I've been on biologics for 2 years, the only illness I've had in that time is Covid and I bearly even noticed I had that....
Yeah, that's to clean the area before you do the injection. They instruct you to make sure the area is dry before inserting the needle.[/quote] No, never got that instruction, methods might vary in...
I get an alcohol wipe in my box with my injection so it must be OK....
I had a blimp like that after beginning Humira. I had a good initial reaction for about a month, then a week or so of loose, bloody bms then back to good again. I think I even posted here about it....
Doesn't mention UC specifically but interesting all the same. https://autoimmunewellness.com/the-role-of-progesterone-in-autoimmune-disease/...
My last flare I couldn't get of prednisolone rectal foam, as soon as I tried my symptoms would start up again. I was already on a Humira biosimilar every fortnight so I was upped to weekly injections...
For me, being outside is a great stress reliver, even just pottering around the garden doing a bit of weeding. Also for me stress is a big trigger so while my symptoms improve when I get out and...
Thanks for the replies. My joint pain started about 6 months after starting Humira and I don’t think I've felt right since. So hard to differentiate between feeling crappy because of UC or because of...
Can I ask what side effects you experienced? Humira seems to be doing my bowel good but the rest of my body seems to be screaming...joint pain, headaches, dizziness to name a few and I don’t know if...
Moved to weekly injections about a month ago and seems to be making a difference....
Don't know how I missed these replies 🤔 Anyway, I went to see a rheumatologist nurse in December, she did alot of stretching and bending with me and said I had good flexibility and range of motion...
When I started Adalimumab I too had a good response initially then a big step backwards which lasted about a fortnight if I remember correctly but then I began to make progress again. For me the...
My trigger is stress for sure, in fact my GI has joked that she absolutely forbids me from being stressed 🙃 She doesn't believe in food being a trigger though and for me this is also true, food...
Thank you for the reply. I don't think I'm dehydrated, but I will up the water just in case. Didn't have any dizziness before on the fortnightly doses, maybe the weekly doses are too much. I'm on the...
Saw my GI on March 30th to review my medication as I didn't feel the Humira biosimilar I'm on was quite doing the job as I was still having intermittent minor flares ( my fecal calprotectin was 3000+...
I agree, I was in agony with Sciatica last week, I couldn't even drive so I gave in and took ibuprofen 2 nights in a row to get some sleep. No ill effects thankfully....
So does double the biologic mean double the risks for cancer and the like?...
I'm the only one in my family now with UC I had a nephew with it too but he has since passed away(not from UC), I pray I never pass it on....
No I didn't lose my sense of taste or smell. Honestly I didn't feel too bad, symptoms like the cough and blocked/runny nose were more annoying than debilitating and my colon behaved itself...
I've observed all the health advice from the beginning, so social distancing, masks, sanitising hands etc. but otherwise have gone about my life as normal (or as normal as was allowed). I'm on a bio...
I'd never even heard of UC or ever even beeb sick until I was diagnosed at 37. I'd heard of Chrons cos a girl in my office had it but I didn't really know what it was only that it had something to do...
Do you just have one caecal patch? Just curious because I have patchy pancolitis and often get a patch by my caecum, but sadly I get it elsewhere too![/quote] I'd have to root out my last...
No in Ireland....
Holy bananas! You didn't even have diarrhea with a fecal calprotectin that high!??? Is your UC very high up in the colon?[/quote] BM was soft but not diarrhoea at the time of the test, its gone back...
Never had any digestive issues before UC reared it's ugly head....
My GI called last week as my fecal calprotectin was 3000. I feel fine, no nausea which can be my worst symptom at times, 1 mostly solid BM with no mucous or blood. Feeling tired though so who know,...
Suppositories do little for me, foam works best....
Went from a healthy 37 year old with no UC to pancolitis in 4 weeks while I waited for a GI appointment. A bug my son brought home from school set everything in motion for me....
I find this very interesting. I'm officially diagnosed with UC but I've always had a gut (no pun intended) feeling my UC is caused by a bacteria of some shape or form. My reason for thinking like...
My GI told me the stress I was experiencing along with a bug that I caught at the same time 'switched on' the gene I had for UC. Stress has always been a trigger for me but food has no bearing, good...
Yes feeling back to normal, just back from a week long family holiday and all was good. Still not 100% sure if it was a bug or not but either way I'm feeling better, glad you are feeling better too....
Formed bm this morning so either the bug is passing or the meds are working. Stomach still tender but eating small amounts helps, hopefully things are improving....
I've done the suppositories in the morning and foam before bed so far, I don't have any enemas to hand at the moment. Little bit better today, stomach a little less tender and actually felt hungry...
Thank you, I appreciate your input. Stomach is feeling alot better since eating something but is still grumbly. I used the steroid foam I have here before bed just to err on the side of caution, my...
Hmmm well the gastroenteritis that's been doing the rounds in London had the following symptoms: - Not much vomiting or diarrhoea - Loss of appetite and nausea - Stomach pain / soreness (we had to...
Thanks for the replies. My son (9) wasn't feeling great on Thursday, sore tummy and multiple formed bms but is fine now. My husband says he feels 'off' and has no appetite but is able to go about his...
Woke last Sunday feeling very bloated, was due my period so didn't think too much about it. Monday was uneventful. On Tuesday I had a normal bm in the morning but after lunch got some stomach pain...
I've had costochondritis twice in the last 2 years. They gave me difene which I didn't realise I shouldn't take and that caused some bleeding which luckily stopped as soon as I stopped taking the...
I'm on the standard dose of 40mg every fortnight...
Hair loss can be a reaction to your flare. When I have a bad flare I can mark on the calendar 3 months to the day my hair will start falling out. It's alarming to see as it feels like a lot is coming...
My nephew died suddenly last August from Fatty Liver Disease. He had been diagnosed just 2 years before with UC and was only taking Pentasa. We didn't know what he died from until the autopsy as it...
Got the AstraZeneca vaccine on Friday, felt a bit like I was coming down with the flu Friday night and woke up on Saturday with a splitting headache that painkillers wouldn't touch. Thankfully it was...
No, I'm in Ireland. I think my GI is going to try do an in patient clinic this month if Covid numbers are low enough so I'll definitely bring this up then. So hard to know when something hurts...
Thank you for the reply. We are currently in a Covid lockdown and only essential medical appointments are being done at the moment, it could take a while to get an appointment with a Rheumatologist....
Hi, I'm a 40 year old female with a diagnosis of Ulcerative Colitis for the past 4 years. 2 weeks ago I woke up with Sciatica like pains in the front of my right thigh, I've had a few incidents of...
How my UC came about was when my son brought home a bug from preschool. He, myself and his Dad got sick, he and his Dad got better but I didn't. Two weeks later I was seeing blood in my stool (though...
Just got off the phone from my GI. He also thinks my issues are stemming from my stomach so he's sending me out a prescription for Nexium (or similar), also a kit to test my stool for inflammation...
Thank you both for your replies and suggestion. I decided to look back over my medical notes and noticed when I was first diagnosed my GI noted that I had H. pylori-negative gastritis, she put me on...
I started a biosimilar medication to Humira at the end of June 2020. From August 2020 to December I was completely back to normal. However in December I started to feel the telltale signs that I...