Note: Isatis cooling is NOT Qing Dai. It does not contain Qing Dai. Whoever mentioned it in this thread is doing a huge disservice. If you want to try Qing Dai, try *qing dai*!!!...
I had my second dose of Pfizer yesterday. I had flu-like symptoms last night - fever, chills, headache. This morning I had a headache and chills. As of this evening I am almost ok. Just a mild...
I tried it for six months and it did absolutely nothing for my flare....
Hello! I started Humira near the end of last month. My UC symptoms haven't improved. Still cramping, bleeding, and passing unformed stools frequently. How long does it usually take for Humira to...
I gained 10 pounds by adding natural peanut butter to my smoothies. No complaints here :] Any fat you can tolerate will add calories. Try various nut butters....
LOLOL, yeah I was getting maybe an hour of sleep on Prednisone until I hit 15mg. CBD helps immensely....
A colonoscopy is ABSOLUTELY going to have at least two parties: an anesthesiologist (or nurse, if no anesthesia) and the doctor. There will probably be a third nurse. Your wife won't be alone with...
I'm a woo-woo person who has been skeptical of vaccines and spent a long time trying to manage my UC without pharmaceuticals. Didn't work. I ended up in the hospital. I almost died. I'll take the...
Hello! I was recently hospitalized for a severe flare-up of ulcerative colitis. What I find strange is that my CRP upon admission to the ER was actually LOWER (2.11) than it is now (2.69) — it's a...
I freaking love brazil nuts. Does this mean I can eat a handful a day?...
Hello everyone. I haven't posted here in a while. I was diagnosed with proctitis two years ago. I was on Canasa and Apriso for a while, although they both started to fail. I'm on my third prednisone...
Why would you choose surgery before attempting biologic medication or even steroids? Biologics like Remicade are extremely safe. I'm shocked your doctor would even consider surgery before trying...
Hello! I'm in my third flare since last year. I have stubborn ulcerative proctitis. I was on rectal mesalamine suppositories and Apriso for six months or so, but they didn't really help and I had all...
I have UP. I was in a mild flare (up to 12 bms per day) for about six months while taking Canasa. When my flare became very severe (awful pain, couldn't eat), I finally saw my gastro who put on on...
Oh Rosie, congratulations :)))...
@MarkWithIBD You should really try marijuana if you're that desperate for a halt in peristalsis. Don't cry that it's illegal if you're somehow able to get all the drugs suggested above without seeing...
@MarkWithIBD Your resistance for asking your doctor for suggestions is strange. You can call their office for a suggestion if you can't get an appointment. I always email mine with questions. Your...
This sounds awful. Have you spoken to your doctor yet?...
I don't see why you can't lie. Just say you have diarrhea to get the test. The doctor himself won't be looking at it....
You're not eating fiber so of course your stool has no bulk. You're over complicating things. Skip the stool bulking agents and eat vegetables and/or oats. If you can't tolerate those and you have no...
@iPoop unfortunately the blood/mucus has been consistent for the past couple weeks. Otherwise, no other symptoms but fatigue. The blood and mucus are embedded in the stool. Before I was ever...
My doctor put me on pred after a yearlong mild flare became an extreme flare. I tapered off of 40mg over 5 weeks. I'm now off pred and taking maintenance meds (Apriso and just started Canasa). Here's...
@FlowersGal: for Canasa specifically, GoodRX is MUCH cheaper than the manufacturer coupon if you have a high insurance premium, which is the case for this person. Currently prices are around $300....
I had the exact same issue. GoodRx.com has coupons that bring the price down to 400. Print one out and use it at your pharmacy. Still bad, but better than 900. Note: My insurance would NOT cover...
Why did it take him so long to get diagnosed when you have the disease? It should have been blindingly obvious to even a primary care physician once the family history was known. Why did it take TWO...
I personally believe that UC is a *symptom* of a larger imbalance in the body and mind....
I LOVED being on pred. Caveat: it was my first time. It made me feel like I was on MDMA or something....
What are you eating?...
My job is boring and a bit unfulfilling but has an AMAZING work-life balance and very little stress. Totally worth it :)...
While I was flaring, CBD oil gave me horrible pain and diarrhea. While not in a flare, it makes me sleepy... I'm honestly not sure how well it helps me....
Nearly all foods that occur in nature are beneficial in some way. Artificial and processed foods are the killers and DNA mutators....
@Rosiedays— I wish you the best of luck! You're not alone in this. Our symptoms are quite similar. I was a vegetarian for 12 years but couldn't tolerate anything but juice, rice, and meat during my...
@Rosiedays -- I've just started 5mg prednisone today. Stools are still formed and going 1-2 times a day. Symptoms so far: night sweats insomnia increased energy in the morning then a huge energy...
@UCMee — I have UP and took rectal mesalamine suppositories for 3 months. They didn't do anything for my flare. Now I'm taking apriso and it's helped a lot. Why would that be?...
Prednisone was a miracle for me, but it might be different for you. I took 40mg for a week while in an acute flare (lost 10lbs in a week, couldn't eat anything, severe colon swelling and pain,...
Have you tried her on the SCD diet, which purports to change the gut microbiome?...