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GloGirl504

HealingWell Forum
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Member Profile
Display Name
GloGirl504
Profile Created
2/3/2015 6:27 PM
Last Seen
1/23/2021 12:02 AM
Total Posts
465

Last 50 Posts

Experience with SuTab

I don't have experience with it but am glad to see a thread has been started. My doctor told me Sutab would be coming out. Good luck and please do update us....

1/20/2021 8:55 AM

Ulcerative Colitis
Anyone try Peptiva probiotic?

Really glad you responded. Sounds fishy. Thank you....

9/1/2019 9:36 PM

Ulcerative Colitis
Anyone try Peptiva probiotic?

Gotcha. We definitely don't need more junk in our bodies....

9/1/2019 9:35 PM

Ulcerative Colitis
Anyone try Peptiva probiotic?

Probably Advanced Digestive Relief. Not the sleep one....

8/27/2019 11:20 AM

Ulcerative Colitis
Anyone try Peptiva probiotic?

Yesterday I saw a commercial for a "clinically proven" or "clinical grade" or something probiotic called Peptiva. The way they advertised it was showing a conversation between two people, one of...

8/27/2019 9:14 AM

Ulcerative Colitis
Can a flex sig and/or its prep jumpstart a flare?

Hmm yeah, that's possible. Hate to admit it. I haven't tried mesalamine enemas since the year I got diagnosed. I could look into it again. There wasn't a bad reaction, just possibly no response to...

8/2/2019 4:12 PM

Ulcerative Colitis
Can a flex sig and/or its prep jumpstart a flare?

Thanks. Yeah, the prep sure did feel invasive. Much more than expected. At this point it has definitely been more than 4-5 days. It's up and down right now, not a steady decline, but still....

8/2/2019 4:09 PM

Ulcerative Colitis
Can a flex sig and/or its prep jumpstart a flare?

Ah, so looks like it can happen, and I'm sorry it happened to you. Thank you for replying....

8/2/2019 4:03 PM

Ulcerative Colitis
Can a flex sig and/or its prep jumpstart a flare?

I just got my first flex sig on Monday. I wasn't having any significant flare symptoms beforehand, just more like general IBS. I did kinda sorta maybe feel I was teetering on going into a minor...

7/28/2019 12:23 PM

Ulcerative Colitis
First flex sig, have some questions

I would feel the same way!! That would be so uncomfortable, and there's no way I'd be able to maneuver myself off the bed in time to get to the toilet if the enema bottle wasn't in my control....

7/26/2019 4:21 PM

Ulcerative Colitis
First flex sig, have some questions

Oh yes. I would never attempt to have it unsedated. Wish I could, but not a chance. Thank you SO much for understanding about the boyfriend thing and sharing your story. None of the nurses seem to...

7/26/2019 4:09 PM

Ulcerative Colitis
First flex sig, have some questions

This is a reply to your whole post but I quoted just the first sentence to cut down on scrolling time for people, haha. Don't get me wrong though, I very much appreciate the detailed answers. I did...

7/26/2019 4:04 PM

Ulcerative Colitis
First flex sig, have some questions

Oh okay, that makes sense. I feel like they've told me I get twilight but I end up very much asleep. Which is fine, haha....

7/26/2019 2:56 PM

Ulcerative Colitis
First flex sig, have some questions

That's helpful info, thank you. So it sounds like I need to start the enemas at more like 4 or 5am. Hope there's no particular reason why they want me to do 6am. I definitely do not need to be...

7/21/2019 6:55 PM

Ulcerative Colitis
First flex sig, have some questions

Hi guys, I recently switched GI's, and the new doc is having me come in for a flexible sigmoidoscopy on Monday. I've have 3 colonscopies but this will be my first flex sig. My instructions are to use...

7/20/2019 8:20 PM

Ulcerative Colitis
Quick question: Humira injection same day as vaccination?

I realized I accidentally planned a vaccination (pneumonia) for tomorrow, same day as my Humira injection. Should I push my Humira injection to the day after or am I just being paranoid?...

5/5/2019 9:29 AM

Ulcerative Colitis
Really, what do you do if you throw up your prep?

