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limey

HealingWell Forum
>
Member Profile
Display Name
limey
Profile Created
9/1/2016 3:35 PM
Last Seen
4/15/2021 6:19 AM
Total Posts
169

Last 50 Posts

Swollen Fingers and Painful Joints

I have been on Xeljanz for a couple of years now and works fantastic against UC for me , however I do suffer some joint pain in my knees but the strange thing is both of my knees are replacements so...

4/9/2021 10:09 AM

Ulcerative Colitis
Is your dr having you get the shingles vaccine if you’re on Xeljanz?

Well I have had Shingles twice in my life, first time in my 20s and second in my 40s but my GI insisted on me getting the shot before going on Xeljanz some 2 years ago in my late 70s....

4/3/2021 10:11 AM

Ulcerative Colitis
Experience with Xeljanz

Sounds like your husband is doing well but can I offer an alternative as to dosage, I also tried to go down in dosage but was not held as well so I tried a different approach instead of using 10mg...

3/27/2021 8:35 AM

Ulcerative Colitis
Experience with Xeljanz

Well Im 80 years of age and like many others have gone through the biologics over the past few years. For myself Xeljanz has ben the best thing since sliced bread. I started on it 2 years ago to the...

3/25/2021 1:32 PM

Ulcerative Colitis
Questions for people who got covid vaccine.

Got Pfizer vaccine a couple of days ago no problems at all, not even a sore arm. Some one mentioned being worried about having to give up their meds for some reason I am on Xeljanz and a couple of...

3/15/2021 8:14 AM

Ulcerative Colitis
Failed Humira, and now Remicade, what’s next?

Xeljanz started working for me within two days and that was two years ago. I even went off it for 3 weeks when I had a knee replacement and stayed controlled for the first two weeks....

2/26/2021 2:22 PM

Ulcerative Colitis
About to Give In to Biologics

Interesting, from what I've read Xeljanz isn't typically given for IBD. Why did they go with that over Humira, Remicade, etc?[/quote] Sorry my mistake I had been on humira prior to entyvio....

2/25/2021 12:12 PM

Ulcerative Colitis
About to Give In to Biologics

Entivio worked fine for me for just over a year and then it lost its effect. Since then I changed over to Xeljanz some 2 years ago and it started working for me after a couple of days. Its been my...

2/24/2021 2:21 PM

Ulcerative Colitis
Do you ever feel completely alone?

Well I guess someone must be a fellow Canadian to follow the leafs. Certainly don't be afraid of biologics, they have been the best thing since sliced bread for me. Having said that I have had UC...

2/7/2021 2:07 PM

Ulcerative Colitis
New Drugs

Sorry to hear that Xeljanz is starting to fail for you, just interested in hearing how long you have been on it. For myself I will have been on it for 2 years at the beginning of March. Touch wood I...

1/27/2021 7:30 AM

Ulcerative Colitis
Experience with biologics

Ive been on Humira , Entivio and each only had a certain working lifespan with myself. I started on Xeljanx on March 27 2019 and it worked for me after just 2 days and it has been working good every...

1/12/2021 8:39 AM

Ulcerative Colitis
Xeljanz 5mg vs 10mg

I take 10 mg in a morning and 5 mg at night which gives me the right balance that works for me. My specialist is fine with that....

1/12/2021 7:36 AM

Ulcerative Colitis
Another C Diff infection

I was suffering a number of bouts of C-diff in 2017 and although Vanco seemed to help it kept coming back. I got accepted into a trial of FMT at our Local McMaster teaching hospital here in Canada...

12/29/2020 1:13 PM

Ulcerative Colitis
Biologic Decision

Im 80 years of age and have been on Xeljanz for almost 2 years now with no problems to report. ...

11/28/2020 12:51 PM

Ulcerative Colitis
OT Covid vaccine

As an 80 year old male here in Canada I will certainly get the vaccine. As we don't manufacture vaccines here we will certainly be slightly behind the States before it will be available here. So we...

11/28/2020 12:47 PM

Ulcerative Colitis
Wife wants Husband present during colonoscopy

My wife wanted to be in the room with me once for my colonoscopy to no avail, and she is a registered nurse....

