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poopydoop

HealingWell Forum
>
Member Profile
Display Name
poopydoop
Profile Created
12/16/2018 10:03 PM
Last Seen
Today 11:40 PM
Total Posts
994

Last 50 Posts

Upadacitinib clinical trial for UC

I'm also curious! Good luck 🍀🍀...

Today 12:00 PM

Ulcerative Colitis
Covid risk on 30mg Prednisone taper

That tool gave me a 0.8% risk of death on xeljanz and mesalamine. Bear in mind that the statistics there are biased towards more severe cases because many mild and most asymptomatic are simply...

Yesterday 4:41 PM

Ulcerative Colitis
Is this UC?

GP should refer you on to a gastroenterologist for a diagnosis. It could be crohns or colitis, you'd need a scope to get a better idea which it is, if either.....

4/14/2021 5:01 PM

Ulcerative Colitis
Questions for people who got covid vaccine.

Yep. I had the Astrazeneca vaccine 3 weeks ago, which has the same problem. It was a bit scary waiting to see if I would suffer these vary rare side effects. However the odds of dying from covid are...

4/13/2021 7:30 AM

Ulcerative Colitis
UC flare up

Unfortunately some people are allergic to mesalamine. That has no bearing on how well biologics are going to work. Flares also get worse if a given medication doesn't work for you. That doesn't mean...

4/12/2021 12:39 PM

Ulcerative Colitis
Mesalamine and Covid Vaccine

Mesalamine acts locally on the lining of the colon. Unlikely to influence a systemic immune response....

4/11/2021 4:32 PM

Ulcerative Colitis
Remember the spinach and sunflower seed diet?

Hmm I'm more like UCyousee in that i try to eat anti-inflammatory and nutrient-dense foods as much as my body can tolerate, because that's good for overall health, but beyond that I gave up trying to...

4/11/2021 12:28 PM

Ulcerative Colitis
Still bleeding and now mucus

Have you been tested for C diff?...

4/11/2021 10:37 AM

Ulcerative Colitis
Remember the spinach and sunflower seed diet?

Hi thank you for sharing your experiences and experiments with your diet, happy it works for you and hope it might help some others. Here's the thing with the diet. What you're suggesting is quite...

4/11/2021 6:19 AM

Ulcerative Colitis
UP spread signs? Calprotectin.

Redness itself is not tooo bad... I've had scopes where my rectum was full of yellow ulcers......

4/10/2021 1:26 AM

Ulcerative Colitis
UC flare up

Those people who are suggesting "natural" remedies please be aware that the OP has low albumin, this could be a sign of protein-losing enteropathy which is a medical emergency. The time for natural...

4/9/2021 4:48 PM

Ulcerative Colitis
‘Miracle’ probiotic for ibd, ibs - Mutaflor?!

Oh really? That's a lucky coincidence đŸ„ł...

4/8/2021 1:28 PM

Ulcerative Colitis
‘Miracle’ probiotic for ibd, ibs - Mutaflor?!

Hi i used mutaflor for about a year. I live close to Germany so i could just drive over the border to buy it, as they sell it in pretty much any pharmacy over there. From the uk there used to be an...

4/8/2021 1:14 PM

Ulcerative Colitis
Advice on next step

That's not a bad idea if you can pull it off. There was a thread on HW from 2 guys on the upadacitinib/rinvoq trial, they were both doing really well at the last update....

4/8/2021 1:07 PM

Ulcerative Colitis
flare: trying to figure out steroids, vaccine & biopsies

Check the other thread(s) on vaccines on this page. Lots of people have had mRNA vaccine and noone flared. I had an Astrazeneca vaccine 2 weeks ago and did not flare (in fact i just measured my fecal...

4/7/2021 1:40 PM

Ulcerative Colitis
I don’t want to stop taking my meds! Help!

Most UC-ers have to take medication for life. I know one person with a very mild case who doesn't need it since his first flare up, and a few people on this board can manage their symptoms with diet....