Thankfully miralax doesn't have a taste so I just distracted my mind from the fact that this was a prep... If it really comes to that and they have to turn you away I would stand up for myself and...

4/26/2019 6:24 AM

Ulcerative Colitis
Really, what do you do if you throw up your prep?

Ugh. Did you just not like that flavor, or could it have been any flavor but drinking that much of it is just a different story? I do wonder how we, as people who need to get scoped regularly, can...

4/22/2019 2:33 PM

Ulcerative Colitis
Really, what do you do if you throw up your prep?

Man, it's such a bummer that Osmoprep is no longer available. I never got the chance to try it. Did the zofran help you?...

4/22/2019 8:42 AM

Ulcerative Colitis
Really, what do you do if you throw up your prep?

Interesting, you're not the first person I've come across who got sick from the gatorade. Do you know why that is? I don't know if it's the miralax (assuming you did the miralax prep), the amount of...

4/22/2019 8:37 AM

Ulcerative Colitis
Really, what do you do if you throw up your prep?

Hmm, definitely worth looking into. Is that a split dose approach then or do you have to repeat the above process twice? That probably doesn't make sense the way I'm phrasing it....

4/22/2019 8:31 AM

Ulcerative Colitis
Really, what do you do if you throw up your prep?

You're not being a jerk at all, I absolutely agree that *We* are the ones who have to go through this and should get a say. How does the mag citrate taste? When I hold my nose, I end up choking, I...

4/22/2019 8:18 AM

Ulcerative Colitis
Really, what do you do if you throw up your prep?

That's what I've heard...I'm nervous about that though. So I'm supposed to not tell him my plan and keep my fingers crossed? Like, if you tell the doctor that's what you're doing, can they refuse to...

4/22/2019 8:14 AM

Ulcerative Colitis
Really, what do you do if you throw up your prep?

Thank you, I'm seeing more and more people say they've improved their chances by eating lightly a few days before. Glad you understand. It's crazy that even with the solution being diluted, it's...

4/20/2019 2:10 PM

Ulcerative Colitis
Really, what do you do if you throw up your prep?

Thank you for understanding and for the tips, I appreciate it!...

4/20/2019 2:03 PM

Ulcerative Colitis
Really, what do you do if you throw up your prep?

I haven't done so...yet...but I firmly believe I will this time. After getting everything switched over to a new gastroenterologist (due to terrible communication issues with my previous one), I...

Yesterday 11:39 AM

Ulcerative Colitis
A quick review of Citrate-Free Humira

I know there was a post when the new citrate-free Humira came out but I haven't seen anything about it since then, so I wanted to share my experience with it. I've been on Humira for about 3 years...

4/9/2019 6:04 AM

Ulcerative Colitis
Any way to still get Prepopik?

Omg you guys! I think it is! Because on the Pico-Salax site it says it comes in orange or cranberry, and that's what Prepopik came in. I'm going to find out about this (although I'm not sure why my...

3/26/2019 5:50 PM

Ulcerative Colitis
Any way to still get Prepopik?

Hmm okay, I'll have to look into Pico Salax. Is it one that you can dilute? I would think there's still a pill prep out there but maybe not?...

3/26/2019 3:31 PM

Ulcerative Colitis
Any way to still get Prepopik?

Pretty sure the answer is no, but I thought I'd try anyway since I'm desperate. Prepopik is the only prep I believe I can tolerate. I used it for my first two colonoscopies, then it got replaced by...

3/26/2019 2:53 PM

Ulcerative Colitis
Feeling discouraged

Ah okay, thought so....

9/3/2018 9:55 AM

Ulcerative Colitis
Feeling discouraged

True. Can't wait! lol. What are you worried about?...

9/2/2018 3:52 PM

Ulcerative Colitis
Feeling discouraged

I tried a straw but that's an interesting thought to try to sort of bypass the tongue. Hmm, so if you're throwing up, doesn't that mean you lose a lot of the prep and won't be cleaned out? It would...

9/1/2018 5:46 PM

Ulcerative Colitis
Feeling discouraged

Yeah, I wonder if I should do that. Miralax is flavorless, right? Does it have to be Gatorade or can some of the glasses be water? My only concern would be the short intervals....

