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island time

HealingWell Forum
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Member Profile
Display Name
island time
Profile Created
12/18/2014 2:07 PM
Last Seen
Today 10:01 AM
Total Posts
2300

Last 50 Posts

Writing a review of one's doctor and posting it on a doctor-rating website

I frequent a car site (Ferrari) that has a private section. People are charged money to be in the “private” section. In the private section (I pay dues to be in it. I Have been a member for about 20...

Yesterday 8:59 PM

Prostate Cancer
the countdown begins

I’m not one to comment either but have been following your posts closely Stephanie. May God Bless you and yours....

6/26/2022 7:17 PM

Prostate Cancer
Un-educated about PCa

It’s always been my understanding (possibly incorrectly) that, clinically speaking , the definition of “detectable” is .1 Anything under .1 is characterized as “undetectable”. Does anyone know...

6/18/2022 9:59 AM

Prostate Cancer
OT- Another “Victim” of Supply Chain Shortages

I know a guy….ordered a not so uncommon sports car. Delivery time…4 years...

6/17/2022 10:21 PM

Prostate Cancer
GREAT NEWS!!

Good to hear Dell. As a matter of fact….great....

6/8/2022 12:09 PM

Prostate Cancer
Van Jordan

Very interesting thread. It’s always struck me as odd that I contracted this disease in my mid-60’s. “It’s your immune system that’s gone haywire” has always struck me as a lacking and unsatisfactory...

6/8/2022 12:04 PM

Ulcerative Colitis
Some good news

Congratulations Prato. “One less thang” as Forrest Gump would say. I’m happy for ya man. Brings a smile. (Well actually it gives you your life back)....

6/8/2022 9:03 AM

Prostate Cancer
Be your own advocate? YES

Being your own advocate is important in every aspect of life (except criminal defense law lol). This is especially true in medicine where the stakes are the highest. I really don’t do well with...

6/3/2022 3:27 PM

Prostate Cancer
Biologics

Hey Anxious, what I’ve been through with my health makes me extremely anxious as well. Prostate cancer. The only complication I did not have from that operation is death. Every other complication I...

5/31/2022 7:02 PM

Ulcerative Colitis
Started Humira 1 Week Ago...

I wouldn’t say it was a light switch but it definitely gave me better bowel movements. And yes, by better I even mean the ever elusive perfect bowel movement. I’ve been on it one year. My bowel...

5/30/2022 10:57 AM

Ulcerative Colitis
Barbie Doll as cancer patient: there is one now

Before prostate cancer, when I’d see anyone young or old with the tell-tell bandana on their head, it would scare me into not engaging. I guess I just couldn’t understand. I didn’t know what to say....

5/30/2022 10:32 AM

Prostate Cancer
Time to decide on surgery or radiation, any thoughts?

I honestly believe prostate cancer will not be your demise regardless of the treatment modality....

5/28/2022 6:08 PM

Prostate Cancer
John Hopkin's biospy report

I don’t always just completely disregard the surgery hospital’s path report. I use them both…JH and the Surgery hospital’s pathology. Reading a gleason chart and comparing it to the tissue is very...

5/20/2022 9:48 AM

Prostate Cancer
Official Rant Thread - Go for It

I’ve been having problems with pain in my big toe. 3 different docs. 3 different diagnosis. How hard can it be to diagnose a sore toe? Lol...

5/19/2022 5:45 PM

Prostate Cancer
What’s going on.

Nothing is more beautiful than the perfect stool. 😂 Good for you Anxiousaries. —— Humira...

5/19/2022 2:29 PM

Ulcerative Colitis
Mark Cuban Pharmarcy

I wonder how much money and time Mark Cuban invested into the research and development of the drugs he sells? - —— On Humira...

5/16/2022 8:51 PM

Ulcerative Colitis
Recurrence or Benign? PSA up, down , up .What The??

I don’t believe unstable PSA is a favorable prognostication. But that came from a very small study I read years ago....

5/15/2022 3:24 PM

Prostate Cancer
Does being around people-since Covid-bother you?

