Thank you for all the responses. Looks like mine have gone down more than anyone else’s. CCinPA, I’m not on any immune-suppressing medicine, just balsalizide and enemas, so I don’t think I am...
I just got the results from my third antibody test from the UNC study, and they have REALLY gone down. I got the booster in late October, and my antibody levels are now below what they were after my...
I have had it off and on for years. When it first surfaced I was referred to a hematologist and monitored regularly for months. He and my gastroenterologist decided it might be a rare side effect of...
I took part in the UNC study and just got my post-booster LabCorp antibody results. It's 135 and flagged as "high." Pre-booster they were in the 70s. This test's number scale appears to be different...
Thank you, Quincy. How are fissures diagnosed? Can they do it by symptoms or do they need to do a physical exam? Does it require a procedure like a flex sig? I ask because it's difficult to get a...
Hi, all, looking for some wisdom from those who have dealt with these! Recently while going to the bathroom, I was straining a bit and felt what I can only describe as a sensation of splitting right...
I had SO much noise in my colon when I was on budesonide! It was near constant rumbling....
Very glad it’s working for you with no side effects! I just had to stop taking it after only three weeks because it gave me near-constant headaches. Was really affecting my ability to accomplish...
I've been on generic Uceris since June 25. The bleeding stopped a couple of days after starting it. I've been having a lot of low-grade headaches (which were a huge issue when I took prednisone for...
I got the vaccine as soon as I was eligible. I had 24 hours of feeling terrible after shot 2 but then was fine. I was already flaring when I got the shots and actually had an improvement in symptoms...
I cannot do coffee when I am flaring, and I miss it so much! It and alcohol are very bad for me at that time....
Oh, no, clo, I'm so sorry about your lack of antibodies! That is rotten. Though I'm glad you have doctors that seem to be taking it seriously and trying to help you. I know other countries are...
I got my antibody results from the UNC study today. It says my level is "High" at 75. I know they say the test hasn't been FDA approved and we don't know what it means in terms of protection against...
After two months of no blood, reduced abdominal pain, formed stools and feeling like I was almost out of this flare, I started getting bright red blood again the end of last week, as well as...
Thank you both for the replies! Of course I had loose diarrhea this morning after having nothing but solid stool for weeks. (Apart from the prep.) I must have jinxed it by posting about it. Well,...
I had my colonoscopy on May 19. The results stated "The colonic mucosa appeared normal from the cecum to the descending. The sigmoid colon had mild erythema and friability. The rectum was normal. No...
I’ve been happy with Floradix liquid iron. Easy on the stomach and helped raise my iron levels....
Thank you for all the replies! I expect I will try the generic Uceris if my doctor recommends it. I've actually been doing OK the past few days, haven't had any blood or mucous (gigantic knock on...
Thank you! Definitely sounds like we have different options (or at least different medicine names) in the US and UK....
Thank you! Pardon my ignorance, but is budesonide always gastro-resistent, or are there different formulations? I know I will have to take the generic, because on my insurance, a month of Uceris is...
Something is definitely going on with that. It only works for me when I click on the link from the email they sent me, not from the URL I copied and pasted (even though it's the same address)....
I've been flaring since January, probably my worst flare ever (though not as bad as many here, I know): loose stools, blood on the TP and surface of the stool, tons of gas and discomfort, urgency,...
Here's the link to the UNC study: https://ibdpartners.org/preventcovid And the link to their preliminary findings: https://ibdpartners.org/preventcovid/results ...
I had interesting developments after both my shots (Moderna). I've been in a flare since January, and for awhile after both shots, I had significant improvement in my flare. It lasted about a week...
Has anyone found digestive enzymes to be helpful with UC? I've tried them off and on over the years and never could determine if they helped or made things worse!...
I had a headache for about a day and a sore arm for several days after my first Moderna shot. I had my second shot Monday at 6 p.m. I felt OK apart from a sore arm but couldn't sleep well that night....
I got the first dose of the Moderna vaccine yesterday. I had a slight headache for a few hours and a sore arm yesterday. Today my arm was less sore, but the headache came back. I took two Tylenol and...
[/quote] Because there have been cases of people getting Covid twice. Also, the level of antibodies after having Covid apparently differs among people. Because the virus is so new, they honestly...
I think I may be scraping something with the nozzle of my enemas, maybe a hemorrhoid, because I see bright red blood afterward, and there's a bit of pain. I want to try some Preparation H, but I'm...
Old Hat, my generic balsalizide is manufactured by West Ward. Ugh, a step back today. Three large, very urgent BMs today, and the third one was large shreds again. The first two BMs were lots of...
There are people on here who are much more knowledgeable about the various treatments than I am to offer suggestions, but I wanted to say that I am so sorry you're going through this stubborn flare....
Thanks for the thought about the fish oil, Quincy. I am on probiotics, currently Udo's Super-8 High Potency. I had been not taking one every day to save money, but have gone back to every day. I also...
About a week and a half to two weeks into this flare. Beginning of last week: terrible abdominal pain and urgency, bleeding, poo was tons of tiny shreds. Upped my generic Colazal from 3 pills 3 times...
My 78-year-old mother got her second shot of Moderna last Thursday. She tolerated it well, just arm soreness, a bit of overall soreness and fatigue. It and the Pfizer vaccines seem to be pretty...
I find that mornings are the worst for me with urgency. Within a minute or so of ingesting anything (or occasionally just smelling food), I will have to rush to the bathroom. I often have to go to...
Thank you, clo! That is interesting that your friend and others also pointed to stopping birth control and HRT as flare triggers. I Googled the heck out of it at the time of the first flare, and I...
Thank you everyone for the replies! I was just about to ask about oatmeal, and am glad clo2014 mentioned it. I'm having oatmeal this morning with almond milk, turmeric and some frozen blueberries...
I've been pretty lucky until this past year, in that my flares have been infrequent and able to be nipped in the bud by increasing my balsalizide and adding Canasa suppositories in the morning...
I’ve been using Floradix liquid iron. My ferritin level was 8 in late January, and 44 when I was retested in late May, so I feel like it has helped. It’s a lot easier on my stomach than iron pills...
Thanks! Yeah, it's hard to know if a particular probiotic is working -- even the refrigerated kind....
I've always used refrigerated probiotics. However, I'm sheltering in place and not going into stores because of the coronavirus, so my options for delivery and curbside pickup are limited. Are there...
This isn't strictly IBD-related, but it was such an interesting article I wanted to share it. It seems like COVID-19 may not be just a respiratory illness but also a vascular one, which would explain...
I had one scheduled for April 20, but it was canceled. Wouldn’t have done it anyway. They’ve started procedures back and called to reschedule, but I’m putting it off for now, as it’s not...
I used to get them a TON, even years before I developed UC. Awful things! For me, switching to a toothpaste that doesn’t contain sodium lauryl/laureth sulfate was the answer (Burt’s Bees is my...
So glad you are home and getting better!...
Thinking of you and sending you every positive vibe I can!...
I'm so sorry to hear of your corona diagnosis. I concur that it might be a good idea to get some short-term anti-anxiety medication if you can get it delivered. It's no wonder you're feeling anxious...
This is why things are being canceled or closed. The important thing is to “flatten the curve” of the disease so that so many people aren’t ill at the same time and overwhelm hospitals. We simply...
Thank you all for the replies! I'm still debating about HRT -- have an appointment next week to talk it over with my gyno. It sounds like it's definitely a risk/reward decision that depends a lot on...
I prefer the Miralax and Gatorade prep, because I can control the flavor and alternate flavors. The prescription stuff made me gag and throw up....