11/14/2020 7:28 AM

Ulcerative Colitis
Xeljanz and muscle pain

I get some slight aches in my knees that I put down to my Xeljanx. Both my knees were replaced over the last 5 years It tends to come and go. Been on Xeljanx since March 2019...

11/11/2020 2:25 PM

Ulcerative Colitis
Starting Xeljanz :)

Im just past 18 months for me, its been a game changer for me plus no side effects ....

11/9/2020 7:17 AM

Ulcerative Colitis
Xeljanz medication for UC

Im also on 20 mg per day and have no problems, started March 19 2019. I went down to 15 mg for a short while but found it did not always hold me....

11/1/2020 7:47 AM

Ulcerative Colitis
Have you gotten the Shingles Vaccine?

I got mine before starting Xeljanz, no side effects for me, couple of years back. I had shingles twice earlier in life, turn 80 next month....

10/19/2020 1:17 PM

Ulcerative Colitis
Question on Xeljanz

I take 10 mg Xeljanz in a morning and 5 mg in the evening which works for me, as I found that 5 mg each time did not quite hold me. I have been on Xeljanz for 16 months now....

6/14/2020 6:30 AM

Ulcerative Colitis
Xeljanz and weight gain

I have been on Xeljanz for over a year now and have gained 20 ibs which I put down to not having UC issues now, so my body is getting more goodness from what I eat. My diet has remained the same for...

6/8/2020 6:18 AM

Ulcerative Colitis
FMT through Colonoscopy Tomorrow

I am a great believer of Fmt for C-diff, the success rate is about 80 % cure rate. I had 4 bouts of C-Diff and Vanco never really cured the problem so I was put into an FMT program at our Mc Master...

5/19/2020 6:31 AM

Ulcerative Colitis
Regarding xeljanz

I was on 20 mg when I first started just over a year ago and it worked great for me but when I went down to 10 mg it was not enough so I compromised and take 10 mg in a morning and 5 mg at night...

4/30/2020 6:30 AM

Ulcerative Colitis
Moving on from Entyvio

For me Xeljanz has been the wonder drug it started working on day 3 and has been great . Been on it over a year now and its like not having UC. Good luck in what ever direction you take, we are all...

Today 6:39 AM

Ulcerative Colitis
started xeljanz

I was in a similar situation to you having failed many of the biologics about a year ago for me it starting working about the 3rd day and has been great every since For others it can take a week or...

3/27/2020 6:30 AM

Ulcerative Colitis
Remission without meds possible?

Im on Xeljanz and last Oct I had to give up my meds because of a knee replacement. Because of a slight infection I was off my Xeljanz for 6 weeks and it was only towards the end that I felt I needed...

3/23/2020 6:21 AM

Ulcerative Colitis
Xeljanz side effects?

No side effects for me other than I have gained a little weight back to my normal weight as over the years I have had UC (18) I had lost weight so in a way glad to have a better weight....

2/17/2020 7:15 AM

Ulcerative Colitis
Entyvio vs. Xeljanz

I will have been on Xeljanz for a year at the beginning of March. For me it has been a wonder drug and these days I forget I have UC, no rushing to find bathrooms and just a couple of BMs per day. At...

2/14/2020 4:01 PM

Ulcerative Colitis
Folic Acid, thoughts...?

I take it every day as recommended by my wife the nurse...

12/31/2019 7:31 AM

Ulcerative Colitis
C-Diff positive

Don't be afraid of FMT I was on it at my research hospital after 4 bouts of C_diff. It was a life saver for me and have been clear for the past 2 years. I recently was in Hospital for a Knee...

11/23/2019 7:31 AM

Ulcerative Colitis
Latest research and studies on faecal trasplantation?

I was on FMT for about 18 months and I agree that as in my case my Xeljanz has been been my saviour. What I would say about FMT it is fantastic at curing C-Diff which I had 4 bouts of. I have been...