8/31/2018 5:44 PM

Ulcerative Colitis
Feeling discouraged

They all sound terrible and I really don't believe I can do any other one, but I appreciate the encouragement. Yes, we'll see what happens on Tuesday....

8/31/2018 5:38 PM

Ulcerative Colitis
Feeling discouraged

Oh okay, so you didn't have increased scopes after the polyps were found? I'm guessing that's just if they're pseudo. Gallon...ugh. It's interesting, though, that you don't have to do the liquid...

8/31/2018 5:25 PM

Ulcerative Colitis
Feeling discouraged

Oh wow, I didn't know about the pseudo polyps. Thank you. That does make sense that someone who started out with pancolitis would get polyps more easily. Yeahhh I'm really looking forward to only 5...

8/30/2018 7:38 PM

Ulcerative Colitis
Feeling discouraged

I did make sure to ask for the one I like, but when I went up to the front desk to get checked out, the girl turned to the doctor and said something like, "Don't they only sell that in..." and I...

8/30/2018 7:29 PM

Ulcerative Colitis
Feeling discouraged

I had my colonoscopy today. The last thing I posted about was having to take Clenpiq for my bowel prep and not knowing much about it. I did it and it was awful. I am so, so bad at taking anything...

8/28/2018 8:20 PM

Ulcerative Colitis
Clenpiq Prep?

Another member asked about this just last month, but I'm hoping a few more people have become familiar with it since then (probably not). I had been doing Prepopik for my previous colonoscopies but...

8/24/2018 10:44 AM

Ulcerative Colitis
Just an update

You're awesome-I like your sense of humor about things and of course how you've taken the time to tell me your story. I had never heard of Tacrolimus supps until you mentioned them. Hopefully the...

8/17/2018 6:00 AM

Ulcerative Colitis
Just an update

I'm glad you at least agree that the enemas suck; I see how they're so many people's go-to that I forget it doesn't mean they think they're a breeze! That's good that you didn't get nauseous even...

8/15/2018 4:02 PM

Ulcerative Colitis
Just an update

Yep, it might be time for combination therapy for me. I think every time we've added oral mesalamine it didn't do anything, but the enema might help. Although it would be very difficult if it had to...

8/13/2018 11:30 AM

Ulcerative Colitis
Just an update

Thank you for the input. I believe I did that same test and the results showed that my Humira levels are good and I haven't developed antibodies. Suppositories would be good if I can do that, rather...

8/13/2018 11:24 AM

Ulcerative Colitis
Just an update

Some of you may know I've been out of remission since about mid-April and trying to figure out what's going on since my Humira levels are good. I just wanted to give you an update on where I'm at...

8/12/2018 12:00 PM

Ulcerative Colitis
Finished Uceris foam course, symptoms now coming back...terrified of Imuran

He did mention that med. At least the infusions are much shorter than remicade. I'd be okay switching to it if it didn't have serious side effects (not any more than Humira I suppose) and it worked....

7/7/2018 10:08 PM

Ulcerative Colitis
Finished Uceris foam course, symptoms now coming back...terrified of Imuran

Would the Rowasa be a permanent addition? I'm just wondering because I know a lot of people stay on enemas long-term and it works for them, but if I had to do that every day or even every other day...

7/7/2018 9:56 PM

Ulcerative Colitis
Finished Uceris foam course, symptoms now coming back...terrified of Imuran

I am not. I was on Lialda for quite a while towards the beginning of my diagnosis. The doctor sort of came to the conclusion that it wasn't doing the trick for me. But it's interesting that you and...

7/7/2018 9:33 PM

Ulcerative Colitis
Finished Uceris foam course, symptoms now coming back...terrified of Imuran

Yes, Humira is the only UC med I'm currently on. I've been on Lialda before and it didn't seem to do anything for me, but that's an interesting approach since it would be adding the Rowasa, too. If...

7/7/2018 9:24 PM

Ulcerative Colitis
Finished Uceris foam course, symptoms now coming back...terrified of Imuran

*Sigh* In mid-April I started experiencing flareup symptoms after being in remission for 2.5 years with Humira. Got tested twice for c.diff, didn't have it. Got my Humira levels checked, levels are...

7/6/2018 12:40 PM

Ulcerative Colitis
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