the...

3/1/2021 12:02 PM

Ulcerative Colitis
Remicade or Stelara

Remicade would be MY choice. I know everyone is a bit different; but Remicade worked so great for me that I'd advise anyone to try that one. I stayed on it over 20 years before building antibodies to...

2/27/2021 6:16 AM

Ulcerative Colitis
vinny96

I too was on Remicade and did GREAT. Then due to antibodies, switched to Humira with no good results. Went to Entyvio and after about a month or two...forgot....I've pretty much been in full...

2/24/2021 11:21 AM

Ulcerative Colitis
Biologics / infliximab - game changer

Yes, used Remicade for over 20 years and the majority of that time, I remained in remission. The worst time I had in all those years, was when my insurance refused to pay. All heck broke loose then...

2/20/2021 6:17 AM

Ulcerative Colitis
Pfizer or Moderna?

Got 2nd shot of Moderna Monday. This time, I had NO side affects. Didn't even have a sore arm. Now, on to see if anyone has any problems from this stuff in the future. From what I've been able to...

2/17/2021 6:31 AM

Ulcerative Colitis
Colonscopy effects?

gas is perfectly normal after a colonoscopy, as is a little bleeding if you had biopsies. If your colonoscopy shows no signs of UC and you aren't in a flare, I'd stick with what is working for YOU....

2/10/2021 6:15 AM

Ulcerative Colitis
Can a less watery diarrhea be a result of C diff at 21 age

It;s possible for anyone to get Cdiff. If you have lots of diarrhea with a TERRIBLE odor....see your doctors lab for a stool test for cdiff. Also, it is highly contagious so be sure you clean...

2/10/2021 6:05 AM

Ulcerative Colitis
Pfizer or Moderna?

I got the Moderna 1/20. First day nothing. Second day a little sore all over but not bad at all. Been fine since. I THINK....if you trust our government...USA...any vaccine they allow would be better...

2/8/2021 4:16 PM

Ulcerative Colitis
The Anxiety of Returning Symptoms

For me, stress is my enemy. As soon as I begin to flare....any blood, diarrhea, spasms...my doc puts me on Clonazepam 2x a day. After about a week of it, I begin to taper from twice a day to once....

2/3/2021 7:00 AM

Ulcerative Colitis
high dose probiotic and biologics (entyvio)

I'm on Entyvio and my gastro doc tells me to continue taking mine. I use Florastor but he like Kiefer....

2/2/2021 4:35 AM

Ulcerative Colitis
got the first shot of moderna vaccine

2nd day felt a little sore all over, but am fine now. Sheesh....the trust we put in our government. LOL...

1/22/2021 4:56 AM

Ulcerative Colitis
got the first shot of moderna vaccine

My wife and I both got our first dose of the moderna vaccine yesterday...due to age....I'm currently on Entyvio so I'll keep everyone informed as to my progress. So far, only a little soreness at the...

1/21/2021 5:14 AM

Ulcerative Colitis
Experience with biologics

My GI doc got approval for me to begin Remicade in 1997. It wasn't approved for UC back then, but he's a great doc and a very smart fellow. I had NO reactions or side effects from Remicade until my...

1/17/2021 7:29 AM

Ulcerative Colitis
Poll: Stress and UC connection

In my case, it plays a BIG part. I have IBD as well as UC and if I'm under stress, it lets me know. I was having a terrible flare a while back and nothing was helping. The more I worried about...

1/17/2021 7:21 AM

Ulcerative Colitis
antibodies and the covid vaccine

Hi all, Have only been lurking for a while since I'm in remission!! I have a question about the covid vaccine and the theory of people building antibodies to it if they don't get the 2nd dose of the...

1/13/2021 7:52 PM

Ulcerative Colitis
update on promising new drug ABX464

probably another 5 years! Funny how the big drug companies can pop out a covid vaccine in a year but it takes YEARS to get a UC drug approved in this country. Oh well....I suppose better safe than...

12/18/2020 2:59 AM

Ulcerative Colitis
Nervous about starting biologic

I was on Remicade for many many years...over 20, and never had ANY problems until I developed antibodies. I'm now on Entyvio and doing well. I will tell you that BlueCross/Blue shield made certain...

10/19/2020 2:23 AM

Ulcerative Colitis
After 20 years - how often do you c-scope?

Hi everyone! Like Jen, I'm in remission so haven't posted in a while. I've had UC for 24 years and now have scope around the 2 year interval. Good luck and relax all ya can....

10/1/2020 7:12 AM

Ulcerative Colitis
Weight gain on prednisone or fluid retention

Most definitely prednisone will cause both weight gain, never feeling full after eating, and fluid retention. Also will give you shaky hands, sweats, acne, fuzzy vision and a fat, round, head! Good...

5/30/2020 6:05 AM

Ulcerative Colitis
Probiotic recommendations

Florastor has been working great for me. Was drinking 8oz of Keifer daily but never really enjoyed the taste of buttermilk. I think most any probiotic with LIVE bacteria is good. Yogurt is also good...

