Yes! I rarely post, but I read the boards daily and the mods do an amazing job. Thank you!...
Hospitalized in October of 2020 after 10 years with UC. Thought I was headed for colectomy, but I was put on Remicade and have been in remission since about March of 2021. I still have blips and...
I have been on Remicade since my hospital admission in October of 2020 after Entyvio failed. I feel well for the first time in three years. I hope that you have a similar positive experience....
KS - Yes, I had a reaction to each shot. My reactions to the 2nd and 3rd shot were strongest with low grade fever, body aches and a very sore arm with a hot red welt. Fever and aches only lasted...
I had my booster (3rd shot) in September and had my antibodies checked last week. I am over 2700, which my doctor said is "terrific response to the vaccines". I am on Remicade at 10mg every 6 weeks....
Remicade and now Inflectra....
Fantastic news!...
Thinking of you and wishing you all the best!...
Hope everything went well during surgery and your recovery goes well. Mary...
I am on Remicade every 6 weeks at 10/mg. It is working well for me after Entyvio failed. My infusion takes about an hour and a half. I am tired afterward but I believe that is from the Benadryl and...
Yes, I had pred affect my vision this last round and am no longer allowed to take it. I developed a retinopathy in my right eye, which still has not completely resolved (its like a blister on the...
Great news! So happy for you!...
Dr. Remzi has a great reputation. I am a patient at NYU Langone and have had great care from the IBD center. (Dr. Bosworth is my GI). Wishing you all the best....
I just came through the worst flare since my diagnosis. The only foods that worked for me during the flare were animal proteins, sourdough bread, and the typical low fiber vegetables and fruits....
I received both shots of the Pfizer vaccine. Sore arm, some mild nausea and a few body aches. Nothing a little ginger tea and a couple of Tylenol couldn't handle....
I also have proctitis which is quite stubborn and sent me to the hospital twice this month. I agree with Quincy about oral mesalamine and enemas. I was in remission for 6 years using Lialda and...
I just got out of my 2nd week-long hospital stay in as many weeks (October surprise for real!). I had a blood vessel come thru an ulcer in the colon and had 3 hemorrhages resulting in blood...
I agree with TT, go in if you feel you should. You know your body. I am back in the hospital right now after being released 10 days ago. I woke up to the same hemorrhage and knew to go in....
I use medical marijuana as an edible or a tincture before bed and I sleep solidly until about 4:30 a.m. and often can fall back to sleep until 6. It works for me....
Mine began as proctitis about 10 years ago and eventually progressed about 2 years ago with a bad flare that I am still trying to get under control. I was well controlled with Lialda and rectal meds...
Hi folks, I have been home for a few days and am awaiting my first Remicade infusion on Monday. I was sent home with 40 mg Prednisone. I was doing better for a few days - no blood (my main symptom...
Hi Mike, Seems like you and I have been having similar flares, although mine is limited to the rectum at present. I was on Entyvio since November, Rowasa, Canasa, Uceris foam (basically anything we...
Thank you Momtoboys! Just saw the on call GI and I am to continue the rectals, Lialda and add Pred while home. 40 mg and a slow taper, while they attempt to get insurance to approve the switch to...
Thank you, that gives me some hope!...
Hello folks, I am currently in the hospital from a spontaneous hemorrhage that was quite frightening. I have had Proctitis for about 10 years which was well controlled with Lialda and Canasa with the...
I have been on Entyvio since December 2019 and it has truly helped to about 85% healing. I do have an uptick in symptoms a few days after infusion, which is weird. I also have mostly rectal...
If you still want to stop by for support, we will be here. I am new to the forum, so you may not know me, but I am sending love and thoughts for ease and peace....
I am so sorry to hear you lost your friend. That is so very hard. Hope you heal soon and that Entyvio helps you to a speedy recovery....
It is likely telogen effluvium, which is temporary hair loss that can result from the stress the flare causes . I had this happen when I first started using Entyvio and started to get my flare to...
I started Entyvio in November after 8 years using just Lialda and rectal meds as needed. We could not get the flare under control, even with steroid rectal meds. Started Prednisone at 40mg and it did...
I am currently in a flare, which began in September (right after my wedding). We added Uceris oral and rectal during that time, but it didn’t help, so we switched to the dreaded pred, which also...