Anyone closer than about 4 feet of me, I begin feeling as if they’re in my space anyway. COVID no COVID. —— Humira...

5/14/2022 3:48 PM

Ulcerative Colitis
very interesting experience regarding the sun & exercise& Uc

I have been going more than once a day. That’s never been a normal BM routine for me. GI appt at the end of the month. Gotta get family to go home lol...

5/13/2022 12:26 PM

Ulcerative Colitis
very interesting experience regarding the sun & exercise& Uc

Sunny days, exercise, building nice things, moving around, a garden…may be the solution for you Hambo. I certainly hope so! I’m in the sun a lot too. I’ve recently began working out again. Taking...

5/13/2022 12:19 PM

Ulcerative Colitis
Bladder Neck Invasion

Bladder neck issues are best left alone if causing no symptoms. More problems created than solved. I understand my thinking is not shared by all. I do not consider urinary urgency enough of a symptom...

5/10/2022 8:32 AM

Prostate Cancer
Always had low PSA. Now its 6.7 New to this.

There is some sort of medical issue where scrotum hurts for no particular reason. I hear it’s a much more common problem than is talked about. Women have it as well. You probably know about it. I’ve...

5/4/2022 6:27 PM

Prostate Cancer
Always had low PSA. Now its 6.7 New to this.

You’ve been googling. 100% of newcomers have been googling before they get here. 80% come in with lower back pain. By the time I got here I should’ve already been dead about 4 times. Funny how all...

5/4/2022 6:11 PM

Prostate Cancer
Well my numbers up again and I’m stressing … again

cvc Anybody could have cancer with no signs of it. You could. I could. All of us could. I can’t say you don’t have cancer nor can I say anyone else doesn’t have cancer.. But, if you’ve got prostate...

5/1/2022 9:20 PM

Prostate Cancer
New Member - my Journey

For yours truly, this would necessitate a second opinion with Epstein. Absolutely. Non-negotiable. I would personally be surprised if true but those words cannot be ignored. Take care Striper...

4/27/2022 9:52 PM

Prostate Cancer
New Urethral Stricture Treatment - Optilume

I’ve never heard of this until now so thank you for bring this here. (Maybe some guys will have had some experience with it and chime in). From just a cursory google reading, it absolutely sounds...

4/25/2022 7:30 PM

Prostate Cancer
How do you think your life would have gone if no cancer had happened?

There’s 2 decisions I’ve made in my life that’s altered my life considerably more than prostate cancer ever could. That said… All things being equal, had I not been diagnosed with PCa, I feel that my...

4/25/2022 6:52 PM

Prostate Cancer
Imuran to Biologic even in remission?

I’d pursue more with the second opinion doctor. That’s me. ——- On Humira...

4/17/2022 6:39 PM

Ulcerative Colitis
Awkwardness When Mentioning PCa?

Same. “They took my prostate out”. I’m probably the world’s worse prostate cancer ambassador. When I say anything at all it’s along the lines of “a blood test can tell you a lot. But don’t get one...

4/14/2022 9:20 PM

Prostate Cancer
Pain, ulcers - looking for an advice

I’m just gonna through my 2 cents out there (even though that may be overpriced)….it sounds to me like you have more than one thing going on. UC and gastritis. The sores in your small intestine…I’m...

4/7/2022 9:38 AM

Ulcerative Colitis
Totally OT - Will Smith vs. Chris Rock

What ever happened to “Sticks ‘n stones may break my bones but words will never hurt me?” I guess that was a lie lol. Anyway… I lost a lot of respect for Will Smith. Not for what he did. But that...

4/4/2022 12:56 PM

Prostate Cancer
Colonoscopy prep

Three weeks ago I used Cleanpiq for the first time. It wasn’t bad and worked well. (Though none of them are my idea of a fun evening). The first bottle did nothing (The bottles are small). I called...

4/4/2022 6:39 AM

Ulcerative Colitis
Arthritis and UC, Anti-inflammatory pills

People take them with no ill effects. I don’t. But if I were to hurt bad enough, all bets are off....

