PCa survivor here. (Surgery…positive margin. G6 at the margin per Johnathan Epstein, Johns Hopkins). My fear was that the Humira might could cause that bit of PCa inside of me to begin to grow. I was...
You may not need full doses of miralax. About a half a dose keeps me soft and regular when I begin to feel the constipation coming on. If it’s too late to catch it with Miralax, a Ducolax suppository...
Congratulations Hal...
Chief surgeon at JH at the time told me if it were him, “I’d have seeds”. Chief radiologist at the University of Tennessee told me if it were him, “I’d have surgery.” My experience was mostly...
I had a 14 day regimen of antibiotics for another condition in October. That’s when I began using probiotics. I’ve continued the probiotics. With stomach cramps gradually getting worse since, I’m...
Here in America the window is 2 months between for immunodeficiency. So I’ve had a total of 5 shots in 2 years. My last two being only 8 weeks apart. I’ve now developed racing heart beats upon...
Prostate cancer changed my life. Most people on here hadn’t had sex in 20 years anyway because they’d been married 40. When you’re single and you’re using it, I honestly don’t know how anyone could...
I know what I’d do if it were me. I’d try another lab....
Happy Holidays everyone…🌈...
Sometimes yes. Sometimes no. The more family = no. The less family = yes. I’m a curmudgeon. I like smaller groups and the connection/intimacy that comes with smaller groups. Some people call me other...
The same thing you’re doing. Tests and doctors’ visits. It’s concerning when our bodies have pain but many times there’s nothing that can be found as to the cause. I’ve had several tests over the...
P.S. I’ve had left-sided pain for 15 years. UC for a year....
I think there’s a good chance there’s nothing wrong with you. That radiologist could not have written a more vague, nonspecific interpretation of a film. The prep for the colonoscopy is no fun....
Guess it’s time to hang up the ‘ol leisure suit. ———— On Humira...
A bit of shock therapy may be in order for myself. What hogo said....
Prostate cancer treatment can be a very individual and personal thing. For myself jronne, the scar tissue from the (successfully treated) stricture made my decision to wait much easier. Currently,...
If it weren’t for American ingenuity driven by free enterprise and competition, they’d be no Entyvio and precious few other drugs for UC or any other ailment for that matter. America cures the...
If it’s arthritis you’re looking to minimize and if my experience has any relevancy, Humira’s not your gig. Seven cortisone shots in three different joints so far this year. Never had arthritis in my...
I retire in August. Current prescription plan is with CVS Caremark. $9k/mo for Humira (a biologic) for my Ucerative colitis. I’ve yet to pay anything for that drug. There was an issue one time when...
It’s a mighty alone feelin’ when your surgery doesn’t go as planned (”Like everyone else’s”). It’s scary (at least it was for me). “According to everyone I’ve talked to, I should be out on the golf...
Part of it is the name. “Colitis”…everyone’s heard of it. No one knows exactly what it is. It sounds like something that’s temporary, kind of like having braces. A couple of people I’ve told and...
I’m thinking antibiotics kick in pretty fast. Hoping that’s it with ya....
The first appointment is where I get the information. Asking questions about that information comes during the second appointment....
Get in touch with her Prato. You’re very good with people. Quite a moving story....
Hippa and dr./patient confidentiality isn’t where the problem lies. Many employers request seeing your medical records. That’s where the rub lies. In a practical sense, hippa is a meaningless and...
Pooping and diarrhea 4-5 times every morning is what drove me to a colonoscopy. Diagnosed with ulcerative colitis. That colonoscopy should be done by someone with experience in poking around in an...
Hey magic, I’ve had the same CRP. On Humira for UC also. This was just before a colonoscopy when mine was so high. The colonoscopy showed no signs of disease. After the colonoscopy, had it rechecked....
With sleep apnea, It seems like being intubated during surgery would be safest place you could be. Good luck with your new elbow....
Speaking of wrong attitudes, I expect my journey has yet to begin....
Not many here would do AS with your numbers maddixone. (I’m not saying not any, just not many). Not many docs would recommend it. I think you know. You’re not striking me as a guy that will ever get...
LOL 😊...
We had a milkman growing up. Always cool when he’d leave a gallon on our doorstep. Drank milk all my life. Many years ago I switched over to fat-free milk for weight reasons. Nothing compliments a...
I’m immuno-compromised due to a drug I have to take for ulcerative colitis. Never in a million years would I ask society to change it’s behavior because of my higher risk. Making my misfortune other...
It sounds like he likes his current urologist. Being where I’m most comfortable and who I’m most comfortable with adds to the quality of my life. At that age (or even at my age)… I don’t know that I...
Condolences...
“Think about what you have (you're alive) not what you've lost” Amen...
I frequent a car site (Ferrari) that has a private section. People are charged money to be in the “private” section. In the private section (I pay dues to be in it. I Have been a member for about 20...
I’m not one to comment either but have been following your posts closely Stephanie. May God Bless you and yours....
It’s always been my understanding (possibly incorrectly) that, clinically speaking , the definition of “detectable” is .1 Anything under .1 is characterized as “undetectable”. Does anyone know...
I know a guy….ordered a not so uncommon sports car. Delivery time…4 years...
Good to hear Dell. As a matter of fact….great....
Very interesting thread. It’s always struck me as odd that I contracted this disease in my mid-60’s. “It’s your immune system that’s gone haywire” has always struck me as a lacking and unsatisfactory...
Congratulations Prato. “One less thang” as Forrest Gump would say. I’m happy for ya man. Brings a smile. (Well actually it gives you your life back)....
Being your own advocate is important in every aspect of life (except criminal defense law lol). This is especially true in medicine where the stakes are the highest. I really don’t do well with...
Hey Anxious, what I’ve been through with my health makes me extremely anxious as well. Prostate cancer. The only complication I did not have from that operation is death. Every other complication I...
I wouldn’t say it was a light switch but it definitely gave me better bowel movements. And yes, by better I even mean the ever elusive perfect bowel movement. I’ve been on it one year. My bowel...
Before prostate cancer, when I’d see anyone young or old with the tell-tell bandana on their head, it would scare me into not engaging. I guess I just couldn’t understand. I didn’t know what to say....
I honestly believe prostate cancer will not be your demise regardless of the treatment modality....
I don’t always just completely disregard the surgery hospital’s path report. I use them both…JH and the Surgery hospital’s pathology. Reading a gleason chart and comparing it to the tissue is very...
I’ve been having problems with pain in my big toe. 3 different docs. 3 different diagnosis. How hard can it be to diagnose a sore toe? Lol...