That being said, you can also use 2x 2g enemas one after the other. I've done that when the 4g was out of stock....
No I'm in the EU. The salofalk i use is manufactured in Germany....
They changed the salofalk bottles last year or so and yes they are stiffer and more difficult to squeeze and I hate it. I often get spasms after inserting the enema, i just lie there until I fall...
It would be nice to see a follow-up beyond 16 weeks....
I took vsl3 and azathioprine together for about 18 months. No issues except when first starting vsl3 - it's quite strong so i recommend to build the dose up slowly. I had a reaction a bit like I'd...
Hi ceci Yes I was on prednisone throughout my time on remicade. I spent the first two months on a taper to 5mg then stayed on 5mg. That was the lowest dose i could take while remaining somewhat...
It's not clear to me what your dosing schedule is for remicade. The standard is 3 loading doses at weeks 0, 2 and 6 to build up levels of the medication, then every 8 weeks after that (can be...
Stelara is more expensive than humira. That might be why it's harder to get approval. In terms of other medications, xeljanz and simponi are licensed for UC but not crohns. Not sure what the...
There is a type of ulcerative colitis which spares the rectum but it's uncommon. So I wouldn't immediately assume you have crohns disease. The biopsies will hopefully give more insight. I think it's...
There have been some clinical trials with stelara and uveitis recently but not sure what the results were....
Ps I have had many flares of colitis without diarrhea or blood - my main symptoms were abdominal pain and urgency. And one of my biggest regrets (not that i had a choice because i was at the mercy of...
Stelara is MUCH safer than steroids. If you take steroids long term you risk osteoporosis, diabetes, weight gain and a host of other problems. Of all the biologics stelara is one of the safest and it...
PS, biologics (entyvio, remicade, humira, stelara etc) are all safer than 6MP...
I would get a 2nd opinion, if that's an option. It's really not clear to me why some doctors are pushing zeposia over established treatments like entyvio or remicade. I don't see why entyvio is...
Calprotectin is a brilliant diagnostic for SOME people - particularly those for whom the inflammation is concentrated (or most severe) in the rectum. It is less sensitive to inflammation higher up...
Yes, who needs critical thinking and expertise when we can just believe whatever someone says on a youtube video....
Could the cloudy liquid be mesalazine enemas coming out?...
Are those crohns or UC patients on entyvio warriors? Asking because the time frames are different for UC vs crohns. For UC, 3-4 months is about the right time frame to assess if it's working (does...
For those who are wondering (not the OP) this is the deal on rinvoQ and pregnancy: //In animal studies, this drug administered at exposures equal to or greater than approximately 1.6 and 15 times the...
I think there is at least anecdotal evident that remicade is more effective than humira in UC patients. Zeposia is pretty new for UC so the side effect profile is not entirely established. The...
I know it's frustrating but in a way it's not necessarily a bad thing, as now you have more time to assess what the inflectra is doing, and to again confirm whether or not you are dependent on...
The short answer: yes prednisone can cause mood changes including anxiety and depression. Not sure i experienced depression as a side effect myself because i was in a horrible flare that was pretty...
Most flares are building up for a while (weeks/months) before symptoms appear. I doubt you can flare the next day from eating oysters. Unless you got food poisoning, but even then it would probably...
I think if you go to your GI on monday and tell him you are feeling fine then he won't change anything, then when you drop the budesonide you will start to flare again and have to suffer for X more...
Regarding the storage: it needs to be stored in the fridge. I'm allowed to pick it up from the pharmacy and store it in my own fridge until my appointment, but, I'm outside the US....
I don't think there's a definitive answer. The country where I live has a minimum interval of 3 months between shots. But they haven't called everyone for repeat boosters every 3 months, only the...
My sister with crohns took paxlovid when she had covid recently. Her symptoms were mild and she considered stopping the paxlovid because it gave her a metallic taste in the mouth. I think she stuck...
Combining treatments shouldn't be a problem from a safety point of view but I would give the inflectra a few months before adding something new to the mix. If you do an FMT now and you go into...
I also waited 4 months before trying a dose reduction on xeljanz. I still had symptoms at 2 months, although we knew it was working...
Sorry to hear about this barnsbury, especially when you've been doing so well on upadacitinib. I think it is a risk of most of the immunosuppressant drugs. My sister has a reactivated HPV infection...
CC if you read the "timeline" post above mine, my response will make more sense. OP was hospitalized in January for a severe flare and while increasing their remi dose enabled them to leave hospital,...
If I read your story it sounds like remicade may not even be working very well for you anyway. Several months living in your bedroom....scope shows pancolitis after 9 months on higher dose...
Only in the realms of pseudoscience. That idea was debunked decades ago. Have a read of this for more background...
I've always brought my own food into the terminal. It's only on arrival (depending on where you're travelling) that some products are banned....
I'm not an MD but you really sound like you're flaring. Have you explained about having urgency and night time bathroom trips to your GI? And that it gets worse if you try to lower the budesonide? It...
Apparently, one of the ways to distinguish IBS from IBD is that night time bowel movements are associated with IBD and not IBS....
Stool test... if you have a bacterial infection then antibiotics may be required/helpful... A good probiotic may also help...
Giving you a sample size of one... I have UC. I have 2 siblings with crohns disease. We grew up in different households in different cities so we likely do not have a shared environmental trigger. I...
So last year it was Teflon coatings in cookware and plastic food packaging that gave us IBD The year before it was air pollution And now this: synthetic clothes...
Hi Jess If you have symptoms then you are currently flaring i.e. there is inflammation somewhere. If the budenofalk doesn't make you symptom-free then you need (eventually) stronger medication. While...
I have been fobbed off more than once with "it must be IBS" when I was actually having a flare. Do you get meaningful results from fecal calprotectin tests to check for inflammation, and if yes, have...
I know that, I am from the UK and live in various EU countries. The UK is still part of the continent of Europe. It's just that it no longer subscribes to the EMA since it left the EU....
Hi, just wanted to point out that the UK is still part of Europe 😁 Apart from that, jyseleca is similar to rinvoq (upadacitinib) in that they are both JAK-1 inhibitors. Xeljanz, the first...
Grilled/roast chicken is also my go-to protein when flaring. Fasting is an absolute no-no. I get dizzy and shakey and headaches if I skip meals, and flaring only makes this worse due to...
When I'm flaring i only drink caffeine if I'm near a toilet! It definitely makes my bowel more active... but is ultimately not responsible for the flare itself. I stick to foods and drinks that do...
I have been in remission on xeljanz for 3.5 years, minus a couple of minor blips which i managed with 5ASAs. Nothing else put me in remission and I was about to have surgery when xeljanz decided to...
How high is your calprotectin? E.g. are we talking 200 or 2000? Elevated calprotectin usually indicates inflammation located in the bowel (regardless of what is happening higher up), but it can also...
Hahaha! We had whooping cough go round at work a few years ago. One colleague was coughing for months.... we used to recognise her coming up the stairs or from the other end of the corridor because...
You can turn your poop darker by eating blueberries and black beans but that won't solve your problem. High calprotectin means you have bowel inflammation. Stronger medication than whatever you're...
Hi Charlie I'm glad to see you're finally making progress. It's so frustrating when doctors don't listen to their patients. My sister has ankylosing spondylitis and crohns, both of them independently...