4/7/2021 1:36 PM

Ulcerative Colitis
Advice on next step

Hmm i think it's really a lottery which one you pick, because you don't know which one will work for you in advance. Skyrizi i thought was an IL2,3 inhibitor not a jak inhibitor? Either way, not sure...

4/7/2021 1:21 AM

Ulcerative Colitis
UC flare up

At the risk of sounding offensive, refusing medical treatment when seriously ill is pretty irrational. The low albumin is worrying, and I'm not sure that feeding her lots of protein is going to fix...

4/6/2021 3:46 PM

Ulcerative Colitis
What do you try when all the biologics fail?

I would postulate that the people on this forum tend to have more severe disease, and hence tend to require medical (or surgical) intervention....

4/6/2021 7:40 AM

Ulcerative Colitis
UC flare up

It's possible that her state of inflammation and malnutrition is also causing her to not think clearly and hence the fixation on natural methods. Having skimmed through her old posts I think she must...

4/5/2021 4:58 PM

Ulcerative Colitis
Is your dr having you get the shingles vaccine if you’re on Xeljanz?

I have been on xeljanz for two and a bit years now, it gave me my life back. Sometimes I forget that I have UC. Of course I live in fear of when I'm going to flare again but I'll take what I can get....

4/5/2021 3:54 PM

Ulcerative Colitis
Is your dr having you get the shingles vaccine if you’re on Xeljanz?

Dear Jayce, I can understand your frustration. Here my gastroenterologist referred me on to the infectious diseases clinic in the hospital for that side of my treatment. They had never heard of...

4/5/2021 10:32 AM

Ulcerative Colitis
UC flare up

I'm sorry to hear that and can imagine your distress đŸ˜„ I was reading through some of her older posts and saw she'd been on prednisone. In the long term, biologics are much safer than steroids. I...

4/4/2021 12:18 PM

Ulcerative Colitis
UC flare up

Dear Deee's family member, Lots of us on this forum have taken or are taking biologics for years and have had no adverse effects. The fact that we are taking them does not mean that we didn't want or...

4/4/2021 2:58 AM

Ulcerative Colitis
Is your dr having you get the shingles vaccine if you’re on Xeljanz?

Ps my doctor's advice was "if you get shingles you can stop taking Xeljanz for a week."...

4/3/2021 3:11 PM

Ulcerative Colitis
Is your dr having you get the shingles vaccine if you’re on Xeljanz?

Hi Old Hat Xeljanz is specifically associated with a higher incidence of shingles so that's why some doctors recommend a vaccine. Unfortunately shingrix is unavailable where I live (apparently all...

4/3/2021 3:09 PM

Ulcerative Colitis
Is your dr having you get the shingles vaccine if you’re on Xeljanz?

I've not had one because the only vaccine available where i live is zostavax which is live and you can't take live vaccines on xeljanz. Shingrix is safe to take but not available yet in my country....

4/3/2021 7:32 AM

Ulcerative Colitis
What do you try when all the biologics fail?

chicken wings, i also did not do well with remicade or entyvio. Stelara was not approved when I was at that stage, so I tried xeljanz instead. Xeljanz is not a biologic but another drug with a...

4/3/2021 2:28 AM

Ulcerative Colitis
What do you try when all the biologics fail?

I would guess either wanting to limit immunosuppression or other side effects (prednisone) or other meds just ineffective....

4/1/2021 3:10 PM

Ulcerative Colitis
UC flare up

I would also please encourage her to find a top notch IBD specialist who can support her to make the switch to stronger medication if she hasn't tried them We all want to heal ourselves naturally but...

4/1/2021 11:11 AM

Ulcerative Colitis
What do you try when all the biologics fail?

Yes, I've taken biologics with 5-ASA meds and azathioprine (imuran) and even prednisone (short term) Only the last 2 make you more immunocompromised.......

