Thanks! That helps me relax a little. I'll keep an eye on myself next couple days. Thank you 🙏...
Pharmacy seems comfortable that it can be used for ulcerative colitis as well. I guess I'll have to wait a couple of days and see what happens. This disease can be so frustrating at times, esp when...
I'm going to ask about that Bruce. I am calling the pharmacy tonight to see what they think. The only thing that gives me pause is that my last scope did show my inflammation on the right side only...
Thank you! I'm sure I will know in 24-48 hours. Fingers crossed I can continue to taper....
So I'm currently on 9mg of cortiment to try and achieve remission while Imuran starts to work again, and my dr wants me to start tapering. So because cortiment doesn't come in less than 9mg he has...
Curious, if there's any evidence as to the TYPES of vegetables we should eat. I mean it seems everything points to eating more plant based, but maybe the types and variety matter. I'm only learning...
VanJordan, that's really cool. Very interested to see how that works. I am going to need to read more about that. Keep us posted and thank you for sharing...
Thanks for the info all, and 1wish for asking...
I think it depends what you're looking for. For the theraputic effects of CBD on inflammation, and during the day you might be better off taking either an edible or a tincture as VanJordan said that...
Though I don't know the specifics on which bacteria to target or attempt to re-populate, I tend to agree on the take that this is not auto-immune, but a massive imbalance created by our environments....
I am also on steroids and azathioprine as I'm also flaring. 9mg of Cortiment and 100mg of Azathioprine (just bumped up from 50mg). Curious people's thoughts too...
Another interesting Study Oligodar. VanJordan, I just screenshotted your post. I was reading a bit about that the other day. I'm really happy that studies into diet are finally being done, and shared...
Just goes to show how unpredictable this really is. Wish you and your sons health. Keep posting your findings. It's always changing. I hope one day to read big news discovery while I still have my...
TT - I've read lots about raw milk being beneficial. Can't get it here in Canada, so I haven't been able to try. I do use Kefir tho, sometimes from Dairy, sometimes from Coconut. Not sure if it helps...
Excellent study. I have been following several accounts of people healing and diets contributing to anti-inflammation as I'm desparate to get out of this flare and also research till my eyes bleed....
Really happy to hear that. I'm likely getting a referral to look at biologics soon. I haven't responded to Imuran since re-starting. I have been taking Cortiment but missed one dose and all of my...
I think I might look into more again just to see. Even if hormones out of whack contribute to or are caused by IBD, anything to bring us around to levels we need to be at seems to be a positive....
Interesting you just posted this. I have read about that a bit recently too, and I asked a naturopath and she said she didn't see any co-relation so I never got tested. However, I have to believe our...
Thanks Flowers, I know food makes alot of us nervous and some say it doesn't matter what we eat, which may be true for how it makes us react, but not true long term. We didn't get sick in one day and...
The idea here is that not everyone can tolerate everything while flaring BUT, foods play an important and often overlooked role in the our gut health. There are more than one food that contain all of...
I have found the Vega Protein shake is good. It is vegan, but that's not why I tried it. Just looks like the most healthy ingredients, 170 cal /bottle, some fibre and no whey protein if you struggle...
VanJordan, I do a ton of reading, research (as I'm sure many here do) and sometimes I feel conflicted with the advice I read, vs am told by doctors, vs Naturopath, vs Nutritionist even. After...
Makes sense. I have a scope in 2 weeks. Keep trying to think this will be better soon, but right not seeming to feel ok enough to start cortiment taper......
Hi, I C-reactive protein in the blood related to our flares? I am currently flaring and still on Cortiment (6th week) with symptoms coming and going. I saw a naturopath a couple of times and when I...
So I'm at 2 weeks today. Have had a mix between semi formed and a couple of loose stools. Imuran at 50mg going on 3 weeks now. I know it takes time for Imuran to begin to do anything again. I'm...
Thank you Susie. That helps me relax a bit. It's been one week. I know stress helps not at all but so much easier said than done right? Always trying....
Kind of still the same. Anyone else have any experience with this drug?...
So I've been flaring bad for about 3-4 weeks now. This time the Dr. Has put me on Endocort rather than prednisone as I asked if there was anything milder than pred. I have re started Imuran in hopes...
Thanks FlowersGal I read this after but Here's what the Dr. Said. Not all bad I guess. He is sending a prescription for steroid. He wanted time give me pred but I asked him if there were milder...
Just heard back from the Dr receptionist. Sounds like the Dr will be calling me today and likely going the route of steroids. I don't know for sure but my stomach dropped once she said that. They...
For those who don't take pred, what helped you out of flares? I have a feeling my dr will lean that way for this one too once I hear back and I hate the thought...
Thanks poopy. Still waiting to hear back from my GI, but this is the real deal. Have had at least 10-15 BM's Today while taking immodium as well. To say I'm worried is an understatement......
Thanks Flowersgal. I was on aza for 10 years and generally it worked. Few hiccups of course. The last year or so I started to see things like minor skin irritations or infections. This made me think...
You bet Limey. Been watching these Leafs since I remember, finally icing a good team! And thanks, my dr has mentioned biologics to me in the past but was always mentioned as the next step if...
Thanks noodles, I'll be calling my dr. Tomorrow to discuss either re starting aza or if he thinks I'm bad enough to go on a steroid as well. It's been a while and I don't think uceris was around then...
Def mornings for me of late. But seems sometimes to have no pattern....
Thanks Jane. I have thought about biologics and my dr mentioned them when I stopped aza, but I wanted to see if I could do it without first since both lower the immune system I'm led to believe. I do...
So the first time I was flaring bad, I mean really bad (I have had lots of bad days or even weeks), was about 12 years ago, my initial diagnosis. At that time I was 28 years young and about to get...
I have found bone broth works well for me. I try to drink it daily for the nurtients and collagen. Super easy to make and cheap! You can add ginger or turmeric as well. I even cook carrots in it,...
I completely understand that. I'm here reading this because I've had to tinker with my medicine regime due to other health related issues and my symptoms are returning. With that comes the extreme...
I don't post alot but you've all answered when I do. I watch and read often. I just wanted to wish you all a Happy New Year. 2020 for me has been a year of spending alot of time alone, focusing on...
Recently I've read alot more links with helpful bacteria in the gut. Read up on it. Make sure you're eating minimal processed foods and things that kill gut microbiome (even tap water - it's a...
Ms2011, definitely. The article states that even one round of antibiotics in animals pre-disposed them to IBD. Of course you're right, there are so many things, but one thing is for certain,...
Hi damo123, I'm fairly active and I've never noticed that, tho I don't recall any serious sprain. I've had some nagging injuries but never linked the two. Nothing I've done has taken close to a year...
Thanks Oligodar. That's very interesting. As a child I had several bouts of antibiotics due to Bronchitis, I guess a handful of times as an adult too. Would be interesting to see how strong that link...
Hi, no I did not take with allopurinol. I did go to 25mg in April and after reading ipoops reply also thought possibly that was it. I just started 50mg again and will see if this improves any or not....
I can't read the article but have seen alot of promising research regarding gut microbiome and IBD so seems to play on that link by the title. Ive recently started diving deeper into this and there...
Thank you ipoop. I'm definitely going to do that as soon as I return if symptoms haven't subsided, or of course should they get worse and i can't go. Timing is everything and this of course is quite...
Well, I made a mistake. I have been taking 50mg of Imuran for about 10 years give or take. My family doctor had mentioned to me in the past to try getting off the drug but my GI says I should stay on...
Ah yes, makes sense, thanks ipoop....er John!...