I’m concerned that Remicade is being dropped by my insurance and waiting to confirm. I read that the 3 big prescription providers are switching to biosimilars. I’m up for insurance approval this...
I had to deal with Accredo in the past and then CVS specialty pharm and I had to call over and over again to get thing’s expedited. Now I just go to infusion center and they get the med for me. I...
Wonderful news!! Congrats...
Agree with Sara .. cdiff equals yellow stools...
Congrats on the pregnancy!!!!...
Why doesn’t pumpkin keep the mice away? Also I would have started the enemas right away. Keep us posted. Also mice omg my biggest fear ever … and you caught 8 so far oh no: I’d die...
I had my last Colo in Nov 2020 and there’s no way I’m having one this year. I’ve had enough with scopes....
Happy for you Sara! I wish us all long remissions!!...
I think peri menopause triggered my IBD. I was very hormonal in my early 50s and I was also late onset IBD. I swear the crazy hormone phase set things off....
How much pooping blood is normal post 3rd j pouch surgery? How long does it last? My friend had surgery and she had 27 bms in 24 hours all blood. Surgeon said she could see blood for months. Is this...
I wouldn’t get a scope unless I felt bad. Why rock the boat?...
I agree with stray dog with enjoy remission and life is short. I decided that if I’m going to be on a biologic I might as well enjoy my life as much as possible. I take lexapro for my anxiety and it...
I just take Tylenol...
This happened to me once after a scope. I had very mild inflammation and biopsies confirmed that but I bled so much worse afterward. The biopsies irritated things and I ended up on prednisone for the...
Thank you all so much...
Hi Asking for a friend who has completed 2/3 surgeries . She has high output with loop ileo and is really dreading the third surgery and j pouch training. This current ostomy sounds like a nightmare...
I got a breakthrough case of Delta and have not been boosted. I know 15 people that got omicron over Christmas including my husband. I didn’t get it and I’m hoping it’s becAuse of antibodies. Half of...
Oh btw you could get monoclonal antibody infusion but I read that it may not work against omicron:...
Haley I had a breakthrough case in August while on Remicade. My symptoms were different and I had more flu like as in fever, body aches and very mild congestion . It sounds like you have the new...
Wishing you much healing after your long journey!!!...
Remicade and lexapro...
I also had panic attacks from Humira. I told my doc about it and at the time he had not heard of that side effect . I switched to Remicade and do not have any side effects . I did get on Lexapro just...
Are you on rectal medications?...
Yes I really hope that you get many years out of it!!...
I use nature made paleo protein. It’s very easy to digest...
I agree with CC. Don’t panic and be positive that these biologics worked for you . There can be dose adjustments, addition of rectal meds or maybe a short round of prednisone to get you back in...
I totally agree. I just restart the enemas and eat plain for a bit till it subsides. I did not completely stop the enemas as I was told to do but I cut back. When I feel off I increase them and...
I knew I wasn’t going to have the cytokine storm since I was on RemicAde....
I pray it is the answer for you as it has been for so many!! Ostomy stigmas are a thing of the past....
This makes me so happy! I’m so glad you found a keeper (boyfriend and meds lol!). This is great news!!...
Poopy I’m not afraid of the vaccine but of the reaction due to the antibodies. I agree that I am superwoman right now and should wait. Also haven’t I had enough covid for awhile lol?? I was surprised...
I’ve had doctors give me varying advice regarding the booster shot after my breakthrough covid infection several weeks ago. My GI said to wait 8 weeks. I still can’t taste or smell 4 weeks later and...
It sounds like you need stronger meds. The antibiotics probably didn’t help matters esp. Cipro. The current meds you are on do not control your inflammation. I had similar inflammation one time and I...
I’m recovering from Delta and I would much rather have had a 3rd vaccine. I’m 2 weeks out and still can’t taste or smell and the fatigue is bad. It was not fun and I supposedly had a mild case. I...
Does anyone know how long one would wait to get a booster after getting covid? I got an email today from the healthcare system I got the first 2 shots from. They offered me the booster. Considering I...
Wow TG that’s awesome. I’m a week too late as I am recovering from Covid. I’m still so tired and cannot taste or smell. I would take the third shot any day over this....
I was sharing my story to help others as well. I just thought I’d let you know that yes it’s very contagious but also being vaccinated helped. I pray my IBD behaves despite all of this. I’m more...
Hello all I’m fully vaccinated with Moderna , but recently got covid. I’m on Remicade and also have been wearing a mask in stores again, but continued to hang with other fully vaccinated friends. I’m...
I am now fully vaccinated with Moderna and I did well. I had some body aches and discomfort but no GI related issues ....
He’s on protonix and they tested for hpylori. It takes 2 weeks to come back with results ....
Yes it was really fast. He was scoped 1 week after his appointment. I’ve always gotten in quickly as well. He’s being treated for reflux for now. Thanks for the responses because the stress was...
Thanks All for replying . Son was scoped up and down and there were signs of reflux and also internal hemorrhoids (probable cause of the temporary blood). There were no signs of IBD!...
I had 1st shot of Moderna (on Remicade) and had mild headache and body aches 24hrs later. I agree that an immune response is a good thing....
I just got my first Moderna and from the people I know it is the easier one to tolerate . I heard more reactions from Pfizer . I had headache but that’s it/...
Hello I’m super concerned about my 24 yr old son. He is in med school and has terrible reflux. He takes Pepcid as omeprazole GIVES him diarrhea. Lately he’s been complaining of fatigue, inability to...
Jane Once in remission on a biologic you will not need a rectal med long term. You can use the steroid enema/foam if a mild flare creeps up....
I. PA moved us to the 1A group so I now qualify and made an appointment...
Yes it can be missed if rectal inflammation or if it’s mild . I think it works better for the small bowel to rule out Crohns . I had one a few years ago and it was normal but a sig scope showed mild...
Maybe it’s just a small flare that a short course of pred will fix. I had a few small flares on Remicade that went away with 2 to 3 week course of prednisone....