5/30/2020 5:59 AM

Ulcerative Colitis
Entyvio

Hi Cario….I was on Remicade over 20 years and did great until I got antibodies to it, then tried Humira...nothing bad, but didn't work for me. I've been on entyvio since last year and have been doing...

5/23/2020 6:26 PM

Ulcerative Colitis
WANT URGENT HELP ASAP ! Pain in chest for almost 6.30 hours now.

Go to your doctor, walk in clinic or emergency room. You could have pneumonia, pleurisy..especially with the fever!!! IF it is, you could do permanent damage to yourself by not getting it taken care...

5/21/2020 5:17 AM

Ulcerative Colitis
Is this as good as it’s going to get?

Do as CC suggested. And NO...you are not as good as it gets....but be patient, take your meds, and you will get into remission eventually. All will be as good as ever for you hopefully. It has for...

4/21/2020 5:43 AM

Ulcerative Colitis
Entyvio infusion in 2 weeks and COVID-19

I had my Entyvio on the 3rd of April. My doctor highly approved of my not missing it. No problems at all so far, and I am in a 'high risk' category due to my age and pulmonary damage. I DO wash my...

4/21/2020 5:39 AM

Ulcerative Colitis
Gax-x

Andrina….I use a mortar and pestel. A food processor also works....

4/1/2020 5:18 AM

Ulcerative Colitis
Gax-x

Fennel seed tea. LOL Grind the seeds first than make a tea of it just as any tea. Beano and Gas-X never did anything for me....but we're all different I guess. Good luck to you...

3/31/2020 6:22 PM

Ulcerative Colitis
Have both Corona and Pnuemonia

Hope you get MUCH better soon Champ. You've been through a rough time;so hopefully, you're on your way to being good again. Pneumonia alone makes you weak for quite a while. Take it easy but exercise...

3/31/2020 6:20 PM

Ulcerative Colitis
Flatulence! Help

I know...sounds dumb but....when I was have a TERRIBLE time with it, I tried fennel seed tea. You have to mash or grind the seeds for best results. Then just let it steep in boiling water until it's...

3/31/2020 6:12 PM

Ulcerative Colitis
Have both Corona and Pnuemonia

So sorry to hear this champ...best of luck to you, fight it and don't give up....

3/27/2020 7:06 AM

Ulcerative Colitis
Side effects of prednisone is this all normal?

symptoms will go away when you're off of prednisone. Mine usually gets better when I bet below 20 mg. I HATE prednisone!!! Watch the eating...it will cause you to gain a bunch of weight. Plus, it can...

3/27/2020 7:04 AM

Ulcerative Colitis
Entyvio infusion in 2 weeks and COVID-19

Make me.... I'm in the same 'boat' as you. Next Entyviois scheduled for April 3rd. Hopefully, they'll have it set up so I don't have to make a tour of the dang hospital to get to the infusion suite....

3/23/2020 7:00 PM

Ulcerative Colitis
DANG, I'm in remission!!!!

Maaaaan….I was almost totally confined to our house for the past two years due to being in a terrible flare and C. Diff. A little over a month ago, my doc got the right combination and I've felt...

3/23/2020 6:50 PM

Ulcerative Colitis
Prednisone- Side effects

yup, I've been on 90 a day and had sweating, blurred vision, 'pred.head'...couldn't focus on ANYTHING, oily skin, blood sugar went sky high, hands and legs felt like rubber bands....just ALL messed...

3/23/2020 6:37 PM

Ulcerative Colitis
I keep feeling like I'm going to pass out

Sarah, I don't want to alarm you, but my wife had a heart attack after experiencing symptoms like yours. Turned out she had no blockages but she has an electrical issue with her heart. Don't let your...

2/16/2020 7:00 PM

Ulcerative Colitis
C. Diff or Colitis?

I also began Florastor after having C.Diff. I've been just fine since. It did take two rounds of Vanco to get rid of mine. As Garyi stated....the test results could be determined much faster!! Best...

2/16/2020 6:47 PM

Ulcerative Colitis
Insurance is stupid (a rant)

I must agree....insurance offer some crazy 'solutions' to our med. needs. I still think that the insurance companies should stick with insurance and not practicing medicine. Just my opinion...

2/15/2020 6:51 AM

Ulcerative Colitis
Healing phase, constipation

Also suggest for him to drink plenty of water of fluids....

2/6/2020 8:59 AM

Ulcerative Colitis
C. Diff Positive

Good luck and don't give up on the Vanco. It took two courses for me, but it finally cleared. Have been taking Florastor probiotic since and doing well. Do as Sarah says and bleach EVERYTHING. LOL I...

2/6/2020 8:57 AM

Ulcerative Colitis
from turmeric to remicade

I THINK....stress is the key. It certainly does a number on me. Since I've been taking Clonazepam and a good probiotic, I've been symptom free...something I was afraid I'd never see again. Ask your...

1/30/2020 4:23 AM

Ulcerative Colitis
How to reduce UC flare inflammation

probiotics are well worth a try Florastor seems to be working well for me....

1/30/2020 4:18 AM

Ulcerative Colitis
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