Worse Every time, every kind, every stage....
DELZICOL has a Savings Program. It looks similar to Apriso and Lialda. Anybody on it?...
The savings on my Apriso seems to have ended. Is there a discount on any Mesalamine that you know of? I was on Lialda and Asacol Hd before. They all seem the same. Thanks!...
Personally, I can get a flare more under control by living on white rice. You can't really live on white rice forever. But when things are bad, I go to nothing but white rice, maybe some chicken...
I've gone back and forth between Lialda and Apriso. They both seem about the same....
Teeth look good. Sinuses and glands look “angry”....
Doctor can’t even virtual see me till next Monday. Dentist said come right in, xrayed, looks good, but wrote me up amoxicillin and let him know....
Thanks!...
What’s new is a hot hard swollen gland near my jaw. Is this something I should be concerned about? Do you know if this could be a side effect any of the drugs I’m on? They are all in my signature....
My Apriso Savings Card says it is expiring today, 3/31/2020. Has this happened before? Did they send a new card? Thanks,...
Thank you!...
New Year, New Copays and Deductibles - Any Savings Cards, Patient Assistance Programs or Co-Pay Programs we should know about? Thanks!...
Yes That’s what they said. I was hoping for a better answer. Thanks, though. (You don’t get to pick.)...
I have Ulcerative Colitis and Chronic Idiopathic Urticaria with Angioedema. I’m finally feeling better, a lot better, but I still ache like I’m getting the flu. This has been going on for years,...
I was wondering if anyone else was on both and noticed improvement. The doctor specializes in autoimmune, allergies and asthma. I am given the drug as part of a drug trial. Something to do with mast...
Is it possible that Xolair shots boost the auto immune suppression of Entyvio? I was diagnosed October 2012 with Pancolitis. I’ve broken out, swelled up or gotten pseudo lupus from everything we’ve...
Salad and raw veg is good, but so not worth it. I’ve learned to like it cooked....
I’ve asked doctors and they insist they are of no value for me since my issue is mostly where it won’t reach. I just got a new doctor. He asked why I’d never tried. So he prescribed 2 weeks. It’s...
Every time I get really really bad, I start having my hair fall out a few months later. But it always comes back. Thank goodness!...
I find laying in the tub and letting the shower run warm water over where it hurts helps. Not a lot. When it’s bad, nothing helps a lot. But anything is better than nothing. And the shower is near...
Lots of great ideas! I’ve bought some paint. I’m enjoying playing. I bought a bunch of fancy frames. Anything looks better framed. My hallway will be a gallery....
I have the same thing. I’ve tried everything. Timing meds and timing meals... changing diet... everything I can think of. I just sleep on the toilet sometimes. Don’t make big decisions. Be careful if...
Thank you...
Before I was diagnosed I had so many foods to avoid I was severely vitamin deficient. I kept a food diary and blamed every bad morning on what I had eaten the day before. I would start over with a...
Looking for something new to try. Any suggestions?...
That’s what I’ve been dealing with for a few years now. I tried eliminating everything changing diet, detergent, gave up makeup... It seems to be stress triggered for sure. My eyelids swell closed....
I’ve just been diagnosed with Chronic Idiopathic Urticaria with Idiopathic Angioedema. Rashes from my scalp to my toes. Sometimes blisters like poison ivy that migrate. My eyelids swell closed....
I handle disasters well. As soon as they are over my health falls to pieces....
Take forever? I sure hope not!...
Take walks. Talk to a dog. It doesn’t fix things, but it helps....
Yes! Finally! After about 9 months...
I’ve just been diagnosed with Chronic Idiopathic Urticaria. Anybody else here? Suggestions? They say this is where the pain and swelling is coming from, not just the hives. I’m now on Montelukast 1 x...
It started before the Entivio, improved with the Humira, before I had a bad reaction to that. Now it’s really bad. Anybody else get this as “extra intestinal inflammation?” I feel like that’s just...
My forearms, wrists and hands really ache. The front of my legs and the top of my feet ache badly. It’s like the ache when you have the flu. This has been going on for a long time, but it’s really...
Good news! Real life is easier than the social life of school. Have you considered talking to him? Tell him what you’ve heard. Depending on what he says, you may warn her. She could invite others to...
I don’t like change. But you kept everything important. I find it easy to read. No complaints at all! Thank you!...
Thank you, that is what we are trying to figure out. It would be great if it helps pain. They’re making no promises. I’m pretty small and this stupid thing is pretty big. They say it is pressing on...
I’m just beginning to see some improvement. I’ve never been out of flare ever....
Just found out I have a fibroid, 8cm. Pretty much squishing everything in there. I’m 56, on Entyvio and Apriso right now. (I also take Valtrx for cold sores in my eyes.) They’ve said I may have to...
It was great for me till it trashed my liver too much to keep taking it. I got really itchy if I got in the sun. The second time we tried it, it didn’t work at all....
I thought I was having a heart attack. I went to the ER. After lots of tests, they decided it was Costochondritis, an inflammation of the cartilage in the rib cage along with a panic attack. The...
That’s a low dosage. I would wait till after the holiday and talk to your doctor first. I am really tired when tapering. Most people are. You might want to put that off till after the holidays, too....
The pain got better while I was on Humira. So I think it’s UC. The lupus was the whole butterfly rash typical lupus thing. Plus weeping poison ivy looking rash all over and shingles on my face an...
So continue to give Entivio a chance. And just deal.......
Is this side effect of Entivio? Or just the UC? I failed Humira with pseudo lupus, shingles and a really severe rash. They put me back on Prednisone. I’m tapering and at 40 mg. now. I had the second...
I can have a leaf of iceberg on a good day. Any other kind and in 20 minutes I am cramping and miserable in the bathroom regretting....
The only thing I have found that helps with the prep is to use a straw to get it past my mouth and into my stomach. And yeah, sometimes I’m sitting on the toilet and throwing up in the tub....
I had to go off Humira when I got pseudo lupus and shingles and such a bad allergy my whole face swelled, my eyes swelled closed and my nose and my throat swelled closed. I had weepy poison ivy...
I love you guys and have found the site EXTREMELY helpful. Thank you for being here....
I cannot eat anything at all that is raw. When I’m really puny, my husband gets takeaway Chinese food. But American, not traditional. 我喜欢中国菜。...