Thread might have been deleted. q...
Are you still on the granules? Ask the GI for the enemas. q...
Chicken guilt...I can understand that. Beware the screeching winds, for they may be back to haunt you 😵💫 Glad you're safe. q...
Not so bad? You should have had a c-scope. First request of yours should be that. q...
Ah, I was hopeful 😕 q...
Shocking no c-scope! Be your own advocate...and I agree with you getting a new GI. q...
Did you happen to eat anything different the day or two before your trophy poop? Hoping another will be presented soon. Of course, not every day is perfection...you'll run out of room to put your...
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Yeah...like the perfect accomplishment! 😆 q...
I started with every 3 years, then two and now every 1.5. The time adjusted from 3 to 2 was around the 20 year mark. Five years ago I started 1.5... I would never have done every 5 regardless. q...
Do a search here...a few have used and are using nicotine patches. Remember...no cure, by the way. q...
I've never fasted, but certainly did cut out foods that caused me discomfort and more gas/cramping. Two plus years before diagnosis, an obvious first diarrhea caused a weight loss of 17 pounds. I...
Fasting as a choice won't help inflammation... but as Keith mentioned, most would use it as output control, especially during a flare. q...
Hi Joanna...sucks you're back with gut issues. I hope it's something that can be treated quickly. If it is a flare...hopefully a new med will help get it under control. Of course, in the meantime,...
Thanks Susie...I can relate to falling. I'm sure some of my issues are from the many times it's happened. I call it Body Shaping by Heather 🙄 I'll update re my next appt. I don't plan on going for...
High in rectum and sigmoid produces diarrhea...but depends on the intensity of the inflammation. Yes, yours sounds limited to the rectum...but I don't think suppositories are enough medication. Your...
Hi Susie...seems pretty much confirmed with the beading as being PSC. I would still see if you were AMA blood tested for PBC anyway. I'm sad to hear of the diagnosis. The URSO dosage is usually based...
All true and taken. It's realty not that I don't have time. Thanks for the encouragement 🙂 q...
Wow...from 2008. I drink tea in the mornings now 😁. Still do coffee and water. I don't like to drink my calories...eating them is much more pleasurable! q...
Pd...I would have tried it if she didn't go on mat-leave. My now chiro did suggest acupuncture for some of the issues in my neck and shoulders, but he doesn't do it....interestingly my past chiro did...
OH...I fired my chiropractor after 30 years. His rudeness to me over the past 3 years has been difficult. I don't have a habit of sucking it up, but it was a means to an end, so so to say, for my...
Hey Wilma!!! Good to hear you're doing quite well. It was suspect that I had PSC for many many years because of my elevated enzymes and UC. I refused any invasive tests unless I turned yellow, lol,...
Ok...will do! Thanks 🙂 q...
Food won't cure you. Try to eat as balanced If you're able. If you don't want to take meds that's your decision, and no one can force you, however, we can try to encourage you to be your own advocate...
It probably didn't work, so to say, because you weren't on rectal mesalamine enemas (my suggestion rather than the suppositories) as well. q...
What mesalamine exactly that didnt work anymore? q...
True, not enough if you're using topical meds. I use the 4g enemas and oral asacol (now generic) for 34 years. q...
Seems you'll be getting a c-scope soon after you see the new GI...which will determine how the inflammation is progressing or if there's something else going on. If you're having to wait a while for...
People believe what they want. They forget that if they type in a specific search, it sets up THEIR algorithms to certain information and philosophies, and that will be mostly what they receive. As...
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FF...I learned how to use them properly, because gratefully, I had a doctor who understood the value of mesalamine oral AND rectal (and pushed the concept of patience with using them). Now, my...
What specific tests did you have that gave you any diagnosis for diverticulosis and UC...? I'm confuzzled 🥴 q...
FF...can you explain what you mean? q...
And you're still on nightly enemas? q...
Flare Inflammation causes the constipation, not the other way around...depending on location and limitation. I use metamucil capsules with meals only...not between. I do increase foods that will...
Hi Guigsy...are you having symptoms now? Good you're seeing a new GI. q...
But you're flaring...symptoms as you stated are typical with flaring, especially depending on where the inflammation is located and limited. You're on max oral meds, not rectal. q...
Sassy...what foam exactly? Only steroid foams, not mesalamine. q...
Your PCP can give you rectal and oral mesalamine meds to help this flare. q...
Hi Sassy...did you use the enemas nightly? Im trying to interpret what a couple of times means...and when did you use them? Did you have stool testing done then? q...
Did he not suggest mesalamine enemas? q...
You should absolutely be on oral mesalamine because you have UC, and you want to make sure your colon has good coverage of medication. q...
Trigger and cause are two different things re UC or CD or other autoimmune. q...
Not Ulcerative colitis...have you been to a gastroenterologist, and did you have a colonoscopy? It's possible it was an infection or extreme allergy...but what you actually have should be determined....
If you're meaning colon cancer statistics, I don't know. However, they are not subjective. Consistent inflammation can cause cells to change toward cancer, however, there are some with a genetic or...
I suggest you call and ask for a foam steroid enema initially to use during the day and the mesalamine at night. I understand the impatience. That's why I remain on maintenance and increase at first...
Thanks 😊 good you didn't have to use more than the normal mls salofalk. Hard to say re retention. Pentasa is in 100ml bottles, and it also has a 4g. q...
Hi CW...I understand your point and am not disputing it. This is a topical med...not systemic, so it doesn't compare to my logic 🤔 How I explain it is...the 4g wouldn't be in a concentrated dose of...
What were the path results for the sigmoid and rectum? q...
I don't suggest doubling the enemas...but you could do one during the day and one at night. Doubling them is still 2g, just a larger amount. When are the majority of your bms during the day? q...