4/1/2021 11:01 AM

Ulcerative Colitis
Questions for people who got covid vaccine.

I don't think anyone knows how long it will work... 😒 No worries re humira. It only means that you might mount less of an immune response than if you weren't taking it, but should still get at...

3/31/2021 6:38 AM

Ulcerative Colitis
What to eat after the colonoscopy

I eat whatever I feel like.... I've always felt better after colonoscopies because they clear everything out. Mind you I've only had full scopes while flaring....

3/30/2021 5:52 AM

Ulcerative Colitis
What do you try when all the biologics fail?

Xeljanz (is not a biologic)...

3/30/2021 1:27 AM

Ulcerative Colitis
There is always hope!

That's awesome! Long may it last!...

3/30/2021 1:26 AM

Ulcerative Colitis
Surgery objections - can you counter these?

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4628015/ ...

3/30/2021 1:20 AM

Ulcerative Colitis
Questions for people who got covid vaccine.

I hear you. I cried when I got the phonecall to go for a shot....

3/29/2021 3:16 PM

Ulcerative Colitis
Surgery objections - can you counter these?

I don't really understand anger at modern medicine, it's not like we are paying them personally to come up with a cure so why should we feel entitled to one? I mean, we don't get angry with other...

3/29/2021 1:32 AM

Ulcerative Colitis
Vaccines

Hahaha! I'm sorry to hear you're having such difficulty getting a vaccine 😠 They really ought to have age-related priority. Over here various groups have been lobbying to get done earlier (teachers,...

3/28/2021 9:09 AM

Ulcerative Colitis
Experience with Xeljanz

It's always good to prepare mentally for surgery but if you've only tried one biologic, you've still got several options before you're at that stage...

3/27/2021 4:56 PM

Ulcerative Colitis
Vaccines

It's 2 days since I had my Astrazeneca vaccine, and I'm feeling fine except for a compelling urge to go out and buy a windows laptop. Ok apart from that... I had fever within an hour of the shot...

3/27/2021 3:58 PM

Ulcerative Colitis
Vaccines

Old Hat, I forget if you have or haven't had a vaccine? In my Facebook i see friends in the US in their 30s and 40s getting vaccines so I just assumed everyone with elevated risk would have had the...

3/25/2021 4:27 PM

Ulcerative Colitis
UC still flaring, but low blood C-reactive protein

I always have low CRP even when I'm flaring, it's just not sensitive to my colitis....

3/25/2021 2:30 PM

Ulcerative Colitis
Experience with Xeljanz

Hi i previously tried azathioprine & allopurinol, remicade and entyvio, they all helped a bit but none of them put me in remission. I've been on xeljanz for just over 2 years and it's the first time...

3/25/2021 2:00 PM

Ulcerative Colitis
Vaccines

Re BCG vaccines, I forget the scientific details but IAC is correct that there have been some clinical trials investigating whether the "general" immune response triggered by a BCG shot could have a...

3/25/2021 10:03 AM

Ulcerative Colitis
Vaccines

I almost fell on the floor this afternoon when the GP called me and said they had some leftover vaccines and would I like to come in for an appointment....according to the national schedule it should...

3/25/2021 9:27 AM

Ulcerative Colitis
UP spread signs? Calprotectin.

One other thing - has he taken any ibuprofen (or other nsaid) recently? That can inflate the calprotectin value......

3/24/2021 5:32 PM

Ulcerative Colitis
Vaccines

There have been some trials looking at whether the BCG/TB vaccine can protect against covid, the results are not promising, see here:...

3/24/2021 12:38 PM

Ulcerative Colitis
About to Give In to Biologics

Limey is 80ish and has been on xeljanz for ~2 years...

3/23/2021 2:32 PM

Ulcerative Colitis
UP spread signs? Calprotectin.

I consider the rectum to be part of the left side (if that wasn't clear)...

3/23/2021 2:30 PM

Ulcerative Colitis
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