Thanks Clo, I had the blood test 2 days before next infusion of every 4 weeks The blood test before this one was on 11/8 2 days before the next infusion. Level was <0.4 Antibodies was 84. That one...
Never really spoke to the ER doctor about my Remicade. Just did the portal to ask my care team about my blood test and side effects. ER just want to know what i might have taken that would cause a...
Will do. Do you think the report is wrong? I understand my side effects suck. I want to sound intelligent when i ask to talk to him....
I have the Labcorp report in front of me. Infiximab level 15 ug/ml Anti- infliximab antibody: 46ng/ml Interpretation result is low antibody titer 22-200 ng/ml : Low titer So that’s exactly whats...
Sara, i called and they said the antibodies were low. Is the ratio to the levels have anything to do with it. I have no idea. I was wondering why no one was calling me. They said i had plenty of...
Just wondering how to understand my blood test. Remicade levels were 15 Antibodies 46 Is that ok or bad?...
Ok! Just got the lab results. Not very good! Antibody 46 Remicade level 15 I think that might be pretty bad Faith...
Thanks Clo!...
Hey Clo, so the throat swelling is a side effect of Remicade. My voice even sounds off. Still waiting on levels and antibody blood test to come back. I wrote the nurse on the office portal today...
Reg Medicare and a supplement is the way to go. I have a stand alone prescription plan silver script. Pays for everything. My Emgality is $ 30 copay good Rx is $600 I pay for my gym membership and i...
I think a change is in order. Thought i was going to stop breathing last night. Still not right 4 days of 40 mg of prednisone starting today . My voice is way off. Hope i feel better soon i have...
Going on the portal today. They see it right away. I am premedicated before infusion. They even add an extra bag of fluids and run it for 3 hours . I get 50 mg Benadryl, summamedrol and Tylenol. I...
This all happened the day after. They gave me 2 Benadryl while i was there...
Had the infusion on Thursday. Tests take awhile for levels and antibodies. Was ok on Thursday. Friday night my throat started to tighten and felt like it was closing. Could hardly swallow. I was in...
Went from 8 weeks to 4. Level of drug was <0.4 antibody value was 84 Don’t want to go off until I’ve been approved for something else. Insurance wise I don’t have any problems....
Well I’m going tomorrow for blood work . The levels and the antibody test for Remicade. Arthritic pain seemed to go away at the 3 week point. I don’t know if you call it a sore throat or just an...
Well that plaquenil does not sit well. Such bad stomach pains and a wicked headache. Not worth it. Wait to see what tests show. In the mean time have another infusion next week too. Four weeks fly...
I guess I’m one of the very few who hasn’t taken any boosters. Every six months I’m given evusheld . I think that is how it’s spelled. Monoclonal antibodies. Had covid two months ago. Mild case. I...
Ok went to rheumatologist. Said i have RA without rheumatoid factor. She put me on plaquenil. Go with that until i have the blood test for antibodies and levels....
Thanks Susie, thanks for all information. I know i sound pretty naive about my lawsuit. The paralegal handling my case hardly ever returned my calls. Didnt know i had to be so proactive. Never sued...
I didn’t sign off on anything . Wouldn’t they need a signature. I was told first they tried to low ball the settlement. My lawyer said no. They came to the asking number. I was very surprised at what...
I used the largest firm i think in the US. Most doctors wouldn’t see me because it was a PIP case. I did ask him who has to be paid. I know the chiropractor didn’t get paid. I never got any bills ....
Take it back my opposite hand from yesterday is swelling up and knuckles are sore. Does this all sound like antibodies. Strange ! I’m afraid to tell anyone. I sound crazy Faith...
Susie, i wonder who has to get paid back. Lawyer asked for all Medicare info. My insurance for the car picked up 10,000 . Why my car insurance? I was walking. The whole thing is crazy. Waiting is not...
Hi I poop Taking all the premeds. They do the infusion 2 1/2 hours. Was getting real itchy until they upped all the pre meds , solumedrol double Benadryl Tylenol and extra fluids. So I’m ok on that...
Thanks Sara, you have many side effects?...
Hi Susie, doing good. That accident put a real damper on things. Surprised you remember. Well the Accident case was just settled. Couldn’t wait for that to be over. You need to lose a limb it or...
Guess i replied to myself...
So if for some reason i have to go off Remicade, what’s the best next option? When going on Remicade doctor actually gave me a choice of meds which I can’t remember the one he was thinking of . He...
Hoping its not antibodies....
Clo, wow never had so much going on with any of the other biologics. At least I'm not flaring. Thanks, Faith...
Hi Clo, At 67 i guess i won't be having children lol. I only got itchy during the infusion. They doubled the Benadryl. Test in December the level for Infliximab was <0.4. Antibody value was 84 Went...
Say i have antibodies can they give something with the remicade to help. Would hate to stop taking it while it’s helping the major problem. Thanks, Faith...
Yes had that test done 2 months ago. Gastro upped the remi to every 4 weeks and upped the dose. I wrote them today they said exactly what you just posted. I need to have the levels checked again 1 to...
Been on remicade for less than a year. Taking it every 4 weeks now. I have terrible joint pain in my hands and wrists. Last week it was my left hand today its my right. Shoulder sometimes too. Is...
Hope i dont have to switch . Just bumped mine from 8 weeks to every 4 and doubled the dosage . This will be my second of the every 4 weeks....
Hi straydog! Was doing really good. At about the 6th week not horrible but not as good. Texted Nurse she said it takes time for it to work . It is working just have some bouts of urgency especially...
I had the Evusheld quite a few weeks ago. No side effects at all. My infusion doctor ordered it. I receive my infusions in cancer facility. She ordered it and within that week I received it. Never...
I’m on Remicade and I’m achy all over especially lower back neck and shoulders. Told the GI at the time . I had the test it showed no antibody’s. Feels like arthritis pain. I think it’s from the drug...
Emgality seems to be working. No constipation. No real headaches. I’ll keep in mind what to take in case of constipation. Lots of muscle and joint pain. Not sure if it’s the Remicade or from the...
Hi straydog, all is well , yeast infection gone. Just went back on Emgality for headaches. Seems to be working. The best news Remicade is working. Not 100% but 85-90% . So all is good thanks! 🤞...
It was more then trace. I told her that I always have trace blood. I’m going to leave it be for now. I guess if she wasn’t worried then maybe I shouldn’t be....
Haley, Was not noticed by me. Just when Peed for the sample. First she mentioned it. I asked what about the blood? She said it’s from the infection....
I’m somewhat worried about this blood in my urine. You think I should address it with my primary. She’ll send me to a urologist. That thought scares me. Think they have to look up there!...
Glad you are able to get the Evusheld. I guess I had it easy getting it because I have my infusions done at a Cancer infusion center. Of course you have to see a doctor there in order to have your...
My primary is good with refills. Specialist aren’t so giving. I knew the GI wasn’t going to give something without seeing me. Gyno is near by and you always can get an appointment that day for...
My GP has no problem prescribing them. She even told me to stay on them and not to worry. I don’t abuse them or any other drug. When I had my accident I wouldn’t take oxycodone. Afraid I would get...
My doctor is stingy with the meds lol!...
Keith, she gave me 3 150 mg take 1 every other day. For 5 days. Double dose would have been good. 89 cents for the script. They never write with refills. I guess they want your visit....
Ok saw the gyno! Yeast infection vaginal with possibly in the mouth also. Blood in the urine more then just trace. So extra diflucan. The blood she said is from the yeast infection. So if I have...