Yeah it's pretty easy to say "Who cares what anyone thinks!" But at the workplace especially, you want to keep some things private....
Thanks Flowers! I tried coconut water and couldn't choke it down. :( And I love coconut! I think I tried a pineapple flavoured one once that was definitely better but still... I have found something...
Oh boy I would love that to be my result... Thanks for all your help and advice with this Clo!! I really appreciate it....
Thanks OH. Yes I do focus on replacing electrolytes during the liquid diet/purge phase. I've used a variety of different things. I even tried Gatorade but just hated it, so never again! I have found...
That must be what happens with me, I have the extra sticky mucus. I know during the early part of my flare, I had to do a stool sample so I had to dig some of the stool away to put in the vial and it...
Oh good for you, I wish I could fast that long on just liquids. That would make things so much easier. I get so weak and shaky and freezing cold. Brain fog... worse than normal! haha....
Oh you actually use it for your scopes! That is reassuring to know. I feel like I am going rogue using this as pre-prep....
I have a progress report on my Milk of Magnesia experiment. Clo wrote that after a bit of trial and error, she found taking 30 ml x2 daily worked best for her. I started taking it three days ago,...
Oh no! I've never used just pills to do a scope clean out. I am planning to try the Milk of Magnesia in addition to the official scope prep. I am not sure which prep you were drinking. I've had some...
Thanks Q....
Thank you so much, Clo! I am going to try it....
Thanks Flowers. If I try using it, I'll look for the liquid....
Quincy, I'm sure you've mentioned this before but how often do you take the enemas when you are in remission?...
Clo, you mentioned taking Milk of Magnesia the week before your scope, to help with the clean-out prep. I have never used M of M, so I wanted to ask for the details on what you did. I googled it and...
I had my phone appointment with my GI. She seemed to feel that 4L of the Colyte would be sufficient. Tried discussing med options with her but she just kept repeating "I have to see the extent of...
I take Advil for dentist appointments. I would think that taking it "once in a while" would not immediately cause symptoms... but I don't know. Maybe if you are already flaring it can help to make...
No, nothing else has been started yet. My phone appt with GI is next Friday (Jan 27), and my scope is on Feb 8. I would think she will wait until after the scope to prescribe anything. But I want to...
Clo, you honestly could write a book about your experiences. First the experiences are so out of the norm for most of us, and then your writing style is so engaging. But writing a book and getting it...
Thanks Clo. The prep you did last time, with the powder you drink in 8 oz x2 sounds like the Pico Salax. That one I found to be the easiest to drink, but least effective. The Colyte comes in a big...
Thanks Sara, I don't think I will put it off....
My GI is a she, not that it matters. The assistant sent me the instructions and it was for the standard CitroMag or Pico Salax, but neither of those work for me. Last time my GI had me use Colyte,...
All the additional explanation does cast a very different light on everything. Sounds like the kids are good at heart. Now I can laugh at the story without also worrying about you. Twinkie and hair...
Oh dear lord, I am laughing so hard, but still outraged at the same time! Only you can write up a story like that and make it hilarious! You need to be a writer for a sitcom or something! But I agree...
LOL, Clo, that is true! What a thing to find hope in. CC, wow, some of the things that doctors and nurses just boggle my mind....
Oh, that's interesting, Clo. Thanks. That gives me hope! ;)...
Should I not have it while I'm flaring?? This is my routine scope, postponed (due to health system constraints - COVID yada yada) from last August. I didn't think there was any reason not to do it...
Thanks Flowers!...
It's absolutely brutal. I can't believe an easier, more humane way hasn't been invented in this day and age. One that doesn't cause damage to the body in the process. Thanks for the good luck wishes....
Thanks for the tip!...
Oh me too, that was brutal! Thanks....
Thanks so much for your responses....
I would rather try that first too, so if you advocate that then I will suggest it. And how soon could I expect to see improvement from them? I want to be prepared in case I have to "negotiate" with...
Well that is the most sensible answer. I would kind of need to plan ahead though, in order to get all the prep consumed in time for the scope. And I guess I was also not wanting to buy an additional...
Okay I'll mention that. Is it worth suggesting rectal meds instead of steroids at all?...
Do most of you find you require less of the prep during a flare? I always have a terrible time getting properly cleared out. I failed one and nearly failed a couple others (scope could be completed...
Okay, I understand a little bit better now. Thanks for the info....
What! 40 lbs! I need that like a hole in the head. How long were you on the pred to gain 40 lbs? And if it works within 2-3 days, how long do you need to be on it?...
How long does the pred take to help?...
Yes I am. :(...
Guess I can post here too.... It's been about 14 years since my diagnosis... but 14.5 years since symptoms started....
She often has long absences between postings, so I am hoping she will show up eventually to update us....
Lollipops, stickers, and shiny pink flower ring! What! All I've ever gotten was a lollipop. At my last workplace they brought in a nurse for on-site flu shots and she had a big bucket of lollipops....
Oh wow that is awesome! Thanks for reporting back....
Good one Keith!...
I have never had any reaction, aside from sore arm, from: flu shots or Pfizer COVID shots. From my first Moderna COVID booster shot I had sore arm plus the next day felt under the weather - headache,...
I've always tried to drink a lot of water and as a result, I have to pee a lot throughout the day and a couple times at night. I actually used to drink more (pre-UC) when I was working because I sat...
In BC, the Ministry of Health is going to be scheduling flu & COVID shots at the same time later in the fall....
Wow, Clo, it just never ends! I am always in a battle between horror and laughter when I read your spider posts!!...
Oh wow! This sounds awful! No wonder you are upset. Obviously, you need to have a calm and clear head before you decide on what you will do about this. Sounds like you are waiting for biopsies before...
"Maybe he read my post on the.... world wide web :p" Hee hee!!...