Since I've not been on pred, I dont have the experience regarding flaring and tapering, although, I and others have suggested enemas while tapering. Since pred reduces the body's ability to produce...
Van Jordan...are you still bed-ridden because of flare? q...
I dont know...i would think his symptoms would dictate that. Some improve a lot after a few weeks, others a few months. I've never been on it, but from what I read, there is no set time. Plus while...
Well...know when it's time to intervene. q...
What did your GI say about it? You cannot use Mesalamine? q...
I take with supper for years. No issues. I use Revew Life Digest More. q...
No, it doesnt interfere...keep taking it. q...
Thanks for the update. It's great all above the 4cm is without inflammation. What exactly were your biopsies pathology throughout? It doesn't seem match your bm consistency... wonder if you cut out...
You mean daily or tapered to a maintenance? q...
Totally makes sense. If you believe the doctors are giving you actual information instead of the glossed over patronising version to ease fears, then it's a good thing. How old is your son? The pred...
A good time to start the enemas would be when he's tapering. And it's an option he can also use steroid enemas during that period. He is quite admirable taking it in stride at his young age. It helps...
Mesalamine isn't a derivitive of aspirin...it's derived from salicylic acid, as is aspirin. However, they are related. Sadly, I don't think anyone will change Dee's hardfast mindset on reconsidering....
Yes...biopsies will confirm severity, inactive or active inflammation, changes in cellular architectural changes., etc. I suggest you get a copy of the results for your records, research and any...
Definitely see a rheumatologist for indepth blood testing and hopefully a switch to a med that will address that. I suggest uric acid testing and rheumatoid factor soon tho. q...
What is long-term specifically to your question? I would say yes it's a side effect, considering that's what steroids do. q...
I have plantarum in my probiotics, but not that particular strain nor near single strain dosage. I see two brands ... Sisu Integris 20 billion and TuZen 10 billion. If you try it...let us know how...
Hi...thanks for the update. Your son's inflammation upward must be extremely mild considering his symptoms ...which is a good thing. The biopsies will determine how mild and if it's beyond. I would...
So frustrating, and so weird since this med is used for many things. I'm wondering if it's being used for covid for some reason? Maybe ask for a mesalamine that is comparable to the amount that the...
I would suggest you use multi-strain probiotics rather than just one strain. q...
Let us know the outcome of your discussion with the GI. I'm happy you called. q...
I'll be getting mine on the 20th based on my age....I'm not considered in the high risk category. None of my meds suppress the immune system. q...
Welcome to the forum. What is the location extent of your UC? Diarrhea doesn't fit with only suppository coverage. You need to be on oral and enema mesalamine. Get a copy of your biopsies results....
Sounds as though both of you are in denial... q...
Convenient process for him. Let me know the outcome of the scope. q...
Hi...good it all went well. I hope your gi took upper biopsies to check for H. Pylori since you have an ulcer. You could consider to use both the steroid and mesalamine enemas daily. I also suggest...
Great your son's scope is soon on this Friday! Where is he going for the prep? q...
I wouldn't bother the day before the test since you will be doing the prep and obviously . Do you split your dosage usually? Take it after your scope with breakfast. It shouldn't make much of an...
......huge difference between using the word cause vs trigger regarding UC and CD. The word used should be trigger. q...
Hi...yes one in the morning and one at night. You were on the nightly enemas continually? What ones and what dosage? What were your symptoms while flaring and what are they now? q...
Some get mouth ulcers or canker sores as extraintestinal symptoms while flaring. I suggest you get them checked, swabbed and cultured, to make sure it's not something else going on. As well...blood...
I suggest you ask the doc for you to do both the steroid and mesalamine for a week...then start tapering the steroid. Tapering is a process...and if you need to step up again, that's OK. Never...
Remind her of Chiron...unfortunately a demise example of postponing meds and eventual surgery. Worst case scenario...yes. Waiting for the magic is her decision. Hoping the lightbulb moment will hit...
What is the tapering schedule suggested? Welcome to the forum! q...
Ask for a colonoscopy with biopsies. Only way to know. No blood with IBS. Blood could be from hemorrhoids or fissures. Welcome to the forum. q...
Aflorex is the same in North America. One strain...I've never used it, and have only used multi strain. If you have it, use it... Hope your scope went well. q...
I have my usual breakfast...boiled egg, toast and tea. When I went out to a restaurant, it was a usual egg breakfast and coffee. Probiotics I use are in my signature. Im looking to try New Roots,...
Discuss with your gastro doc before the scope that you've had diarrhea since the flagyl, and that the enemas haven't helped at all. Ask him if biopsies would show if you have a bacterial infection....
How long was your last scope?...probably regular ones would be best. I started with every 3, then every 2 and now I'm every 1.5 at age 66. And I must say seeing how I'm doing over the past 32 years...
Hi Wish! I second the probiotics. Regarding the enemas...maybe try one type for a few days then the other and see which one seems the offender. How many times a day are you going? Hopefully, the...
Yes...those fuzzy sounds!!! Good on the pics...hope prep goes smoothly 😊 q...
Hi...didn't realise you were in Spain. It's awesome your scope is on Monday! Let us know the outcome and med plan. Ask him to take a pic or two for you...unless youre awake to see what's going on in...
Maybe the increased supps are doing their thing. I suggest sticking with it till the scope for sure. He should have another calprotectin test done to see if there is consistency regarding decreasing...
It's not, but the scope and biopsies will determine its severity and limitation. Ask the GI to take pics from the scope for you to see and understand what it looks like. There are rectal...
Good his scope will be soon. I think the steroid enema would be good as an addition. I do think he's doing pretty good, and hopefully with time and increased meds, he will get into a more solid...
It's definitely interesting no pain. But any discomfort during bms? When is his scope? q...
Healthy skepticism is ok... q...
I dont know about biologics and ilk...but I agree with poopy's opinion. Regarding information, I would classify it as lacking facts and sensationally biased. q...
I would think, based on symptoms, limited in rectum, not left side. But he might have mild inflammation travelling higher...a c-scope (not sig-scope) is a good idea. I do think 4g enemas twice daily...
https://www.dailymail.co.uk/health/article-9383961/New-dawn-war-debilitating-bowel-disease.html Made link live.. q...
A concern if it gets worse or infected. You can squat over a mirror to see if you have one. You can try otc medication or ask your doc for a rx. q...