4/2/2022 10:41 AM

Ulcerative Colitis
Early Humira Dose

My nurse ambassador said a day prior or a day after is ok. I’ve gone longer for various reasons with no ill effects. ———— On Humira...

4/2/2022 10:36 AM

Ulcerative Colitis
Steroid shot for hip pain...

I’ve had 5 or 6 in the last 2 years. 3 in a wrist and one in each shoulder. None hurt. All were effective except the one given by a nurse (or nurse practitioner?). Nurse practitioners do valuable...

3/30/2022 6:32 PM

Ulcerative Colitis
Beaverduck checking in

Floating the Colorado through the Grand Canyon. Wow! what a trip! That's always been on my bucket list. Have a great trip....

3/30/2022 10:03 AM

Prostate Cancer
OT- 2nd Booster

This’ll be my 5th shot. First 2 primaries. A couple of months after those I had the 3rd for the immunosuppressed. Then in December my first booster. (All Moderna) I spoke with my doctor yesterday...

3/29/2022 5:17 PM

Prostate Cancer
Skin tags???

I think I’ve just had the one. Just below my belt line. I’d look down at that thing and think to myself, “That looks like something that’d be on an old person’s body.” Then, it went away on it’s own....

3/29/2022 4:56 PM

Ulcerative Colitis
Dry Eyes with Ulceratve Colitis

My eyes lol get dry. The past two years it’ll come on. Strangest feeling when it does. But it goes away fairly quickly....

3/29/2022 4:51 PM

Ulcerative Colitis
Calprotectin test at 5127

I’m with Quincy on the ERCP. My understanding is…that level of endoscopy is mainly for the treatment (fixing) an already diagnosed, known problem. An MRCP was used at John’s Hopkins to look for said...

3/27/2022 9:33 PM

Ulcerative Colitis
Most common failure mode for RP?

Wonder how many of the failure are due to surgical error? Seems like I remember Walsh saying PSM’s can approach 40% in some parts of the country....

3/26/2022 5:56 PM

Prostate Cancer
CRP 58

ncbi.nlm.nih.gov/pmc/articles/PMC6347325/ sirvasurvey.org/ Sounds like arthritis can take many forms. (I bet that hurts) At my age, getting through a day without a new physical problem or pain is...

3/25/2022 6:33 PM

Ulcerative Colitis
CRP 58

“One less thang.” (-Forest Gump) Thanks CC 😊...

3/25/2022 6:23 PM

Ulcerative Colitis
Still undetectable, but Doc says always susceptible

What a wonderful report Wings....

3/24/2022 6:30 PM

Prostate Cancer
Yet another colonoscopy….

I don’t have any words of wisdom for you Ryan. I’m sorry it’s not working for you....

3/24/2022 6:20 PM

Ulcerative Colitis
CRP 58

You either research people’s past posts or you are a really caring person. (Maybe both?). There’s ALOT of caring on this site. You all really do seem to care. The MRI showed nothing in the bone....

3/24/2022 6:09 PM

Ulcerative Colitis
CRP 58

I wish I had more to offer the forum. I’ve just had it a year. And as with a lot of life, experience seems to beat out reading. (Especially with this disease). ——— On Humira...

3/23/2022 7:49 PM

Ulcerative Colitis
CRP 58

Latest labs 3 days ago. Every single thing completely normal. Had to have been strep throat. Also a clean colon. This is all to the good. My other worries in life were feeling ignored. Straydog and...

3/23/2022 7:46 PM

Ulcerative Colitis
Low Testosterone after RALP?

I’m glad you posted Inchoation. Since my surgery, I’ve posted several times over the years that there’s a connection between prostate surgery and lowered sex drive. As far as libido is concerned...

3/18/2022 4:12 AM

Prostate Cancer
Starting Adalimumab soon and a bit nervous…

It’s not your fault. You have a physiological disease. The upside is… YOU’RE ON IT!!! You got this 1wish. As for the Humira, I had moderate to severe UC last year. Today, no signs of disease. All...

3/17/2022 7:42 PM

Ulcerative Colitis
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