11/6/2019 7:19 AM

Ulcerative Colitis
Canadian pharmacy's? which ones

One has to remember that these supposedly Canadian pharmacies are there to supply drugs to other countries like the USA . They do not supply to we Canadians so don't have to meet the standards...

10/22/2019 2:32 PM

Ulcerative Colitis
Xeljanz dosage

As I posted recently I had to give up my Xeljanz on Oct 2 because of a knee replacement on Oct 9 The op went well and I have not had any Xeljanz since the 2nd. My BMs are 1or 2 and perfectly formed...

10/20/2019 12:39 PM

Ulcerative Colitis
Xeljanz dosage

I like your husband tried to go down to 5 mg and found the effectiveness was reduced so went back up to 10 mg twice per day.. I have found it an excellent drug at this level almost like not having UC...

10/17/2019 6:57 AM

Ulcerative Colitis
Xeljanz - how long to stay on? Joint pain getting worse

I ve been on Xeljanz since early March and its been a saviour for me. I get a little joint pain but can't say I can pin it down to that as I am 78 years of age. Ive been off it for 7 days now because...

10/8/2019 1:12 PM

Ulcerative Colitis
Into the unknown

Well tomorrow is surgery day for my TKR and that will be 7 days without using Xeljanz. So far things have been going well without it although I did take an imodium a couple of days ago with the...

10/8/2019 6:31 AM

Ulcerative Colitis
Xeljanz here I come

I have had to give up my Xeljanz for about a week because of an upcoming operation, so far so good but its only been a few days yet....

10/5/2019 6:36 AM

Ulcerative Colitis
C-Diff positive

I have had C_Diff 4 times and each time I was on Vanco sometimes by mouth and once by intravenous . Each time although it seemed to cure the problem it always seemed to come back. I was offered a...

10/5/2019 6:32 AM

Ulcerative Colitis
Into the unknown

Not sure on that I think that is up to my surgeon...

10/4/2019 5:44 AM

Ulcerative Colitis
Into the unknown

Well today I have given up my Xeljanz for 7 plus days before my surgery on my knee replacement next week. So its with some trepidation that I look forward as this biologic has made such a difference...

10/3/2019 6:38 AM

Ulcerative Colitis
FT Trial update - halfway through

I was on FMT trial at one of our hospitals here in Canada and I could not say it did a great deal for UC but was fantastic at curing me of C-Diff that I had 4 times....

10/1/2019 6:25 AM

Ulcerative Colitis
Trusted online Pharmacies

As a Canadian the the online pharmacies that exist in Canada do not supply drugs to our health care system that we Canadians use. They exist here to supply places like the US market as an alternative...

9/30/2019 6:42 AM

Ulcerative Colitis
Xeljanz here I come

When I first started with Xeljanz I had great results after 2 days and its been great ever since ...

9/23/2019 6:28 AM

Ulcerative Colitis
Weight gain and Entyvio?

I was on Entyvio for quite some time and never gained any weight, alas because I was a little underweight on wanted to put some weight on...

9/19/2019 6:33 AM

Ulcerative Colitis
Having surgery

Im in a situation that I have never faced before as I am getting a knee replacement done in early October. In speaking to my surgeon about medications she figures I will have to give up my beloved...

9/14/2019 6:28 AM

Ulcerative Colitis
Xeljanz vs Etyvio for ulcerative colitis

I was on Entyvio and the results were not too bad but stopped working after about a year. I switched to Xeljanx in March and it has been working fantastic for me. I tried to go down to the lower dose...

9/11/2019 6:34 AM

Ulcerative Colitis
Xeljanz works for me

For me it started working well after about 3 days...

8/25/2019 7:00 AM

Ulcerative Colitis
Timeframe - Xeljanz

Xeljanx worked for me in 3 days, I was not on any other drug at the time other than coming off Entyvio that was no longer effective for me....

8/23/2019 6:33 AM

Ulcerative Colitis
Xeljanz works for me

Speaking for myself everything is good with Xeljanx I wish it would work for everyone but life is not like that. For many it does not seem to work at all so I guess I'm a lucky one....

8/19/2019 7:02 AM

Ulcerative Colitis
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